Spasms

[Grapes12]

Hello,

Do any of you have spasms while your are walking and if so how do you manage them? Also do you have difficulty moving your limbs sometimes? I have ataxia on top which complicates things.

Thanks

[crazycatlady55]

I used to have that problem unit I was prescribed Sinemet Plus. Within a few weeks the spasms stopped. I know Sinemet does not work for everyone but has made an amazing difference to my life.

[Grapes12 in reply to crazycatlady55]

Ok great thank you for that. I am going to ask my GP.

[Hidden]

Do I ever.. n usually they hurt so bad I start cracking up laughing so I don't cry.Plus I also have a hard time talking because I'm laughing n trying to focus on not falling on my face,lol Gotta love Dystonia !!

[Grapes12 in reply to Hidden]

It's horrible!!

[Hidden in reply to Grapes12]

It is horrible, but for me medical marijuana REALLY helps my Dystonia.

[Tiedye]

Hi, grapes I also have ataxia with my dystonia’s sinement was a life saver for me I still have to use a cane and wheelchair for long distances but before the sinement/car dopa I was a flailing, twitchy jerky mess. And medical marijuana is extremely helpful with severe spasms for me anyway. Good luck to ya, hope it helps you. Keep us updated!

[AlecB625]

Hi,

My spasms are presently most severe if I walk, even just a step. What kind of dystonia do you have?