Survey from the National Kidney Foundation

[Bassetmommer]

The National Kidney Foundation wants to learn about the unique experiences kidney patients faced when they were first diagnosed with kidney disease. Your input will help us better tailor our programs, services, and education for individuals with kidney disease. Make your voice heard:

surveymonkey.com/r/BLRQS6R

[honkytonks]

I was sent home with no advice and despite pleas for dietary advice for stage 4 CKD had to get my go to get this from my consultant and it was one sheet of paper and looked as if it had been printed in the 1950’s. Most of my info came from the internet. Got depressed due to lack of support from health professionals. They were quick enough to offer anti depressants when I got upset (which I refused)!

[Bassetmommer in reply to honkytonks]

Sadly, this is very common.

[Rachmaninov2 in reply to Bassetmommer]

I was told just recently (in passing) that I have stage 3 kidney disease. This was at a rheumatologist appointment, and I was told that this is par for the course in people of my age. Again, no info., no advice or referral to a nephrologist and I too have tried to research the condition. I have asked my GP to refer me to a dietitian and my next step is to ask for a referral to a nephrologist. Just left to get on with it! Surely more strain is put on the NHS if we are just allowed to potentially deteriorate, it would be better all round if we were to receive help sooner.