Which overlap conditions do you experience alongside your lupus?
Paul_Howard in LUPUS UK4 years agoPOPULAR
Bajalala in LUPUS UK2 years agoPOPULAR
Here's a question, is it true that a malar rash should not come and go but rather stays on your face for a certain length of time; weeks? I ...
April's Blog (Part 1) - Steve's experiences of being a male with lupus
Paul_Howard in LUPUS UK4 years ago
For this month's blog we continue to share experiences from men living with lupus. This month's first article comes from Steve. Thank you to...
ramada in LUPUS UK3 years agoPOPULAR
Hi there,I suffer with sle lupus and I'm experiencing problems where I'm finding hard to swallow my medication.my throat feels lumpy n every...
hydroxychloroquine & leg pain
Dani83 in LUPUS UK3 years agoPOPULAR
Hi all, been on hydroxychloroquine for nearly 3 weeks. Ive got pain on my left thigh. Ive not done anything to my leg that i know of. Can th...
A bit of advice needed please
Rachel1974 in My Ovacome2 years agoPOPULAR
I apologise if I have posted this incorrectly in the wrong place.
I am hoping for some advice regarding some ongoing issues.
SLE with Myosotis
MissFG in LUPUS UK2 years ago
I've got a copy of my letter from my Rheumy to my GP which confirms SLE and a weak positive for myosotis. Is it normal to have both?
Fibromyalgia and thyroid, I'm new to this site
Carolha in Thyroid UK5 years agoPOPULAR
Hello, I have been a member of the lupus site for a few months now but this week I was diagnosed with fibromyalgia not lupus. I was advised...
gurjo in Early CKD Support3 months agoPOPULAR
I have been noticing sediment/white stuff in my urine for about 6 weeks now. I had a blood test in September testing for kidney function, wh...
The ANA test
RubyTuesday2 in LUPUS UK2 years ago
Lab Tests Online have a very good section on ANA testing and how the results may be used.
Thought this might help those with indefinite diagn...
Does anyone else have Shrinking Lung Syndrome as a complication of their SLE Lupus
Hidden in LUPUS UK6 years ago
Does anyone out there sugger from a rare complication of SLE Lupus called Shrinkng Lung Syndrome. I have been diagnosed with this. My dia...
Anyone else struggling to swallow?
avtargill31 in Scleroderma & Raynaud's UK (SRUK)9 months agoPOPULAR
Hi folks, for the past few weeks I have been struggling to swallow my food without help of a liquid drink, weather it be water, milk etc. We...
Muscle atrophy - 4 years and no diagnosis
Whitey11 in Thyroid UK10 days agoPOPULAR
I’m writing on here on behalf of my mum as we currently have reached a dead end in the hope of a diagnosis and treatment.
DM and pain
Hidden in Myositis UK2 years ago
I'd like to say, firstly, thanks for starting this site. I can't stand Facebook, although I know it has an excellent support group on there....
Feel very demoralised
tjperfick in LUPUS UK4 years ago
Apologies in advance for the long and rambling post.
Haven't been feeling great lately and had an appt today at the hospital.
For me one of m...
WHAT LED TO YOUR LUPUS DIAGNOSIS?
tmar4949 in LUPUS UK6 months ago
Hello to all! I'm new to this community. I first posted in the PMR forums, and was told I might find an answer if I post here in the Lupus f...
Jan101 in LUPUS UK2 years ago
I have been reading how so many off you are on predisolone long term. My doctor and the specialist won't let me have them on a long term b...
How did you first hear about lupus?
Paul_Howard in LUPUS UK10 months agoPOPULAR
Hidden in NRAS4 years agoPOPULAR
Hello, my name is Sue and I live in Canada. I was diagnoised with RA last November. My doctor started me on hydroxychloroquine right away. I...
RA & Glenn Frey: more food for thought
Barnclown in LUPUS UK3 years agoPOPULAR
In this article, a rheumatologist reviews the complications associated with Rheumatoid arthritis....the autoimmune condition that caused Fer...
WELL ALL THIS IS LAST NIGHT MEETING WITH RUMI MAN AND DID HE KNOW HIS STUFF
minka in NRAS6 years ago
i wish i could put on there the sketch he did for me.
HE listened to all what i had to say and i was verry calm for onece the wife said
Can Lupus link up with MS type Neurological symptoms ?
cuttysark in LUPUS UK4 years agoPOPULAR
Have just been to see the Rheumatologist last week after a couple of months of increasingly severe neurological symptoms.
He thinks I have Sj...
paulh1 in AF Association3 years agoPOPULAR
Well, I got the call from my EP. My ablation is scheduled for January 25. Have mixed feelings about this. On one hand , I'm thinking this ...
Exercise , RA and nsaids ( and mtx!)
Fg45 in NRASa year agoPOPULAR
How naughty is it to take nsaids on a bad day so that you can do some exercise?
Getting frustrated with mtx. Have taken 9 weeks at 10 mg...
So, “It’s definitely not Lupus,” right?
JennaShi in Thyroid UK25 days agoPOPULAR
Not sure where to put this one either, bit was hoping someobe might be able to look at and offer some advice for this lab result? It is a AN...
Hi, new here, and would like some help if you could please?
JDB1964 in Myositis UK4 months agoPOPULAR
Hi Guy’s.. New here, but think I may be getting closer to my actual problem as time goes by.
I’ve had muscle aches and pains for years now (5...
Does anyone have any experience with Rituximab?
IrishLupie in LUpus Patients Understanding and Support4 years ago
So I've been having IVIg on and off for the last 8 months and while it works well for me it's really difficult to make the whole week off co...
kyliesinead in LUPUS UK5 years ago
Just been diagnosed with undifferentiated connective tissue disease after more than 2 years of investigations. My signs and symptoms are ma...
Does IVIG help fatigue?
AdrianUK in CLL Support Association8 months agoPOPULAR
So last week I was having the worst fatigue so far apart from when I had pneumonia. I’ve taken antibiotics for a few days now and the infect...
What do YOU think was the trigger for the onset of your lupus?
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