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Encephalitis Society

601 members • 438 posts

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Encephalitis from Rubella

From a young age, I battled Encephalitis caused by Rubella and have strived to lead a "normal" life. I've faced challenges with memory, concentration,...

From a young age, I battled Encephalitis caused by Rubella and have strived to l...

•4 days ago

My mom got HSV1 four months ago. Help please!

Hi My mom contracted HSV1 four months ago and was discharged from the hospital a month ago. Now her body is weak and she has difficulty walking and her body...

Hi My mom contracted HSV1 four months ago and was discharged from the hospital a...

•9 days ago

Have you faced something simillar?

I've been having cognitive difficulties for 3 months now. What exactly is a problem: Causes Shortly before this situation started, I was sick with...

I've been having cognitive difficulties for 3 months now. What exactly is a...

PuzzleheadedBowl510

•12 days ago

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HSV 1

Hello. I need some advice. My brother was diagnosed with HSV 1 Encephalitis on January 12. And on January 9 he had an epi attack. He was in the hospital for a...

Hello. I need some advice. My brother was diagnosed with HSV 1 Encephalitis on J...

•18 days ago

Is anyone out there?

Hi My husband has/had viral encephalitis and is being treated with anti virals. He only went down with it about 9 days ago but I feel that I have lost him. He...

Hi My husband has/had viral encephalitis and is being treated with anti virals....

•21 days ago

Encephalitis

My daughters journey , Tanya was first diagnosed with a UTI , she was put on antibiotics for 3 days , after day2 she had no change and we took her to hospital,...

My daughters journey , Tanya was first diagnosed with a UTI , she was put on ant...

•26 days ago

Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old

I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other...

I am mum to a 16 year old daughter who has recently been diagnosed with autoimmu...

•29 days ago

Reaching out to find someone to talk about their experience with my dear friend.

Hello, I am sending a message out into space looking for someone willing to talk about their experience as a survivor of autoimmune encephalitis. My friend...

Hello, I am sending a message out into space looking for someone willing to tal...

•30 days ago

Suspected brain changes

My son had encephalitis when he was 1, then had transient encephalitis for the next few years. We didn’t know for sure what it was till years later, and...

My son had encephalitis when he was 1, then had transient encephalitis for the n...

•1 month ago

Travel

Just wondering if anyone has had any issues entering another country in Europe with their medication, just trying to plan ahead as the other half has a holiday...

Just wondering if anyone has had any issues entering another country in Europe w...

•1 month ago

HSV encephalitis

Hi I wanted ask if anyone else has experienced similar symptoms. Over the last 2 months my condition has got worse . My mom has been having episodes of...

Hi I wanted ask if anyone else has experienced similar symptoms. Over the la...

•1 month ago

Medical file request

Well as of last week I requested my gp medical record for the period of April 1st 2021 to present, which coveres the encephalitis, got the file yesterday and...

Well as of last week I requested my gp medical record for the period of April 1...

•1 month ago

The perils of pooing upside down

If you thought life with Enc was tricky it's easy compared to life in space:...

If you thought life with Enc was tricky it's easy compared to life in space:...

•2 months ago

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Update on Autoimmune Encephalitis

I came across this after a random search of LGI1 - a term I'd not heard of before. Here is a description: "Mutations of LGI1 have been linked to autosomal...

I came across this after a random search of LGI1 - a term I'd not heard of befor...

•2 months ago

Covid vaccine

I am going to put it out there . Did anyone get ill with encephalitis after taking the Covid vaccine? This has been something that has been playing in my...

I am going to put it out there . Did anyone get ill with encephalitis after t...

•2 months ago

Viral Encephalitis

Hi I am at total confusion with my mom’s recent symptoms of viral encephalitis. She in year 3 of her journey and her brain has been severely impacted....

Hi I am at total confusion with my mom’s recent symptoms of viral encephaliti...

•2 months ago

Another update

This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc....

This is just a reply (edited), not an original post but readers may find it of i...

•2 months ago

Medication

So far my intake of medication is, 1000mg sodium vaprorate twice daily, 100mg propranolol 3 times daily, trazodone 200mg daily, famotidine 45mg daily , feel...

So far my intake of medication is, 1000mg sodium vaprorate twice daily, 100mg pr...

•2 months ago

Auto immune encephalitis

My father was diagnosed with autoimmune encephalitis, after experiencing seizures and deja vu, approx 12 months ago, he was treated with steroids. He...

My father was diagnosed with autoimmune encephalitis, after experiencing seizure...

•2 months ago

HV encephalitis

I posted on here a few days ago I just wanted to ask about mom who got HV encephalitis over 2 years ago After my mom came out of hospital we saw some...

I posted on here a few days ago I just wanted to ask about mom who got HV ence...

•3 months ago

Update to last mri January

At the start of January I had another follow up mri scan, today received the letter from hospital neurology Dr, basically say nothings looks or appears any...

At the start of January I had another follow up mri scan, today received the le...

•3 months ago

viral encephalitis

Hi My mom went into hospital in Aug 2021 after she became really ill at home . She ended up in an induced coma . She was diagnosed with viral encephalitis....

Hi My mom went into hospital in Aug 2021 after she became really ill at home ....

•3 months ago

Talking to yourself

Recently... last couple of months, I have noticed that my husband has started talking to himself. It not a complete conversation. It's like he is giving...

Recently... last couple of months, I have noticed that my husband has started ta...

•3 months ago

World Encephalitis Day Conference

Places are still available for the three- day event in Jacksonville, Florida, USA, to celebrate World Encephalitis Day 2024. This event will be taking place at...

Places are still available for the three- day event in Jacksonville, Florida, US...

EncephInternational

Partner•3 months ago

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A poem

The Seasons Tonight the song in my head is 'Pictures Of Matchstick Men' The night sky overhead zooms out to infinity, Clouds assemble themselves...

The Seasons Tonight the song in my head is 'Pictures Of Matchstick Men' The ...

•3 months ago

Follow up

Hioe everyone is doing good and had a good start to 2024 , well today was another follow up MRI scan following encephalitis in 2021. Got my follow up neuro...

Hioe everyone is doing good and had a good start to 2024 , well today was anothe...

•3 months ago

A poem

Eventually Eventually My thoughts, Fall from my mind, And sleep envelops me, In its netherworld. Far away On shores unseen. Eventually, We all...

Eventually Eventually My thoughts, Fall from my mind, And sleep envelops me,...

•3 months ago

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Neuropsychiatrist recommendation

A friend was diagnosed with auto immume encephalitis a number of years ago and recently relapsed. There is permanent damage to a part of her brain. We are keen...

A friend was diagnosed with auto immume encephalitis a number of years ago and r...

•4 months ago

Autoimmune Encephilitis

Hi all! I’m here on bahalf of my little sister. She’s 23. Her joruney started with a grand mal seizure on her honeymoon. She was hospitalized in Fort Worth for...

Hi all! I’m here on bahalf of my little sister. She’s 23. Her joruney started wi...

•4 months ago

Stroke?

Hi all, apologies in advance for the lengthy post! I posted quite some time ago regarding my husband having Brainstem Encephalitis, of unknown cause. He was...

Hi all, apologies in advance for the lengthy post! I posted quite some time ago ...

•4 months ago

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