On a scale of 1-10 how much has endometri... - Endometriosis UK
On a scale of 1-10 how much has endometriosis interfered with your general activity in the past week
EndoUK_CommsModeratorEndometriosis UK264 VotersPlease select one:
Im due on this week so this is when it really starts to get bad, already pre warned my boss its the bad week!!
Ditto with the above but coping at work okay, despite no sleep and no painkillers helping! Can't wait to see my surgeon am only 28 and newly diagnosed x
Just about coping it always suprises me how fast it comes on one minute im ok, I literally cannot stand up from my desk now. Me to only found out 4 weeks ago and im 29, still waiting for biopsy results from a colonoscopy - so fustrating x
Thankfully being on Zoladex for the past 12 months has given me a virtually pain free year. Currently on the waiting list for a hysterecomy but if i had my way it would be zoladex till the menopause
Having all endo out by excision, still get the worst neurological pain..and I'm at work and I wish I was at home!!
Wish I was at home to struggling to keep my eyes open now, the drive home should be interesting!
Bath, hotwater bottle and codeine is my plan for tonight how much fun my life is!! x
Recovering from a laparoscopy this week, so laid out low. Before Prostap, I would have 0-1 for 2 weeks 3-4 the week I was ovulating and 9-10 the week of my period. 
Good luck for everyone with their pain!
I have been of work for 4 years now with this, I have only been told in the last few months and now I had to have a hysterectomy x
This week I'm a 9-10. Just been to the doctor this morning and he has signed me off for at least a week. Thank God as I am skating on thin ice with work. My immediate boss is brilliant and very understanding but head office come down hard on "random absences" so I would have had to go in front of the absence review panel again if I didn't get the line. I hate being off as I feel like people are thinking I'm beng a drama queen but it does come on so quickly. Feeling really low about it this week.
having just had my 2nd period since my ovary was removed in Oct, as regained that familiar pain. Taking ibrobufen but am able to work, just seem to have to get through it.
it impacts on every aspect of my life from when i wake to when i sleep...possibly even in my sleep but thankfully i dont know about that 
it makes it harder to hold down a full time job due to the pain and exhaustion, makes it difficult to commit to social events, to have a relationship, just to feel alive and full of life and energy and not always be thinking, feeling, talking about endo related pain.
Maybe changing the time span may be a plan on this poll...one week is not really representative. A month may be a more realistic time span for us women to give honest feedback. I am currently fine but next week it shall be a different story.
I remember once having a life! These days I am fairly reclusive, have no desire any more for a relationship, I feel bloated and this horrible condition has affected my bowels, stomach and right pelvis. I sleep badly and ache all over most of the time and now live in baggy waistlines and unflattering clothes, so thank heavens for the company of my cat. I have had op after op, investigation are investigation and live on a cocktail of medication which often constipates me. Now in menopause, adhesions are my leading problem after years living with extensive endometriosis and diverculitis, hiatus hernia and ibs.
Too much information! sadly it's the truth! Depressingly they say there is no cure, further radical surgery carries a very high risk of further adhesions.
Ladies x a big hug to you all x
I've had issues on and off for years but December I lost a baby, landed up having 2 evacuations and a laparoscapy where they found and removed some endometriosis. I have now been off work since late November and had nothing but pain, blamed on infection, been in and out of hospital and now told to wait for an outpatient ap which is 9 weeks from last hospital discharge and on my sons birthday!
Work were being nice, now I think they assume I.m taking the p and struggling on statutory pick pay x
its so good to know that i am not alone with endo and pain
just come back from a holiday in Berlin for 5 nights. suffered with a bladder infection the last 2 days. almost called doc out and wanted to just get home to a course of anti biotics. 1 day was wasted and 3 nights back in room by 9pm ish. what a joy. I won't be booking another holiday for a while. I booked it back in Nov before I knew I had endometriosis.
Its 4 weeks today since I my first lap diagnosing endo. I have been off work three months and want my old life back. Have had some relief with ablation, but still in severe pain, awaiting gp and hospital to fight out politics of starting me on zoladex. This week is my first period since the lap and have spent the last three days in bed. I am limping because my hip pain is so severe and was up until 3am rocking in agony. One day I am not so bad then it gets you from no where. I am scared this will happen when I return to work. I am a nurse, how can I care for others when I am struggling to care for myself. Am hoping zoladex will bring some relief in month two as I know the first month will be hell. Also just starting the w do diet. Am trying to fight back, to learn to manage this condition but I am desperately running out of energy and want to hibernate until a day I can manage the pain. I am holding onto at least having a diagnosis now so I can try things to help. Sending hugs to you all xxx
Lillil, just made me feel a little bit normal then reading your answer im limping around like an 80 year old woman today because of hip and back pain, also the rocking helps sooooo much i find myself on all fours rocking back and forward for hours - if anybody could see me they would think i was insane!!! xx
i have been diagnosed recently with endometriosis just after having coposcopy to remove cancer cells with lazer treatment,i am 40 years old and have had anumber of surgery for ovarian cysts,womb scrapes and heavy bleading.i feel very sick everyday,no energy,very emotional to live with pain for more than half my life,i think,when is this all going to end.i cannot live a normal life,like you say you feel like an old women.the pain is just very savere also because of my neuro problems ,i am also waiting to go in for sugery for my lower spine to have it fused.i cant get out of bed normally everyday,it takes five minutes to get into my shower to run hot water over my body,it usually helps for a while,so i can go on with my day.i hide pain away very well and because no one sees your pain yhey take it that you are well.i feel sorry for those who have very demanding companions,as we try to keep up with them and worsen the pain.i feel like breaking down in tears everyday.i am constantly depressed and feel like i am going to be a burden to everyone around me.i pray for myself and all of you out there,at least we have each other to relate to.Bless you all! Janita.
Last week I had such severe pain I was delirious. I was taking the pill back to back for almost 5 years as the pain was unbearable. 6 months ago I elected to come off pill as I was getting bad headaches and high blood pressure and since coming off the pill I have never felt better! Although I am getting monthly bleeds I feel that I can cope with the pain far better then when I was on the pill ! Last week was a different story, however, I still prefer to have 2 days of crippling pain then feeling rubbish the whole time. Due for a 3rd lap soon. But trying to defer as do not want to have my body pumped with more hormones. They just didn't work for me
I'd love to leave a low comment on this as have felt relatively healthy this but... But that would be tempting fate for next week
Hope everyone is coping as well as possible and not in too much pain xx
I agree that a week possibly isn't the best time reference for this, but am very very glad to be able to vote 0-1. Before Christmas I would never have dreamt that was possible and was in a bad way and would have voted at least 7-8, if not 9-10, but 2.5 months into prostap injections I'm starting to feel like I have my life back for a while, the side effects can be tough and I know it's only temporary relief but I'm going to enjoy it whilst it lasts!
Sucks! Had a BAD weekend, so probably not the best time to answer, although that's how I found this website - always a silver lining! Lost more blood than normal and too quickly, so had to go to ER. Fortunately this is rare nowadays (spent most of high-school in there), but you forget how bad it can get when everything is good for a while. Curled up on sofa now with dog and boyfriend (who is wonderful and doesn't complain about my swearing and anti-social behaviour) and fortunately have Monday off work anyway, so will have time to recover. Have an hour of yoga tomorrow evening, and I know that will make a huge improvement with the pain. But right now just feel crap - freezing cold, have panda eyes, my muscles are too tight to stretch out properly and I have no energy at all. Weirdly, I have less pain when I bleed more, so not hurting that much (yay)! Going to find some Marilyn Manson and Rammstein and distract myself! Hope you are all doing ok.
Suffer from depression for no reason at all. Mood can change within a matter of minutes. Its horrible.
I'm currently at work with a heating pad strapped to my back. I passed out this morning in the shower, but I took most of this week off already for severe pain and I have so much work to finish up in the office. Hoping not to pass out again.
I had a complete hysterectomy which literally saved my life from internal bleeding and abdominal obstructions. So I answered the poll in terms to the effect of the last pre surgery episode of endo,. When I was rushed toA&E and operated on within an hour of arrival, there went my career, fertility and marriage all in one night.
