I’m very angry, this is wrong!

I had a stroke after I had heart surgery by a world renowned cardio thoracic surgeon, who him and his team didn’t anticoagulate me after heart surgery. Now I can’t work, can’t think or walk “normally”. I am a very smart person with tons of knowledge but no where I can use it to put $$ in my pocket. This is BS, meanwhile they go on honky doory. Felt some satisfaction after lawyer and her expert physician found what I’ve always thought/knew. It doesn’t erase the fact that I am left handicapped now. Bull shi-!

Sorry I need to ventilate!

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Have they said why they wouldn't give you the drug?

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There were so many medical people on the team I think each thought the other one knew better then the next. I am diagnosed with lupus anticoagulant, this misnomer confuses a lot of people. Some think it is an anticoagulant, some think it means I am a bleed out patient, neither is correct I am a patient with a clotting tendency. I will,clot before I bleed! It is also known as “Hughes Syndrome”. I’ve been told it was a “judgement call” yeah judgement on what they thought it was. As I said BS.😖😖😖😖

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I thought they knew more in the US 😔

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So did I, ha!

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All to mayo or Cleveland 😃

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So sorry you got caught in that situation and they made a bad decision, which unfortunately you are the one stuck with the results of their mistake. That has got to be extremely frustrating. For me living with the effects of a bad medical decision is really quite enraging. Knowing what I could do before and what I can do know - worlds apart. The doctors get a free pass to continue making mistakes again. I guess that's why they call it practicing medicine. Anyway know I understand your pain and frustration. I wish you being able to find some quality of life going forward in spite of what has happened.

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Thank you

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Wittycjt. I think you have a perfect right to feel that way,afterall he goes on doing his job,whereas you cant.but you know the old adage="WHAT GOES AROUND COMES AROUND" you never know,

thousands of healthy people who have enjoyed good health sometimes have strokes etc.

My wife and I both suffered later,and never went with the intent to hurt anyone.

life has a way of sneaking up on you and giving you a whacking great kick up the kyber.

WWWWWWWWWWWWHHHHHHHHHHAAAAAAAAAAACKKKKKKKKKKKKKK ..

2STROKE.

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Wittycjt, I'm so sorry such a thing happened to you. My dear cousin had brain surgery 13 years ago. She was operated on at a prestigious teaching hospital in Baltimore. Surgery went well but a negligent nurse failed to administer heperin or to move her position so as to prevent clotting/stroke. Our family history is well known for having clotting disorders but doctors always discount that piece of information. She is unable to speak, walk. Has use of one finger which she uses to communicate using a letter board. We continue to be angry about what happened to her. But there is nothing else to be done.

I certainly hope someone will help you. I hope your lawyers are top notch. Here's hoping that your law suit will move forward quickly and you will have monetary, satisfactory resolution very soon.

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Patatie, Thank you, it sucks though, but really thank you. Shameful about your cousin, sorry this happened to her and your family. Cindy

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Witty cjt

I feel u 100%. It took years to get a diagnosis for me even when I had gotten to the point where I was either carastrofic or in the mist of a thrombotic storm. I was having multiple Tia’s & cva’s as well as some full blown strokes.(don’t losten to old school medicine TIA’s do leave damage in the brain it just doesn’t show up on an MRI or other forms of imaging). I find it quite funny that new studies show TIA’s do leave damage, if they wanted an answer to that question all they had to do was ask us!!

Anyway. I was going to specialist after specialist being told there was absolutely nothing wrong with me. They wouldn’t even consider the possibility that something was wrong! They assumed because I was 34 and looked fine that I was just looking for attention. Here are the two suggestions made buy so called Neurologists 1) said I should stop working because it was just to hard on my delicate female brain. Another neurologist said I had spastic leg syndrome. I ask if he felt that it incompesed my symptoms and he said no! I put my arms out and was like well what the h***. He was so sure he practically chased me out the door with his big fat Medical book showing me that it can cause Jerking of the arms to. Needles to say, and much to there dismay I did not schedule a followup appointment with either one. I went to dr after dr being told nothing wrong all the while I am having tia’s And strokes which they refuse to believe even with MRI imaging showing multiple lessons.

It still makes me so angry because all of these needles strokes have messed up my neurological system, my vision, my hearing, my memory, my balance, my ability to walk without falling down regularly, my ability to excercise. I can’t even jog now because my body can’t put all the motions together! I have lost my ability to work and to be the fiercely independent woman that I was. I went from a fit and strong 125lbs at just under 5’7” to 175lbs and no matter what I do I can’t seem to loose wait, probably due to the fact that I can’t do hardly anything physical. I have a hard time talking due to the inability to find my words, I live with chronic sever pain! It’s messed up my bladder and my bodies ability to maintain its proper temperature! All because nobody would take a moment to consider the possibility that something could be wrong with me! I can’t even sue them because by the time I got a diagnosis the 3 yr time limit was past! Yes there is still a lot of anger there.

Prior to all of this I ran two companies, worked 11 hours a day only off on Sunday. I was very athletic and thin and in good shape. I was strong, intelligent and could do anything. Now my kids (22 & 24) are afraid to leave me alone oh yeah I barely get to drive a car. I left both companies to work for myself and was traveling hundreds of miles a month by myself going to clients all around South eastern NM. There were times when I would be traveling and would feel a stroke or TIA coming on, pull over put car in park, have my tia wait till everything was working get back on the road.

I’m not a wuss, I’m not a cry baby I’m no lazy and I sure as heck didn’t need any attention. There blantant ignorance has destroyed my life and there is absolutely nothing I can do about it.

Finally diagnosed in July of 2009 with APS (all 3 clotting disorders plus and extra three and dna mutation all causing clots) I had a PFO and and ASD. Oh yeah I also had an untreated PE and my body closed off 2/3ds of my right lung to keep me alive and yes it hurt lick h*** for over a month but I didn’t miss an hour of either of my two jobs.

Well I feel better now that I have put it all out there. I’m extremely sorry for writing a short novel instead of a text sized communication. I really needed to vent and Wittycjt opened up and gave me the ability to just let it out!

Thank you for ur time. I’m sure some if not most of this message makes no sense but I wrote it basically just because I needed to.

Soul Rebel

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It sucks. I too spent the majority of my life working my butt off to be left like this. Now even if they find a cure the damage has been done. I feel you our stories are all to similar, so sorry. It sucks!

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Yes it does suck! I wanted to sue them not for money, though I need money since they took my ability to work away. I just want them to think. When the next woman walks in their office I want them to stop and consider the possibility that something really could be wrong with this woman. It seems men get diagnosed faster, not always but as a general rule, at least here n US. I started having strokes that where undeniable I’m 2006 and I was ignored for three yrs! It’s One messed up Healthcare system we have here in the use. So few drs actually care. The rest care as long as ur insurance pays and even then they want to treat u but not actually diagnose a real problem they want to treat u for some POS diagnosis that doesn’t even begin to cover ur symptoms! Treat n street! Well more half a**** treat and Street but be sure to schedule a follow up! They are always so amazed that I don’t want a follow up. Dr is no better then my mechanic or accountant, they just work on different things. Drs think they r gods. An u know what they say “the difference btwn god and a doctor is god doesn’t think he is a doctor!

Drs don’t intimidate me. That’s not possible! My brain doesn’t work that way Just because I’m not a dr doesn’t mean I couldn’t to have been one! I had always wanted to go into diagnostics, I really wish I had! My bad! Lol

Have a good day! Thank u for replying!

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You too be well my fri n

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SoulRebel-APS and Wittycjt

Debts are repaid sometimes without money.Ho.ho.ho.

I think, if god got ill ,we'd all be in trouble.

Hope the DR's get heat rashes where they're going.

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