I've been struggling with pain my whole life.
I remember being around the age of 6 and crying when walking home from school because my ankles hurt so much. I got cramp later on that day and my mum didn't know what to do. I got told I had arthritis in my toes and fallen arches at the age of 7.
I wear splints on my thumbs to be able to write. I wear arch supports among other things. I read recently that HMS is linked to being dizzy/fainting. I had brain scans when i was 13 because i couldn't stand through dizzyness and was on vertigo medication for a year.
My skin is as dry as the sehara desert, and thin to boot. My shoulders/arms dislocate and i'm in constant pain.
I got told my body was hypermobile (with a 9 Beighton score) after tearing my ACL - which they misdiagnosed for a year and I had to just walk with a cane before they actually gave me a scan a year on.
I recently discovered HMS... And began crying. Because everything I was reading made sense. I have an appointment to discuss options and to get a diagnosis on tuesday... I just don't know whether to feel relieved or frustrated? I'm almost 21 and just now finding out that all of my different conditions may be caused by one disorder; that I am not a hypochondriac and I actually have a right to complain in stead of being told "everyone gets aches and pains."
It's so nice to read so many similar situations here... I feel understood for once.
Thank you for reading this!