I had one kidney removed about 2 months ago for a kidney stone and since then I have been told I have stage 3A CKD. Still trying to get my head around all thats happening .
Is it normal to feel really tierd and to... - Early CKD Support
yes my husband used to itch terrible when he was stage 3 & 4 & the tiredness is common he had injections for anaemia but felt not much better the itching is caused from the imbalance of electrolytes & increased urea in your blood he feels less itchy since being on dialysis strangely enough! he has tried lots of things for the itching but the best he finds is E45 itch relief (not the dry skin one) expensive but helps (currently on offer in superdrug if thats any help) he stayed in stage 3 for a good few years so you may be ok for a while but yes the symptoms you prescribe are exactly how my husband felt.
Roo_Morgue this sounds so familar, my specialist keeps telling me my symptoms too are nothing to do with my Stage 4 PKD!
Being tired is a symtom and will be worse if you are anemic. Itchy skin is also a symtom, when my mum was alive she took garlic capsuls for this, I have yet to try as I only itch when I have an infection. I also have heard E45 itch relief is good.
I am also stage 3 and was suffering badly until a couple of days ago. As already said you need to check your iron levels.....I'm on EPO. I have found the best treatment to be cornflour rubbed in the skin or pure coconut oil. A few days ago I went dairy and gluten free and my itching has been gone for 2 days so far.......
As far as i understand, itching may be due to a build up of phosphates. So it may be good to try and control your diet if you are not already doing so. You may need advise from a renal doc or dietitian. You can also get phosphate binders from the doc. A blood test will reveal whether you have high phosphate levels.
I exercise a lot ( 4 times a week) and feel it helps when i sweat out through my skin. I notice that about 10 mins in to a session, at the stage of starting to sweat, i get very itchy. by the end of a good aerobic session i not only feel better, but it seems to control itching, as i am not very itchy at all, and nearly at end stage renal failure. It seems to me that dietry control is one of the things you can do for yourself. The less work load you put on your kidneys the better.
I hope this helps. Take care. damson
i was having heavy itching all over...i was extremely tired all the time...i was barely urinating...no one told me i had poor kidney function...or that i was in danger...i had to see my labs before i saw what was truly happening to me...i self diagnosed my condition by by gfr of 35.12...which would be stage 3b kidney disease...i have seen 3 doctors in the past 10 months and no one warned me...at all...so i went vegan...in the past month and one week i have lost 29.5 pounds...i drink only water...no salt...no sugar...no processed food...no animal products...only low potassium and phosphorous foods...i am not counting of as yet and i will probably have a more stablized diet but so far...i have a huge amount of energy...no itching...i have mental clarity...i only eat when i am hungry...i am urinating more...i don't know where i stand in gfr right now...because i have dropped two of the doctors and i just recently made a new appt with an internal doc...he will have to renew my referrals...i had to call the other gp to make a referral to a kidney specialist as he didnot...pathetic huh...i have made complaints about these doctors via yelp and online but i am planning to make a formal complaint against them to the medical board...i think this is truly appalling that doctors don't guide patients on what to do...why do i need insurance or even the doctor...i have taken the reins back and i won't ever release them again...screw them..
also i have got off my blood pressure meds for the most part and even my blood sugar meds...neither of which are good for you...i am still researching all of this..but you can find ways to help you on youtube and the medical journals...which alot are posted online...i wish everyone luck..and trust your gut & intellect before you trust a doctor...which are only expensive technicians...
I agree with you. I also had the same experience but listened to the things I read in this forum and change my diet. It took 6 months to change my numbers but went from 36 to 55. Very happy that I changed my eating habits. Even if my numbers didnt change I feel a whole lot better. Good luck on your journey.
Having downloaded a diet sheet what to eat or not. One of the points that came up is that too much phosphate in your diet can cause itching. It also reduces your calcium level and that can weaken the bones. Your Doctor should have a healthy eating and diet sheet on his/her site. There is probably one on this site.
I had a kidney removed last year due to a kidney stone as well! And after that they found my other kidney is now in stage 3 CKD. It's been as low as 32 but stabilizing for now at 47. I've been reading and googling everything I can about the diet for CKD, but still not clear on how much animal protein I should have. I know it's very limiting, but want to know specifics! I finally made an appointment with a nutritionist, but can't get in until November. What do you know about this? Thank you!