I am writing because I think this is a well kept secret
After 20 years of OCD as a single parent finally someone came along to help me sort a few things out
This lady was an accountant and rights worker for people with disabilities
She still works but is now permanently hospitalised as she has Ms along with suffering due to abuse as a child and an accident at work
What a lovely kind funny amazing person.
First she taught me to accept I had a disability
Then she applied for DLA
Finally from what she had taught me I was able to apply for a pa first for my husband and then myself (I was a civil servant) so I can do forms...
So a long journey hopefully this will help some find a shortcut
The government prefer to keep costs low so any care at home instead of hospital is cheaper
This benefit is dealt with by your local council
First thing to do is contact someone
Social services will do the assessment but I would recommend talk to your Dr CPN or other professional
A pa may be qualified or may not.
Choose someone you get on with otherwise social services will appoint someone but it is up to you if you are ok with that.
They must get public liability insurance (cost around £60) for themselves
You will be asked what you need help with
I got it for my husband so I could have some free time as I was his full time carer so please let carers know about this too
Since my husband passed away I asked for help for myself
You may want someone to take you out (I don't drive) or go with you to appointments.
We clean the house together. Sometimes we do my paperwork.
We talk a lot because she is my friend. Sometimes I see no one else at all.
pa means personal assistant
So depending on who it is they can assist you with anything.
It sounds too good to be true
No one will tell you about a pa so you have to plead ignorance
Ask for help to do what you can't do yourself. You may have to be persistent.
Say you have heard of a pa
You may well be told it is not for you but they don't like people to tell them their job.
You will find online about it but different councils post different stuff
I wish I could speak to you all individually
If you have heard of one please post positive experiences or how you got round the system
Mine gets paid the going rate which is set by the council they will have to tell you what it is
If you have private income that will be assessed.
Partners income and savings not taken into account
You are supposed to open a dedicated account and keep a basic record
If you can't cope with this they will do payments
But try yourself if you can you do get support
I have mine six hours a week you can get more hours
I wanted to make this easy I really want to help you all
Please ask anything and please come back to me
So many of you are doing so much for others on here
This Is for you
YOU ARE WORTH IT