Introduction

[Drthomas]

I would like to introduce myself to this amazing group. Me and My Wife, are carriers of DC genes. Two of our children both have DC condition. We spent many years not know about the condition, as different doctors diagnosed the condition as unknown. With the advancement of Genetic technology, the condition was eventually diagnosed. Even though we know the eventual outcome of the condition, there is fear and long-term depression, when I think about my children's condition.

I have spent a considerable time to research their condition and the prospects of a genetic cure. However, these solutions are probably available, sometime in the distance future.

I can share my experiences if other would like.

Thanks

[SunraysandSaturdays]

Hi. Thank you for your sharing your story . Our son has recently been diagnosed with DC. We are grateful to begin to belong to a community whose experiences and insight will be invaluable on this journey. Sending best wishes.

[Jayne121Smith]

Welcome

[DC_motheranddaughter Partner]

Hi Dr Thomas,

Welcome to the group. The NHS will soon have access to genetics- so hopefully not so many people will have to wait for a diagnosis. It's good to share our experience- so that we can encourage the doctors and scientists to get together to look into better treatments. Genetic cure will come- and in the meantime, we need them to find better treatments for the various complications.