Does anyone else with EDS have puncta... - Ehlers-Danlos Sup...

Ehlers-Danlos Support UK

2,948 members934 posts

Does anyone else with EDS have puncta plugs for Secondary Sjögren’s? and feel like their body is just packing up

1 Reply

First post on here, I have very dry eyes and very light sensitive which I put down on to my having EDS. I was referred by an optometrist to a Dry Eye Specialist who did a Schirmer's test which showed a very poor tear count and was very low at 3mm and inserted puncta plugs in both my eyes. The plugs have helped lubricate my eyes and have helped a bit with the light sensitivity. I was told my iris was thin due to EDS and that was why I had such severe light sensitivity, but eyes are always watering and I have to keep wiping my eyes. I was told that I could have them taken out if I can't cope with them and have them put in the top of my eyes instead but then they wouldn't be so effective Anyone else had plugs put in please.

Read more about...
1 Reply

I have confirmed Sjögren’s and punctal plugs. I believe I have EDS too but haven’t had confirmation at all yet. My plugs work quite well although I still need drops often and find I tear up badly in windy weather. But on balance my eyes are definitely better for having them

You may also like...

Does anyone have EDS and Parkinson's?

symptoms, it's all very confusing and I'm not always sure which is which. Does anybody else have...

Anyone else with EDS have severe asthma?

just curious. I have many other health issues that aren’t related to EDS and are very rare so I...

EDS and Endometriosis

endometriosis if they can shed any light on what treatment options there may be... I have EDS...

Finally got some answers

to panic when they are told they have EDS , because as soon as they are told it could be EDS they...

Headaches and dry nose

etc. I also have cold air urticaria. ‎ I have a very dry nose and post nasal drip. I have been...