Oral/Mandibular dystonia: Is there anyone... - Dystonia Society

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Oral/Mandibular dystonia

saarima profile image
5 Replies

Is there anyone here who has oral dystonia caused by a tooth injury (dentist or somehow else)? What kind of symptoms do you have?

I think I have four teeth in my mouth (one tooth in every "corner" , 4th teeth) which are infected. Then sometimes my tongue goes up ja jaws are very swollen and painful all the time. One tooth was broken and that was the start of this dystonia :/...

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saarima profile image
saarima
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5 Replies
Ginger1 profile image
Ginger1

Hi saarima

I have cervical dystonia so don't know if I can help but ive recently discovered TMJ. There is an orthotic that fits in your mouth that may control symptoms.

Take a look at you tube. It may give you some insight into your problems?

Good luck 🤗

Angelic65 profile image
Angelic65 in reply to Ginger1

Hi I've had cervical dystonia with tremors since I was 27 I'm 52 now. Does anyone know if they do TMJ in the North East of England or at least in this country all utube videos seem to be American 💘🌈💘🌈

Ginger1 profile image
Ginger1 in reply to Angelic65

Hi. I checked with my neurologist last year & he told me that TMJ isn't recognised as a treatment. I guess he means in this country.

jojodys profile image
jojodys in reply to Ginger1

I agree with you. there's no tmj nor the connection regarding dentist's/GPs /guiding an individual and I strongly wish it was even more awareness of this, as it goes hand in hand with dystonia. really needs addressing by, NHS or NICE

jojodys profile image
jojodys

Hi, if you are on Facebook there is a very helpful group on there that might be useful and give you help and advice. the group is called,

tmj and the connection

Hope you find this useful.

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