Hi : Hi I'm Clare ,46 female frome the Highlands in... - EDMESH

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Hi I'm Clare ,46 female frome the Highlands in Scotland . I suffer from under active thyroid , fibromalgia , depression , borderline personality disorder , CFS ,IBS ,migraines . m life seems to revolve around taking my meds as I haven't the energy to do anything. Most days are spent in bed .

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Clare2206
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Karenlynne

Hi Clare. I'm Karen and boy are we similar!!! Where to start??? Am a bpd sufferer who improved tremendously by a stay at The Retreat in York on the Acorn unit. A private hospital but funded only by NHS patients. However if you have m.e too until that's resolved it wouldn't be of any help as it's emotional very hard work...and exhausting!!! Also suffer from depression...very severe. Pre the retreat was in hospital for 4-6 months most years but since only a total of 22 days in the first 18 months. Since being on maoi antidepressants,no admissions. Still do get depressed but usually a trigger such as rejection, perceived or true. Thyroid,no option but meds am afraid. Am on 175 mcg and pretty stable on that. Don't have fibromyalgia but it's in a similar box as CFS just more painful I understand. So,what to do??? First I suggest you accept that at this moment in time it is as it is. You need medication for thyroid function. You need medication for depression.believe me it's far better than being suicidal!! You are I suspect in pain with fibromyalgia as I am with spinal canal stenosis. For this I need morphine patches as well as oral painkillers. Accept they're necessary and take but the minimum you can. My major problem is CFS. Have been bedbound for nearly 5 years now and it doesn't get any easier. Try get someone to buy you Sarah myhill book. Chronic fatigue syndrome. Mitochondria not hypochondria if able read it. If not maybe a friend could read a chapter and summarise it for you until you get through it. I am usually unable to read write or do much atall unless I don't sleep and go on a kind of high when am mentally more alert. Unfortunately I then crashed from overdoing it and can spend the next week alone silent in my permanently dark bedroom. Emotional anxiety and stress also effects CFS as well as ibs which I also have. My GP who specialises in chronic fatigue suggested I take gaba as well as l theanine supplements for stress and aid sleep. Check neither interacts with any antidepressants or other meds first though. They are both helpful for me. The l theanine combined with gaba I usually take at night tho 100 of l theanine helps in the day as does gaba,just that sleep is a severe problem for me. Try getting books on mindfulness. Like I am here now by the mindfulness programme. All about living in the moment.not planning or dreading tomorrow or regretting the past. We only have the present in which to live. Enough rambling. Hope this helps you a little. Am happy to stay in contact should you wish, to try encourage and support you but be aware that I too am ill and often unable to access tablet or even text!!! If you want any other help will try my best. New to all this so am unsure re email addresses etc. Wishing you well. Karen.

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Karenlynne

Hi Clare. I replied to your cry for help but haven't heard if you've had any help atall from anywhere. Not sure if I was if any use to you but if you do feel you would like anything else I can do to help you please let me know by replying to my tpreply

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