Hi, I’ve just joined as I’m currently under investigation for EDS, but we are unsure what type.
I have a rheumatologist appointment on Tuesday and it seems it is with a really good Dr, he is also a medical director or something fancy like that.
I’m just wondering what may happen?
My GP completely agrees that EDS is a very big possibility for me and has said he’d be very shocked if I didn’t have the condition.
A list of some of my problems:
Scoliosis and spinal fusion
Super super soft skin
Sensitivity to things
Food intolerance and difficulties digesting food
Full score on Beighton scale
Chronic pain disorder
There is probably more that I’ve forgot, I’m 21 years old and really struggling lately with my health. I’m already on Gabapentin for chronic pain, oramorph for really bad days, use a walking stick for bad days etc.
Any advice or tips are appreciated for my first appointment