Down's Heart Group has over 25 years experience relating to heart conditions associated with Down's Syndrome in the UK and links in many overseas...Read more
I think I may have had a heart attack?
Hidden10 months ago
So, last night i was awoken by a horrible pain in my stomach, i thought maybe i had slept on it wrong, so i just tried to ignore it and go b...
Hello, Last few days I have been dealig with some kind of flutterig in chest as if my heart does a hard beat or flutters. It is like it push
nansy_nnsa year ago
Hello, Last few days I have been dealig with some kind of flutterig in chest as if my heart does a hard beat or flutters. It is like it push...
Heart Palpitations/Left arm and Chest pain
EggFriedRice2 years ago
I have had this problem since I was little (about 8ish years old) and have had a 24 hour heart monitor in the past which showed no irre...
Happy 21st Birthday Callum
devondumpling2 years ago
Hi, I found myself this morning looking on the net with a need to connect to others who share my experience.
Callum was born on the 5th June...
Hi All, Please could you take a look at this, it is i very important to a lot of people and could be the same for youself. Thanks you
DanielLIpzith2 years ago
Please forward this on to as many people, places, websites, support groups, as possible. Anyone you think will be interested
Be the first to reply
Looking for families with a member with Down's Syndrome and sick sinus syndrome and pacemaker, contact email@example.com
SarahSmith3 years ago
I have been asked by a mum to help her find other families that she can be in contact with regarding Down's Syndrome and sick sinus and pace...
World Down Syndrome Day - any suggestions
Hidden4 years ago
Has anyone got any suggestions of what we can get up to on World Down Syndrome Day? I am going to be talking with the organising team in th...
Seb, 4, is the first child with Down's Syndrome to model for Marks & Spencer
Director4 years ago
Check out this link:
Another company helping spread acceptance and inclusion, little by little we are win...
Designation of services for adults with congenital heart disease (ACHD)
Partly as a result of the review of peadiatric heart services, the process to improve future NHS services for adults with congenital heart d...
Safe and Sustainable - The future of children’s heart services
On July 4th 2012 a Joint Committee of Primary Care Trusts met in public to decide the future configuration of children’s congenital heart se...
My daughter aged 23 with DS and an AV canal defect (repaired at 9 months old) has now moved from cardiac child services into adult provision
Mammy4 years ago
my question is this - because of improvements in heart surgery our children with DS and heart defects are living longer (thank goodness) I h...
Where to Start?
MumToDSJamie4 years ago
Ok So I figure before i go into Much detail about my Son, Maybe The overall Story Would be a good place to start so here it is!
How do we ensure we are getting the best medical treatment for our youngsters?
Treatments change and develop all the time and it can be hard to keep up with them all, and of course not everything works or is appropriate...
Sources of Information about Down's Syndrome
Many of you are probably aware of NHS Choices as a resource for information about Down's Syndrome, but if you aren’t you can find a basic ov...
Antenatal diagnosis - can you assist?
In light of the indications that ante-natal blood tests to detect Down's Syndrome will be available in the UK in the near future, we are loo...
senaz4 years ago
Just wanted to know if anyone has had a child that was bullied at school and who was affected by it. was the matter taken further legally an...
nickenb4 years ago
My daughter who has Down syndrome is 15 and has had regular thyroid checks throughout her life, firstly via the NHS protocol for our area an...
So where are you from? How old is your child/grandchild/sibling etc?What experience have you had with heart surgery etc?
Why Down's Heart Group?
About 47% of babies born with Down's Syndrome also have congenital heart conditions, which means nearly every day in the UK one family is fa...
If you care for someone over the age of 16 who has Down's Syndrome? Are they getting their Annual GP checkup and do you feel it is of benefit?
0300 102 1644
We value any support you can give for our work
Start a Community