Treatments change and develop all the time and it can be hard to keep up with them all, and of course not everything works or is appropriate for all. So it's vital that we share experiences (postive and negative) so that we can be armed with the right information to enable us to ask the right questions.
So please share:
Anything that has worked dramatically to improve quality of life for your youngster.
Anything that caused a really bad reaction.
Examples of good practice that have made life easier for you or the person you care for.
Examples of things which need to be avoided as they added to the stress for you or the person you care for.