Finding a specialist?

[Couplebythelake]

Hi all, we live in the US, does anyone know of a Cystinuria specialist or clinic here in the US? It has been nearly impossible to find someone with experience in this.

Thank you 😊

[gsweeneyICF]

Where in the US do you live, I might be able to assist you!

Gayle

[Couplebythelake in reply to gsweeneyICF]

We live in north central WA state, 3 hours east of Seattle.

Thanks!

[gsweeneyICF in reply to Couplebythelake]

I will see what I can do for you

[gsweeneyICF in reply to gsweeneyICF]

Haven't forgotten you, still working on finding a good match

[gsweeneyICF in reply to gsweeneyICF]

Trying to find the right match - I know you said you are about 3 hours away from Seattle but could you tell me the largest city near you