Corona virus and CKD: Hi, Just listened... - Early CKD Support

Early CKD Support
6,264 members2,305 posts

Corona virus and CKD

madonbrew
madonbrew

Hi,

Just listened to Boris’ speech and how those with chronic kidney disease need to self isolate for 12 weeks. I also have severe asthma and a strange autoimmune disease. I work as a carer in a nursing home so guess I need to ring in tomorrow to share the news I won’t be able to work for 12 weeks. Is anyone else in a similar situation?

Dee

56 Replies
oldestnewest

Do you have treatment for CKD or know your numbers, it's not worth risking in my view and its difficult as we seem to have to make our own decisions after hearing their advice.

Glyndwright
Glyndwright
in reply to Deni52

My GFR is 34 I am a 70 young Male.

Deni52
Deni52
in reply to Glyndwright

Stay young Glyndwright and follow the goverment/nhs advice, if you need answers phone your GP's surgery. Take care 👍

My eGFR is 33, but I’m only 41 years old. I had a Rituximab infusion back in September as my ckd and pancreatitis is caused by a rare autoimmune thing. I’ve also had two 11 day hospital stays for my asthma within the last 3 years so don’t think I want to risk it!!!

Deni52
Deni52
in reply to madonbrew

I dont think I would, I'm not medically qualified to advise you but your own gut feeling seems to say stay away, nursing homes are a two way problem we can pass bugs on to many or we can pick up bugs and maybe put extra strain on the nhs, it's your decision but look after yourself stay safe👍

Thank you Deni52.

I also live with my parents at the moment who are both over 70& my mum has just come home from hospital after being really poorly &my dad has COPD and kidney cancer, so as a household we are all high risk.

I guess my elderly folk won’t be the immediate problem... but the other staff! It’s hard to know what is best my family have been through a lot recently and corona is something we could definitely do without!

Take care too&keep safe!

think you know the answer 🙂

madonbrew
madonbrew
in reply to Deni52

Thank you! Sometimes you just need someone to suss these things out with don’t you!

hope your family and yourself stay virus free 🙏

madonbrew
madonbrew
in reply to Deni52

You too!!!

How are you and your kidneys?

Deni52
Deni52
in reply to madonbrew

I dont have treatment my numbers dropped to 39 last oct but went up to 60 + after finishing antibiotics, although my doctor thought it could of been my bp meds so changed them which has been a nightmare as I dont get on with meds too well lol no idea what my numbers are now.

madonbrew
madonbrew
in reply to Deni52

Meds can be a right old problem can’t they!! So helpful in many ways, yet problematic in others!

That’s good your numbers went up though!

I’m a Nurse, have CKD and both types of Lupus among lots of other things, have you read anything about auto immune conditions and staying home for 12 weeks

Deni52
Deni52
in reply to Cornwallstar

I would of thought you would be in the same position as madonbrew

This is the first I have heard of a 12 week figure. 3 months is a long time. Those that even have the virus are told to stay home for 2 to 3 weeks. I suppose each country is different.

The immunosuppressed/at risk groups have been told to self isolate for at least 12 weeks

No,I am just going by the advice of the government officials today. Have you seen anything in regards to autoimmune stuff?

Rituximab makes me immune deficient for a while and my 2 asthma hospitalisation were very serious so I just don’t want to risk it.

There doesn’t seem to be much information out there in regards to which chronic health conditions are more susceptible.But they did mention ckd and anyone who would generally need a flu vaccine because of health conditions.

I work in education and have a ckd diagnosis. School still open! Not sure if self isolation is covered with pay or sick pay and if I can afford to take 3 months off. Don’t know how chronic I am or what my risks are. Not sure what to do

Deni52
Deni52
in reply to Dewi

I know a lot..if not all doctors surgerys have closed their doors to people walking in but could you get a telephone appointment?

Munkie
Munkie
in reply to Deni52

That's a very good point to make. I'm set to have surgery in beginning of may for reconstruction for my eardrum which was damaged from the eustachian tube dysfunction. I'm in ft hood & they have the hospital entrances set w testin before u can go in. I have a triple whammy as I call it. I have the hypertension, hypothyroidism & ckd. I would say the biggest struggle I see is so many symptoms they mention, at least for me, is due to one of those conditions. I did notice they said it could cause the albumin to change drastically. But again so can other factors that affect ur results

Deni52
Deni52
in reply to Munkie

stay safe Munkie 🙂

Stebru
Stebru
in reply to Dewi

School is a fairly safe place to be as children don't appear to be impacted by COVID19

lowraind
lowraind
in reply to Stebru

But they are carriers.

You are at high risk because of the asthma as well as CKD, you have autoimmune disease as well which may also add to your risk. COVID19 seems to be hitting people with health problems especially hard and most deaths seem to be people with them.

Only you can make the decision, for now at least, is your work worth your life? Is the question you're asking, only you can answer that.

If you think that you are irreplaceable then test yourself. Fill a bowl with water and put your hands in. Remove your hands and the hole left is representative of how irreplaceable you are.

madonbrew
madonbrew
in reply to Stebru

Thanks Stebru, I am confident I have made the right choice not to go to work...just have to brave it up to ring them! Have no idea if I’ll end up with any money incoming but thankfully between me and my parents we’ll have enough to survive.

Oldearkie
Oldearkie
in reply to Stebru

nicely put

Yes me too. I also have chronic kidney disease and work front line in the NHS but I don't imagine they'll let me stay at home for 12 weeks. I'm trying not to panic with all this going on around us, try to take each day as I would normally!

I also have Ckd, about 50 percent. I’m going to have a blood test soon as I don’t know uptodate result. I also work for the NHS in the children’s immunisation service. I work on the Bank, so I can leave. I am 61 years old, generally fit have psoriasis. I’m going to have a chat with lone manager today, as reading this thread makes me uneasy.

I have pkd and current GFR is 24%, I’ve been off work since October with stress & fatigue but I’m due back next week. I work for Royal Mail so would be in daily contact with several people, I’m not sure what to do 🤔

I'm 39, gfr is 33. I have two young children and my wife is an ICU nurse. I can work from home but I'm worried about my wife or children picking up the virus and passing it to me. Don't know what to do and feeling really anxious. I have a telephone consultation with my gp later today so will hopefully get somd clarity.

I totally agree with you, I’m also worried my husband will pick it up as he picks everything up. He is working from home as from today but still has commitments he doesn’t want to give up in the three months which include socialising. Will be interesting to hear what your GP has to say.

Mandelin
Mandelin
in reply to Dawncov57

I agree with you. My husband is a truck driver and even if everything closes they won’t shut down the truckers cause they have to keep medical supplies and groceries coming. The one good thing he said is that warehouses aren’t allowing them in, but he still has to deal with people at his job who are always sick anyways. If someone in his terminal gets it I guess that would be the only way to isolate them, but not really hoping for that.

GP has advised me to work from home, which I started today. We've planned that if my wife works with active cases she will change at work and sleep in a separate room. If she or the children show symptoms then I will move out for two weeks. Feel a little more in control now.

Deni52
Deni52
in reply to Bearhair_07

Its good you are working together, take care, God Bless yourself and family 🙂

That sounds good news, and the schools closing too will allow the children not to bring anything into the home. My husband has just been diagnosed with a liver disease so between us we are a right pair! I agree about the feeling of control, we have to be proactive with our decisions as much as we can.

Hi Dee

I have also now followed the advice, and phoned into work. My line manager, was a little flippant, and remarked that not many nurses came into the office after visiting the schools-(current school immunisation programme). Anyway I need to protect myself and others and will do as I feel this is the right way at the moment.

madonbrew
madonbrew
in reply to Dawncov57

I’m glad you chose to look after yourself!! Take care & stay safe!

...hope you’ve got some good indoor hobbies to do!! I just got a new piano so should be as good as Elton John by the end of this time! 😂😂😂

Dawncov57
Dawncov57
in reply to madonbrew

Aw, bless you. I like knitting , yoga and reading, and have a garden so that will be very tidy! Good luck with your new piano, you will be a new star in the making before long . 🤩

Developed Under active thyroid in 2005 then I fell ill in 2007 which tumbled into 2008 and unable to work with no diagnosis. I had an adrenal crisis which put me in hospital for a month in an induced coma, I was lucky to survive. Then I was ok for a while when I became seriously ill and landed in hospital with Kidney failure in 2016, my GFR was 11% and they were considering putting me on dialysis. However it was autoimmune like me addison's and I slowly began to recover, my GFR is now 48% and I take regular blood tests to monitor my kidneys and other conditions. With the recent announcement I am very concerned

Deni52
Deni52
in reply to Rene23

Look after yourself, I spoke to a nurse practitioner today she said do everything you can to look after yourself. Seek advice if it would reassure you. Many more will stay safe than be ill.

Rene23
Rene23
in reply to Deni52

Thank you for your kind words

I wonder why the 12 week number. Most recommend 14 days. I checked on kidney.org and their recommendations, and no such prolonged quarantine is mentioned. I personally think it is a day to day decision. How things are progressing. If you are in an area where there even is the virus. For example while our state (new York) is high in the number with the virus, the county I live in and surrounding counties, have ZERO cases of the virus. You mention your asthma which certainly something that would make you be very cautious. I don't quite understand why catching this virus (a respiratory disease) would cause damage to a persons CKD. But here again, I imagine it depends on what stage you are. 3 months of isolation for someone with no symptoms just seems excessive.

Your immune system can be compromised with CKD, kidneys will be below par to start with, the 12 weeks I understand to mean keeping anything at bay nation wide and for your own good health. Best if fewer people are out and about plus your system needs building up and protecting if you have a health concern.

Hidden
Hidden

I think more people will die of suicide than from this virus due to the drakonian shut down and government advice re not using pubs etc. Many small businesses are hand to mouth over the years and this will close them for ever. 450 people every day die from cancer in the UK, so far in about two months fifty odd have died from the virus, the vast majority who like us are already ill. I have stage 4 ckd and am in no way concerned. Thank God the people of the UK in 1939 were a damn site more robust of mind than we seem to be in 2020. As for the muppets buying all shop supplies up!! dont get me started!!

BullDog68
BullDog68
in reply to Hidden

Well Said!!! What gives people the right to behave in this manner and cause suffering and distress to others,

I sat and cried when I saw the post of that poor critical nurse crying because she could not get the supplies needed to bring to her family after and I will repeat after a very long shift caring for others, and indeed some seriously ill patients.

If your one of these selfish individuals, I ask you to think about others and not consume your own greed.This could be a very long haul, with some Dark days ahead.

At this moment I think about the NHS and the fantastic work they are doing day and night to save lives, putting themselves in the front line of this deadly disease, have you these thoughtless individuals even stopped and thought about what these fantastic Doctors and Nurses are doing!!!

People out there, show love and compassion, unite and let's stand together to get through this.

My heart also goes out to the economy and businesses having to shut, redundancies, people struggling, and the uncertainty of what's ahead.

Keep safe and well everyone, God Bless.

I think they said people with CKD should be shielded, not necessarily self isolation.

I am a nurse and am stage 3. I am stable and healthy but am not sure what I am going to do. Right now I am playing it by ear to see how the outbreak goes where I am. 12 weeks is a really long time and I am used to being very busy. I am not sure what I would do with myself unless my Health Coaching business were to take off like a rocket lol. My husband and I have been discussing this possibility for some time.

I rang in to work yesterday and told them I won’t be there for 12 weeks! My boss was actually lovely &just wants me to be safe!

Don’t forget your work places will also be aware of the government guidelines.

At the end of the day you can only make the choice for yourself! There may be more coming up in the next few days about people with certain health conditions and the government guidelines.

Take care & stay safe everyone!!

SamLab
SamLab
in reply to madonbrew

I am stage 3b egfr between 33 and 36 i'm planning on self isolating and haven't been out and about since Tuesday for essential shopping, my husband is a care/support worker private sector and also had a heart attack last year, his employer has agreed to him staying off work as I am on list of vulnerable adults and also have him on their list too but time off is without pay not even SSP. Just wondered if you had had similar experience, the British Gov are telling us to stay home for 12 weeks but not offering any advice or assistance in support of still being paid as they have done for some workers who are being laid off. Thanks

Just saw an article and the serious consequences of corona virus are kidney failure, hence why we are at more risk.

I am 26 years old, have CKD Stage 3, as well as a rare condition called Branchio-too-renal Syndrome and I work in education. I am awaiting specialist advice from the nephrology team. In the meantime, I have been supported from my employers to work from home until I know it is safe for me to be at work. But can anyone tell me if I do need to isolate for 12 weeks? Does it apply to me?

purple-1974
purple-1974
in reply to NJ0719

I have branchio-oto-Renal as well, my gfr is 27, I also work in education and since last Monday have been at home. My headteacher doesn’t want me to work as she is concerned with anyone passing it onto me.

NJ0719
NJ0719
in reply to purple-1974

Thank you for your reply, this is helpful. I was sent home last Tuesday for same reason. It’s clear to me now that I should work from home and I would feel safer doing so.

I am 61 and also have it at around 48-52 which I think is level 3a. I am also wanting to know at what level this directive about self isolation is aimed. Considering my experience with the gp since I was told I have this about 5 or 6 years ago ( not overweight, very low blood pressure, not diabetic, no heart disease so possible due to nsaid use) he immediately jumped up and got me a flu jab and said I needed blood tests every 6 months. So I had them for a couple of years and I ‘self healed’ up to about 52. I’ve not had a test since so don’t know what it is now. The reason for this, is that I had to see a couple of different gp ‘s as the other one left for a sabbatical, and both said, when I asked for my jab, you haven’t got CKD! So no more jabs, no more blood tests....then out of the blue last October I had a text saying to go in to a walk in clinic for my jab. I ignored it as thought it a mistake but had two more so replied telling them my experience. They replied I am entitled to a flu jab because of my CKD! So what on Earth is going on..I don’t know if I have it or not... Anyway , I digress, sorry, does anyone know which level it is aimed at or does it just mean any level to self isolate?

Hope you’re all doing ok and are keeping safe! Hope everyone is managing to figure what they need to do! I guess anyone will get their letters from the NHS this week,but take care & look after yourselves and others!

Dee

You may also like...