Hi everyone just a little about me I’m 27 and for the last two years I’ve suffered with extreme pain swelling and spasms in my hip and thigh and it’s only got worse and worse. I have to use crutches and can barely walk 5 metres on them without crying in pain. I’ve been put in multiple crazy sting painkillers with hardly any relief and after my doctor sending me to completely the wrong people and having the wrong tests over and over again I finally got somewhere at the end of last year.
My mum told my doctor to recon me to rheumatology as it is sort of my last hope and yesterday I had my appointment and for the first time in two years I came out of an appointment feeling positive and not crying my eyes out. In the appointment was the main consultant and the senior consultant for Physiotherapy , they both sat and listened to every single thing I had to say to them.
He said after just even talking to me for a few minutes, seeing my swelling and pain and examining me he’s convinced I’ve got Hypermobility syndrome. My first real step to a diagnosis and a first real step towards the correct treatment and help for me.
I can not wait until my next appointment with him to see what the next stages are as I really just want some sort of life back. Living in my house day in day out for the last year has pretty much drove me nuts and the pain is just uncontrollable now
I would like to hear from other people who have this and their experiences and what kind of thing really helps