Has anyone experienced a CSF leak low pressure headache? Apparently EDS folk are more inclined to get a tear in the dura around the brain and spine, allowing cranial/spinal fluid to leak and the pressure dripping around the brain.
I’ve had one for 11 days now, just out of hospital in hope I’ll keep improving after a blood patch. I am pretty stressed about it, just hoping for some stories of people recovering and how it went *crosses fingers *
Hope everyone’s well, Ellie