My Behcet's headaches - \"Atypical migraines\"
amietamant in Behçet's UK6 years ago
I don't know about the availability of perfusion MRI's at the Behcet's Centres of Excellence, but it might be helpful to print out the full ...
Struggling with my recovery
markmorris71 in Meningitis Nowa year agoPOPULAR
I had BM back in early Feb. I spent 9 days in intensive care, another week on a ward and was then discharged. To nothing! No plan or any ide...
CLL enlarged lymph glands
DebLeeCox in CLL Support Association2 years agoPOPULAR
Hello! I am 39 and was diagnosed with CLL in January 2017. I am on watch and wait and have regular blood tests every 3 months at this stage ...
Help understanding letters from Endocrinologists
Sweetpea1157 in Thyroid UK2 months agoPOPULAR
Hi everyone , yes , it's the pain in the butt again , hope you are all ok .☺☺
I have now had written results from both Endo's that I have see...
Molly2017 in CLL Support Association2 years agoPOPULAR
I'm overwhelmed by the CLL diagnosis. Had a gallbladder attack that led to the discovery. It's been less than 2 weeks and right now I'm focu...
Me1953 in British Lung Foundation3 years agoPOPULAR
Hi everyone need some advice if someone is stage 3 severe on inhalers and nebuliser twice a day does this mean end stage is close,got a bit ...
Feel like I've had enough.
miss_boo in Fibromyalgia Action UK5 years agoPOPULAR
I really hate moaning, feeling sorry for myself but tonight I've really really had enough.
It's 4:39am, no sleep yet again. I've got trigem...
Help needed: health, biopsy and lab contradict
martinap in PBC Foundation4 years ago
Help lab, health and biopsy overlapping,
Dear all in 2013 I was diagnosed PBC based on positive AMA (possibly overlap with scleroderma and/ot...
O Dear....... There's hardly any blogs lately , what's happened !
Hidden in British Lung Foundation6 years agoPOPULAR
Where are you!
Advice on scar please.
Heather1957 in British Heart Foundation2 years agoPOPULAR
I had my bypass operation 3 weeks ago last Friday and consider myself very lucky in that I didn't have a lot of pain, discomfort yes, pain, ...
Medicine Cabinet...? Nope...!
Hidden in British Lung Foundation4 years agoPOPULAR
Mother had an extensive medical cabinet filled with stuff which was used on a regular basis...there was Friars Balsam to be added to hot wat...
Loneliness and isolation
Garden987 in MPN Voicea year agoPOPULAR
Hi everyone. I posted just now but it doesn't seem to have been transmitted. Won't go on about it again but just wanted to off load. Ho...
my son who is 11 months has just been diagnosed help!
slightyconfused in Thyroid UK9 years ago
hi my son who is only 11 months old has been diagnosed with a thyroid problem he weighs quite a bit although eats healthly and has constant ...
bluepettals2 in Thyroid UKa year agoPOPULAR
since getting very unwell in 2010- and having private postive lyme test from germany--ignored hey ho!-- and then an nhs one, which interpr...
New and confused
Cardigan167 in Pernicious Anaemia Societya year ago
Hello everyone, I’ve been reading lots of posts here and found much of help, many thanks. I have recently had blood tests to discover why I ...
Ferritin and thyroid meds
RobinAnn in Thyroid UK2 years agoPOPULAR
Ive posted several times recently. My weight just keeps climbing and increased t3 isn't helping. My recent ft3 was 4.3 (2.5-4.2). So taking...
Newbie. Positive GCA. Biopsy.
Hidden in PMRGCAuk2 years ago
Hi All. I'm a male aged 69. Had a positive biopsy result on 30th May at Q.E. Hospital Birmingham. Very good in their treatment diagnosis &...
I think that yesturday was the end of the line regarding my anti TNF appeal....but there was more news to come!
Mel_ in NRAS7 years agoPOPULAR
Long awaited appointment was yesterday morning to get the results of my MRI scans to find out if the pain is down to inflammation and if so ...
Does Anyone else also have Lupus Panniculitis?
teecayc in LUPUS UK7 years ago
I've asked this before but there's a lot more people in the group now, maybe able to answer..
Are there any specific scans for GCA?
Mike1964 in PMRGCAuk10 months agoPOPULAR
Been having issues with ears, eyes and jaw again for last 6-7 weeks. Have Atypical PMR since Feb 2018. I spoke to a Rheumy last Friday...
GPs have invalidated my travel insurance - now need drs abroad! Anyone know ways around it?
Melba1 in LUPUS UK7 months agoPOPULAR
Hello, wondered if anyone has had anything similar or has any advice. Went to GPs day due to fly on holiday to Middle East as felt I had a U...
Quick Question: Private v NHS Consultation / Treatment. How does this work in practise...or does it?
Foggyme in LUPUS UK6 months agoPOPULAR
Further to my last post about an appaling consultation with current rheumatologist I'm trying to get my dizzy head around the above is...
Dumped my GP today
Kilgh in IBS Network4 months agoPOPULAR
This is a longish story but an educational one.
Last year my GP I had been seeing for 20 years retired and his practice was bought by another...
Really need a rant...
Mistee in Pain Concern3 years agoPOPULAR
It's nearly 5am and I'm lying here in bed next to my husband who has been snoring happily for hours (oh how I'd love to punch him right now!...
Backtracking to see if old symptoms were beginning of PMR...
Zacsmimi in PMRGCAuk3 years agoPOPULAR
I have spent hours reading links and references since I found this site. I read Kate's book cover to cover today. I'm beginning to think tha...
Saliva cortisol results and cushings concern
Jingyd35 in Thyroid UK2 years agoPOPULAR
Sorry to post my results again but having anxiety I am a little concerned. My results from Genova gave advice that my results could be linke...
rubyred777 in British Lung Foundation4 years agoPOPULAR
It's pouring down rain here and windy Hows the weather where you are?
I'm planning on getting the flu shot soon.
Just wondered wh...
Hepatitis Result, I don't know what's going on.
Jjjo1 in British Liver Trust4 years agoPOPULAR
Okay. I did the Hep B and C test last month and I phoned the GP for the result today, I was told the GP will ring me but then the receptioni...
Persistent throat problems
smellie in LUPUS UK4 years ago
Hi everyone. I'm a new member so this is my first post. I,ve been diagnosed with undifferentiated connective tissue disease but on my notes...
I have heard you can have after-effects if you have contracted meningitis. Please can you give me some information?
Hidden in Meningitis Now8 years ago
Start a Community