New here - Ankylosing Spondilitis sufferer (although controlled), + Vasculitis, Possible Polyarteritis Nodosa. On Pred, Sulfasal & Dapsone
Just looking to share info/advice and experiences with anyone else out there with these sort of ailments...
Is there a fix for Dermatitis Herpetiformis.
After living with DH for 3 years and being on Dapsone the same, I am wondering if anyone has a good practitioner who understands this conditi...
I was diagnosed 5 years ago with discoid lupus and suffer with horrible lumps and bumps over my body, also fatigue & joint pain....
Fairly horrible photo of my hand
Sorry for such a graphic photo, but someone asked for updates. The reason I’ve put this one is it shows how deep the ulcer/lesion had gone do...
My Husband who had his first AF attack early this year has been waiting for knee replacement ( looks like two knees now unfortunately ) He is...
Two years and counting
I have had swellings and rashes in varying degrees over this time, which have been managed with a course of Prednisone up to 30mg/day on a re...
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy ...
Considering splenectomy to treat ITP
Hi - I have ITP and have been treated with Prednisone, Dapsone and IVIG intermittently for the past 3 years with no real success at getting m...
Cutaneous vasculitis flare up
I'm experiencing a flare up so am feeling pretty low at the moment. I am currently taking 20 mg prednisolone pregabalin 100mg twice a day and...
Hello all, I have just signed up on here and this is my first post. I truly hope someone else is out there having similar issues as me becaus...
Revolade stopped working suddenly
I am from India. I have ITP since 2016 october....
Thanks to you all
Thanks for being a life line MYPOST yesterday . At that moment that the dr said what he did....
Hi, I wanted ask if it was normal for your eyes to deteriorate slightly, I was diagnosed in UK in December then GP, optician & dentist here i...
Compicated HSP in young adult
I am new here. My 22 yr old daughter was diagnosed with complicated hsp vasculitis 3 years ago, at the end f her freshman year of college....
Gluten-free & Dapsone - but still struggling
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about res...
Vasculitis flare ups on and off for years and drs are confused. Please. Has anyone had this problem. I feel very alone with it
It all started when i was 6. I started having spots apear all over my body and i was bleeding internally aswell as external with ulcers abd l...
It's a rollercoaster
At my last post my count had gradually increased to 32 and i was happy to be coming off the prednisolone ( it wasn't having much effect ). Th...
Hi just been diagnosed with leukocytoclastic vasculitus following a skin biopsy....
HUVS and Xolair (omalizumab)
Hi there you all I'm a swedish woman with a HUVS-diagnos. After trying out antihistamines, plaquenil, corticosteroides, dapsone, azatioprine,...
Really struggling with dry skin
I have been diagnosed with lupus SLE for over 10yrs and am currently on chloroquine....
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