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anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
6 days ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
10 days ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
10 days ago
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Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
24 days ago
Advice please...
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
My fibro always gets worse in cold weather so bath soaks are my best friends at the moment, however, my boiler and heating stopped working few days ago, I called my housing association and they fixed the heaters, but for hot water I was told its not considered emergency as you can boil kettles of water
YMEPLEASE
in
Fibromyalgia Action UK
26 days ago
PBC and nails / gel polish / acrylic
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
hi everyone, just a quick question.. I wondered has anyone had any issues with having their nails done with gel polish. I had to switch from gel polish to acrylic as my nails kept having a reaction to the gel - and often developed a fungal infection. Once I switched to acrylic they were much better
Deemum
in
PBC Foundation
30 days ago
Shingles.
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
mlp3434
in
AF Association
1 month ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
1 month ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
2 months ago
Shingles pain
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
FinneUK
in
Thyroid UK
2 months ago
Is Low Dose Naltrexone (LDN) effective for Lyme disease?
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Shewulf
Administrator
in
LDN Research Trust
2 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
2 months ago
vaccinations
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Swanfull
in
NRAS
2 months ago
cellulitis
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
I’ve been diagnosed today with cellulitis - never had it before and knew nothing about it so it’s all been a bit of a shock. I’ve been prescribed Flucloxacillin but unfortunately, by the time I was discharged from Urgent Care, the hospital pharmacy was closed so I can’t start them until the morning
Janann25
in
PMRGCAuk
2 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
2 months ago
Shingles
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
heathermc
in
MPN Voice
2 months ago
Question on tapering
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?
Kiwisufferer2019
in
PMRGCAuk
3 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
3 months ago
Shingles Vaccine Update
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Otto11
in
NRAS
3 months ago
Dog bite not on my Xmas list
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
CoCoLuna11
in
CLL Support
3 months ago
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