In reply to all about my daughter xxxx
mystique in Fibromyalgia Action UK7 years ago
Hiya I would just like to say a very big thankyou to all who commented on my post about my daughter n(dermatomyositis) I have finally got h...
Does anyone have a polymyositis diagnois?
yorkshiregirl44 in Thyroid UK5 years ago
Mebros in LUPUS UK2 years ago
I have a speckled pattern of 250 what does this mean is this good or bad
Dumpypug in LUPUS UK6 years ago
I'm new to this, cant believe ive only just found it!
I was wondering if anyone has SLE with Dermatomyositis overlap.
Butterfly54 in Behçet's UK3 years ago
Can I ask if any of you have Sjogrens syndrome along with Brechets.I`masking lots of questions as I see Doctor on Thursday and I`m trying to...
Linorandthewolf in Myositis UK2 years ago
Maybe you guys can help me out, I've already been diagnosed with lupus but for the past little while I've noticed gradual weakness in my upp...
kimberleyi88 in LUPUS UK4 years ago
Please see photo of rash on hand. This comes and goes often. Please let me know what you think.
Queencara78 in LUPUS UK4 years ago
can anyone tell me if they also experienced these types of rashes sometimes with swelling that would appear on and off daily, and if this is...
Myositis UK AGM & Conference
Jo-Goode in Myositis UK2 years ago
The AGM and Conference 2017 will be on Sunday 2nd July at the Oxford Belfry Hotel, Milton Common, near Thame, Oxford. The format for the day...
CK readings elevated
dogtired in LUPUS UK2 years ago
Anyone here been dx with myosits?
Well yesterday i had to stand up and be counted and rest up all afternoon and watch tv
minka in LUPUS UK3 years ago
well yesterday i whent to gym for a swim and paddle then just whent to pub for dinner I dont drink alcohol
well shandy dont like the stuff.
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Does anyone have a child/children with fibromyalgia? My daughter is 13 and is looking for people around her age with fibromyalgia?
Deniseann27 in Fibromyalgia Action UK7 years ago
Paula's Broken Marathon
Please sponsor me to support my effort and/or in lieu of a birthday gift.
I am fast approaching the age where a mid-life crisis is inevitable...
Blood test results- any advice please?
helipops in Thyroid UK5 months ago
I’ve been told I have thyroiditis and blood tests show thyroid antibodies of 422ku/l (0-34)
I was under investigation for muscle wasting and...
Fundraising for Myositis UK - Race at your Pace 100 mile walk in throughout May challenge.
SuzellaBuhlmann in Myositis UK2 years ago
Hiya, I am so pleased to say that I have completed my challenge of 100 miles within the month of May 😀 I am not stopping there as i will se...
Myositis clinic in South East
Jan22 in Myositis UKa year ago
I am new here and was initially diagnosed with D M three years ago. My diagnosis after lots of tests is now A N C A Vasculitis with Myositi...
Not sure what area symptoms lie
yorkshiregirl44 in LUPUS UK5 years ago
Been having problems with my muscles at least it feel like my muscles. Very weak painful muscles in fron tof arm pit that connect to breast ...
Does anyone have Dermatomyosistis?
Derma in NRAS5 months ago
Hi, I joined this group because I saw people talking alot about inflammation, pain and Methotrexate. I didn't know it was a group topic more...
Im new xx
Lisawill in Myositis UKa year ago
Hi I have suffered from this rash plus ongoing tiredness and muscle aches for about 7 years now, sometimes without any symptoms at all but s...
Venetoclax and mouth sores
Eliotf in CLL Support Association7 months ago
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came
back with NO CLL/SLL
I had failed FCR and went on to Venetoclax & ...
Littlebubba in Endometriosis UK5 years ago
Hi all. I was diagnosed two years ago with endo and had my lap on dec 2013 to remove the cyst. I since fell pregnant and had a beautiful boy...
What does a positive anti nuclear anti bodies test mean??
ThyroidObsessed in Thyroid UK5 months ago
Anti nuclear anti bodies was tested along side a lot of other test related to the thyroid, although everything came back normal the anti nuc...
Not the lupus!
Dessaboo in LUPUS UKa year ago
Well... just about a year after I was convinced I had \"the lupus\" I have been diagnosed with dermatomyositis.
I feel *happy* that there is...
michelle38 in My Ovacome2 years ago
I have been cancer free for 2 years. 6 weeks ago I found a small lump in my neck and now have itchy scalp and under arms and have lost a cou...
\"The one thing I wish I had been told when I was first diagnosed...\"
jan-ran in Living with Fatty Liver and NASH2 years ago
....was that my fatty liver was not inevitably going to cause future problems, or get worse over time, developing into a more serious liver ...
Healing Raynaud's with Niacin
beaglab in Scleroderma & Raynaud's UK (SRUK)2 years ago
I think that everyone who has Raynaud's will benefit from taking Niacin, 500 milligrams, Twin Labs brand or other quality Niacin. It is avai...
Statins and Myositis
SDRM in Myositis UK2 years ago
Does anyone have any experience of muscle pain caused by statin medications?
I have been taking a variety of statins for (I think) around 20 ...
gh intravenous immunoglobulin
jwb43 in PMRGCAuk2 years ago
Has anyone heard of using intravenous immunoglobulin treatments for PMR? They say it's a great treatment for autoimmune conditions.
Skid in LUPUS UK4 years ago
Hi all, wondering if anyone else has this question , my diagnoses ( as stated in letter to gp I have a copy sent to me) says I have. SLE , ...
New here 🙋🏼♀️
Penelope-Mary in Myositis UK7 months ago
Hello I have found this forum through the lupus UK forum and thank you to whisperit for mentioning it!
I have had lupus for near...
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