New here - Ankylosing Spondilitis sufferer (although controlled), + Vasculitis, Possible Polyarteritis Nodosa. On Pred, Sulfasal & Dapsone
Just looking to share info/advice and experiences with anyone else out there with these sort of ailments...
Is there a fix for Dermatitis Herpetiformis.
After living with DH for 3 years and being on Dapsone the same, I am wondering if anyone has a good practitioner who understands this conditi...
I was diagnosed 5 years ago with discoid lupus and suffer with horrible lumps and bumps over my body, also fatigue & joint pain....
Fairly horrible photo of my hand
Sorry for such a graphic photo, but someone asked for updates. The reason I’ve put this one is it shows how deep the ulcer/lesion had gone do...
My Husband who had his first AF attack early this year has been waiting for knee replacement ( looks like two knees now unfortunately ) He is...
Considering splenectomy to treat ITP
Hi - I have ITP and have been treated with Prednisone, Dapsone and IVIG intermittently for the past 3 years with no real success at getting m...
Hello all, I have just signed up on here and this is my first post. I truly hope someone else is out there having similar issues as me becaus...
Cutaneous vasculitis flare up
I'm experiencing a flare up so am feeling pretty low at the moment. I am currently taking 20 mg prednisolone pregabalin 100mg twice a day and...
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy ...
Two years and counting
I have had swellings and rashes in varying degrees over this time, which have been managed with a course of Prednisone up to 30mg/day on a re...
Revolade stopped working suddenly
I am from India. I have ITP since 2016 october....
Gluten-free & Dapsone - but still struggling
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about res...
Hi, I wanted ask if it was normal for your eyes to deteriorate slightly, I was diagnosed in UK in December then GP, optician & dentist here i...
Compicated HSP in young adult
I am new here. My 22 yr old daughter was diagnosed with complicated hsp vasculitis 3 years ago, at the end f her freshman year of college....
Thanks to you all
Thanks for being a life line MYPOST yesterday . At that moment that the dr said what he did....
Vasculitis flare ups on and off for years and drs are confused. Please. Has anyone had this problem. I feel very alone with it
It all started when i was 6. I started having spots apear all over my body and i was bleeding internally aswell as external with ulcers abd l...
It's a rollercoaster
At my last post my count had gradually increased to 32 and i was happy to be coming off the prednisolone ( it wasn't having much effect ). Th...
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy....
HUVS and Xolair (omalizumab)
Hi there you all I'm a swedish woman with a HUVS-diagnos. After trying out antihistamines, plaquenil, corticosteroides, dapsone, azatioprine,...
Really struggling with dry skin
I have been diagnosed with lupus SLE for over 10yrs and am currently on chloroquine....
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