I was diagnosed in may with eds hypermobility and was told I needed an echocardiogram as I have had lots of palpitations, dizzyness, light headed Ness and breathlessness after little exertion (some chest pain too)
No appointment yet but got a phone call from physio offering me a cancellation for tomorrow. I don't know what to expect. I was only diagnosed as had been having stomach problems and they're kot resolved. It seems really pointless and I'm worried the rheumatologist only cares about my hypermobility despite not having any real problems with it.... (I made a long post about it post diagnosis and I'm still not over it...)
Anyway, I have no idea what to expect?
I have an appointment with a different rheumatologist ext month so was trying to move past the horiffic last appointment and gt on but now I'm dragged back in the cycle of anger and sadness and confusion from before!