Hi everyone and happy new year!
I've got some crazy itching as part of my EDS and wonder if anyone's had any luck using medication or making dietary changes to control it. I've never been tested for MCAD but that might be a start - is there a London-based specialist who could carry out that testing for me? Antistamines help but don't get rid of it altogether.
Thanks!
I had itching on my arm for a long time, nothing worked until my doctor told me to try ice. Wrap a towel around an ice pack and apply for 20 minutes at a time.
I haven't had a "proper" diagnosis of mcad but I was flaring badly during an appointment with an EDS specialist who suggested ( insisted) that I had it and prescribed ranitidine in combination with ceterizine. She said "good luck finding someone to diagnose it!" However, It worked! I had been on some serious antihistamines with poor results but these two together worked! Well, they work most of the time. I flare when cold or stressed. You can even buy these over the counter to try. Good luck, it's not fun!
Wow, that's great! Really pleased to found something. I'll ask my doctor about those. Thanks v much!
Hi, I have itchy patches, mainly one arm at the moment . Unfortunately I scratch it in my sleep or totally frustrated with it ! This makes blood blisters etc and then scars . Antihistamines help but I've used sudocreme and that really helps ! No laughing - I have my nails done every 5-6 weeks, acrylic, I can't scratch then ! Bonus ! No marking or scaring
Hi, Very difficult to diagnose, usually is diagnose by symptoms. The labs are uncertain, anEDS specialist would help. DrAllan Hakim in London can help. You can find his info in the EDS SOCIETY. ALso plenty of new information that will help you talk to your specialist.
I have EDS, MCAD and POTS.
EDS? Where do I go to get diagnosed? PS I'm new to this forum. 
On the fence about vEDS
Maybe it's hypermobility syndrome
Trying to figure it out