gh intravenous immunoglobulin
jwb43 in PMRGCAuk2 years ago
Has anyone heard of using intravenous immunoglobulin treatments for PMR? They say it's a great treatment for autoimmune conditions.
Statins and Myositis
SDRM in Myositis UK2 years ago
Does anyone have any experience of muscle pain caused by statin medications?
I have been taking a variety of statins for (I think) around 20 ...
Skid in LUPUS UK4 years ago
Hi all, wondering if anyone else has this question , my diagnoses ( as stated in letter to gp I have a copy sent to me) says I have. SLE , ...
New here 🙋🏼♀️
Penelope-Mary in Myositis UK9 months ago
Hello I have found this forum through the lupus UK forum and thank you to whisperit for mentioning it!
I have had lupus for near...
Book - Life is Bliss
Jo-Goode in Myositis UK2 years ago
Debbie Bliss has never been a shrinking violet. She has fought all her life-not just for herself, but for othe...
Be the first to reply
Hello I’m new
VictoriaVic in Myositis UKa year ago
Hi I’m getting tests done at the minute by GP for a range of autoimmune and muscle connective disease. However I’m convinced I have dermatom...
Dermatomyotisis Treatment Options
Littlegem22 in Myositis UKa year ago
Hi there. I am new on here. I am am a 36 year old female.I was diagnosed with dermatomyositis about 10 years ago but my CK levels were not ...
New here, still waiting for treatment
helipops in Myositis UK7 months ago
I’ve been back and forth to hospital since August presenting with muscle wasting. Have seen rheumatology, neurology and oncology. Latest thi...
Chintzy in CLL Support Association2 years ago
Sores all over body, side effect from Imbruvica, anyone any treatments that work to ease or get rid off , greatly appreciate all feed back .
There are many Types of Autoimmune.
Papeena in Scleroderma & Raynaud's UK (SRUK)8 years ago
Autoimmune processes can affect the body in various ways. Autoimmunity can result in the slow destruction of specific types of cells, tissue...
Yes, it's possible to have normal lab results and have Myositis...
A positive ANA
stillwaiting in LUPUS UK6 years ago
Hello - this is my first post here.
I was diagnosed with Hughes Syndrome in April. The blood tests also indicated a positive ANA. My Consulta...
Kgg1960 in Pernicious Anaemia Society2 years ago
I was diagnosed with lupus, dermatomyositis, connective tissue disorder, ra, hypothyroidism, and I am about at the end of my rope.
I am on 1...
Boggle99 in Couch to 5K2 months ago
I am waiting to see rheumatology for a diagnosis but the above is looking likely (potentially more likely to be myositis) this was the kick ...
Eliotf in Myositis UKa year ago
I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, bl...
Anyone been diagnosed with polymycotis
yorkshiregirl44 in LUPUS UK5 years ago
I realise iv asked this question before but because its rare i didnt have any replies.I thought at different times someone with this conditi...
kazmac45 in LUPUS UK2 years agoPOPULAR
Anyone have any thoughts on this rash?
It's on my arm, but also on my side and my thigh, although a bit less severe.
The itch is driving me ma...
Tulipano in LUPUS UK2 years ago
What to stay to people who keep saying that I just need to exercise more? I suffer with lupus sle and polymyositis 😭
Leianne7 in My Ovacome2 years ago
Hi guys this isn't ovarian related but just wanted to see if anyone else know much about osteoporosis. Had a dexa scan done a few weeks ago ...
cabledeck in AF Association3 years ago
I joined this group in the early hours of the morning a week ago. I was looking for information on just how long you might leave an...
Sudden skin rash and splitting fingers
Jasmine84 in Scleroderma & Raynaud's UK (SRUK)3 months ago
What is this? I do not believe it is eczema!!!! I was 100% healthy and fine until a miscarriage that lead to a procedure called a \"DNC\" wh...
Lumps behind ear
educk in LUPUS UK3 years ago
Hi all, I have 3 little lumps just behind my ear which I noticed in February. They've grown in size and a couple have merged together, and t...
Skid in LUPUS UK3 years ago
Hi all has anyone here experienced Rituximab infusions ? I have SLE , Dermatomyositis, Sjorgren's and a string of other ailments . I had my ...
Latest Advances In Connective Tissue Disorders: Abstract, Basic Science and Conclusion
APsnotFab in Sticky Blood-Hughes Syndrome Support6 years ago
Here is the first Abstract section together with the Basic Science section and the Conclusion. Together with all the different sections on S...
Possible fluid retention
educk in LUPUS UK4 years ago
Hi, I'm 18 and have had lupus overlapped with dermatomyositis for 6 years. My usual symptoms are joint and muscle pain, fatigue, and nausea ...
Wolf1 in LUPUS UK10 months ago
I went for my first mammogram last Thursday. I’ve been recalled Togo to hospital tomorrow!! I’m obviously concerned. I have lupus, with lu...
Raynauds....The begginiing stage of oh so much more to come!
Toniraquel in Scleroderma & Raynaud's UK (SRUK)7 years ago
Hi everyone- I have been a member for sometime, but have just hung back and read everyone's post rather than posting on my own. I decided i...
Does anyone take prednisone daily? How many milligrams?
Dermatray15 in British Lung Foundation16 days ago
I have Dermatomyositis and lung scarring. I take cellcept,plaquenil and prednisone. I am on a trial basis of prednisone. Does anyone take pr...
Does anyone know if a 16yr old girl may have fibromyalgia?
mystique in Fibromyalgia Action UK7 years ago
Hi all, just wondering as my daughter suffered from dermatomyositis - currently in remission. She gets muscle weakness n she seems to have ...
New looking for advice pls
MissFG in Myositis UK2 years ago
Hi I'm new on here but on Thyroid UK for Hashimotos & Lupus UK as I'm under Rheumatology for a positive ANA and connective tissue disease.
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