Which of these aspects of being diabe... - Diabetes Research...
Which of these aspects of being diabetic bother you? Please say what Other is.
Activity2004Administrator41 VotersOther is the fact I have type1 diabetes which is an autoimmune disease. That my Endocrinologist only focuses on that and seems to lack interest/knowledge on the affects of other autoimmune disease may be affecting my health and my diabetes.
Have you thought of finding a new Endocrinologist?
Yes I have but I have no idea where to start. I want to make sure that I am making a good move. I live in Uxbridge Middlesex. Any advice would be gratefully received.
Other is, taking medication and injections (which I still have a phobia of) for the rest of my life and sometimes confusing symptoms of a hypo with other issues like blood pressure, heart, thyroid or even fibro flares.
Having phobias of certain medications and injections is a normal reaction. I’m a type 1 and I can’t have a Nurse or Doctor do a flu shot on me. I can handle a shot only if I do it myself.😀
Other is the effects on another medical condition I live with the effects of treatment of - also a type 1
I am not very sure what kind of diet and workout to have. My 2 type diabetes is not my only issue. I have also fatty liver (non-alcoholic), high cholesterol, high blood pressure and, from February 2016, retina detachment (2 detachments so far) what make me to be very balanced about my diet and workout. Regarding the diet, I try to have a as low carb as possible diet.
Please check out the Living with Fatty Liver and NASH group on HU. You can click on the follow button and post/comment anytime. Go to: healthunlocked.com/fatty-li...
Hope this helps. 
My greatest fear is the loss of eyesight. That would be the worst thing ever.
Also sick and tired of the side effects of medication. I am trying desperately to loose weight, but one of the medications has the side effect of putting weight on.
Being hypo is my greatest problem with being Type 1. Always below 80 several times during the day. Even with the DEXCOM to momitor can fall so fast the alarms have a tough time keeping up. Can look one moment 136 and next 50 and dropping like a rocket. Some times I can tell I get the shakes or very mean, not my normal self. End up crawling to the refrigator for OJ. Lucky I'm most often home. On walks always have my glucose tabs handy and phone i-phone for 911. Good topic Activity have a super day!
Thank you, cherv ! There will be more new topics for polls coming in a few weeks. Since I had been away for a few days, the polls haven't been posted as much. Glad to know that this one is helpful.
Other: living with the insulin pump. I didn't dislike the Animas - then when that "lease" ran out (the NHS funding was for four years, or the warranty was, something like that...) I had the Omnipod and it simply didn't work for me, so the only other option was the Medtronic. I thought, may as well try the one I haven't seen yet. It's virtually the same as the Animas with slight differences, eg user-unfriendly software meaning lots of button-presses for the simplest things, and the device is weighted at the wrong end, so that with the belt clip it pulls itself out of pockets instead of into them. eg pyjama shirt, jeans while driving! And the lid (of the insulin cartridge) sticks into me, whereas the Animas was more flush with the top of the pump. Never mind, another four years and I'll get to choose the Animas again. 
My other "Other": I absorb insulin far too slowly, so even with the pump my sugars spike after food. This has been happening for years and ruined my control. At my last clinic visit, I saw a new registrar who told me a method called "superbolus" - suspend the basal dose for two hours, and add that two-hours amount to the bolus. This works, and if it hadn't worked there is another make of insulin that works even faster (I've been on Humalog since starting on my first pump in 2010).
It works, and I'm so frustrated that no one mentioned this before. In the meantime I've had laser surgery twice and now have retinopathy getting worse in my macula, where as far as I know, it can't be treated - or treatment will leave my sight impaired in the central field of vision. The only complication that scares me is my sight, because I can't bear the thought of not driving. Frustrated that my care has been patchy and chaotic for the last few years, when perhaps if I'd seen a knowledgeable doctor often enough, instead of just nurses and not often enough (all their fault, not mine) - perhaps I could have avoided this.
I suppose I have one more "Other". The patronising way some (not all) health professionals talk to you. I've had type 1 since I was six - 44 years. I've always tested multiple times per day and have been conscientious except for a few years when I was a student and didn't care. Yet they repeat all the reasons why it's important to be careful. as if I was one of those ignorant patients in denial about their own part of the responsibility. As if I haven't been worrying about it and struggling to get it under control for decades. I love when they know more than I do (not always the case!) and tell me about it, but I hate when they state the obvious and imply that if I could only be bothered to try, my future wouldn't be at risk.
Never had a problem with friends, family or colleagues' opinions or misconceptions - never had a problem having babies, travelling including solo, backpacking, a charity trek through the Jordan Desert, mountain-walking, all the rest of it... very often had problems communicating with my diabetes team! Although I've also known some brilliant professionals. But like so much, it's in our hands to take charge and do our own research and observations.
I’m sorry to hear that your Nurse/Doctor tends to be patronizing. I’ve known some doctors to be that way out here (USA), as well. I don’t like it and I look for new doctors when this happens. Has your doctor suggested that you use a CGM?
No, a friend has told me I should have the other kind... I forget what it's called, a stick-on "pod" which continuously monitors with a remote control device that gives her an instant reading - but it isn't funded by my local authority (county). Some do, some don't; but it hit the news not long ago which should help the campaign to even this out.
Or maybe that is CGM? I assumed you meant the kind that my pump is enabled for - that isn't funded in the UK at all (as far as I know).
Even if I believed in paying privately - which I don't since our taxes pay for the NHS - I'm on a low income and it's out of the question.
I should take back some of that rant about patronising doctors, I haven't found it as bad in recent years, don't know if that's because I'm in a different area or whether training has improved. What gets my goat most is that my control could have been good years ago, if someone had mentioned this superbolus technique, and now my eyes are going. I imagine the superbolus isn't a brand new idea. In fact I'm kicking myself for not having thought of it myself, it was sort of in the edges of my mind, kept seeing it out of the corner of my eye if you know what I mean! One of those "so simple, it's ingenious" things.
I will send you a quick private message and we can talk about this. Are you okay with a note sent?
Oh of course! but just warning you, I'm about to go away for a few days and I don't expect to have time to reply until after that. So that you don't think I'm ignoring your PM.
Okay. You can take your time and get back to me when you're free. I will send you the note in a little while. Please keep an eye out for it very soon.
I just sent the note right now. I hope it helps!
