Type one diabetic : Hi I'm marnie and I... - Diabetes Research...

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Type one diabetic

Marnie83
Marnie83

Hi I'm marnie and I've had diabetes for nearly 27 years since the age of 6 I took up to 8 injections a day but for the past two years I've been on an insulin pump I have two kids with illnesses my daughter who's 2 has laryngomalacia and had an operation last year to help her breathing my son is 6 and 3 days ago was diagnosed with lupus I have other health problems mostly to do with diabetes

14 Replies
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Hi Marnie, Kev here, father to a 15yo who has Type 1, also on an insulin pump and often using DexcomG4 CGM....and Nightscout

Marnie83
Marnie83 in reply to oceantragic

Hi key I'm not sure what this is? I hope your son is well

oceantragic
oceantragic in reply to Marnie83

Hi Marnie, my daughter is doing pretty well thanks. Which bit would you like me to explain?

Marnie83
Marnie83 in reply to oceantragic

Hi kev thw DexComg4 and nightscout? I'm confused what that is sorry

oceantragic
oceantragic in reply to Marnie83

Dexcom G4 is a CGM, a continuous glucose monitor which gives a reading of her glucose level every 5 minutes.

The Nightscout bit takes her CGM reading and send it to The Cloud so I can get alarms on my watch if she is going hypo or hyper throughout the night. It makes her sleep easier knowing she's safe

Marnie83
Marnie83 in reply to oceantragic

Yeah I was told when I went on the pump I could pay to have this into my pump but they didn't say what it was called that's a great idea I wish they had this when I was diagnosed at age 6 as I didn't get much sleep get you get this from the nhs?

oceantragic
oceantragic in reply to Marnie83

We self fund our cgm, unlike some others we don't get it from the NHS

Activity2004
Activity2004Administrator in reply to oceantragic

How long has your daughter been using the DEXCOM G4 system? I've had my G4 for almost 7 months. I had to get a new transmitter sent by DEXCOM. It was time to replace the old one.

She's used it since June 2014, not all the time as we can't afford that, even though we get at least 2 or 3 weeks out of a sensor. Or last transmitter lasted 14 months.

We've been using Nightscout with a home built xDrip since January 2015

Activity2004
Activity2004Administrator in reply to oceantragic

What is a home built x drip?

Hopefully this blog article of mine might explain it bit.ly/xdripkev

Activity2004
Activity2004Administrator in reply to oceantragic

I'm going to check the website very soon. Thank you for posting it.

Hi Marnie83, do you keep your carbohydrate intake to about 40 grammes per meal diabetes.org.uk/documents/c... ?

Hello Marnie83. Well done for your 27 years ! I am a nutter with numbers & I own a 1983 car. Astra GTE, from new. I like my insulin pump too.

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