Well - its been a week today since i first experienced being pain free from the endo!! First time in many many years and it feels weird. I thought something was wrong as when going to the toilet i felt numb until a nurse explained that that is what it feels like to be normal and not have constant pain
Had a horrible time over New Year - thought it was the fact i had over done it with Xmas and getting back to exercise but it seems the Triptorelin causes a "flare" of hormones whislt your body purges all your natural hormones which caused me such pain and horrible symptoms including chest pains, sickness, bleeding, headache, bone ache, collapsed twice on NYE (not from alcohol, if only!!). Last time i'd collapsed was back in Aug when i ended up in A & E and was the start of people listening to me after ignoring my years of pain. No one told me what to expect with the jab - since i had surgery i was left to get on with things on my own, appalled by lack of care at the hospital. Hospital still cant find my notes 7 weeks later and no one seems bothered by it. Luckily with this forum and others on Facebook ive ended up with some helpful advice.
Am on monthly Triptorelin jabs for 6 months with daily Tibilone tablets and had the mirena coil inserted during surgery so who knows what the future holds. I know i will have to have surgery to remove endo from my bowel at some point but i guess for the next few months i can enjoy some pain free days at least.
Much love and hugs to all you lovely ladies and hope many of you get relief from your pain xx