Researchers find window of opportunity for treatment of early cystic fibrosis lung infections.
2greys in British Lung Foundation20 days ago
A new study, recently published in Nature Communications, has looked at infections in Danish youth with CF over a period of 10 years. This i...
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'Deadlock must end' over cystic fibrosis drug Orkambi.
2greys in British Lung Foundation2 months ago
The government must use its powers to break a deadlock in making a life-extending drug available to people with cystic fibrosis, campaigners...
My mum suffers from pulmonary cystic fibrosis and is currently on 14litres of oxygen permanently.
sully82 in British Lung Foundation6 years ago
Since moving up to a higher dose of oxygen she now has to use a mask instead of a cannula, which can be difficult when she wants to eat, tal...
CReM Scientists Turn Human IPS Cells into Lung Cells. “Bronchospheres” may pave way for personalized cystic fibrosis treatments
2greys in British Lung Foundation2 years ago
Human lungs, like all organs, begin their existence as clumps of undifferentiated stem cells. But in a matter of months, the cells get organ...
Cystic fibrosis drug combo found safe and effective for 2- to 5-year-olds.
An open label Phase 3 study conducted at Ann & Robert H. Lurie Children's Hospital of Chicago and other centers established that a combinati...
Bacteria from cystic fibrosis patient could help thwart antibiotic-resistant TB.
The number of drug-resistant tuberculosis (TB) cases is rising globally. But a newly discovered natural antibiotic — produced by bacteria fr...
Why do some people with cystic fibrosis live much longer than others?
2greys in British Lung Foundationa year ago
The answer may be hidden in their genes.
Cystic fibrosis is an inherited disorder caused by genetic mutations that disrupt the normal movemen...
I would like to know why non cystic fibrosis bronchiectasis patients in the UK are denied TOBI
Hidden in British Lung Foundation5 years agoPOPULAR
My consultant said 'if they licensed it for you nobody would pay for it'. This is discrimination as those with cystic fibrosis bronchiectasi...
Most patients with cystic fibrosis may receive insufficient antibiotics to fight lung infections.
2greys in British Lung Foundation5 months ago
The majority of patients with cystic fibrosis may not achieve blood concentrations of antibiotics sufficiently high enough to effectively fi...
Potential new cystic fibrosis treatment uses 'molecular prosthetic' for missing lung protein.
2greys in British Lung Foundation10 days ago
An approved drug normally used to treat fungal infections could also do the job of a protein channel that is missing or defective in the lun...
Faversham’s courageous Roisin Kelleher launches petition to make stem cell treatment available in UK for cystic fibrosis sufferers
kimmy59 in British Lung Foundation4 years ago
Thought everyone might be interested in this article.
Finally, a potential new approach against KRAS-driven lung cancer. Study finds COPD, asthma and cystic fibrosis gene involved in lung cancer
2greys in British Lung Foundation7 months ago
The previous decade has seen dramatic advances in the treatment of non-small cell lung cancer, as genes driving subtypes of the disease incl...
Anybody know where in the uk lung stem cell research is being carried out?
phillipehenry in British Lung Foundation6 years ago
Anyone using mannitol inhaler?
mis37 in Parkinson's Movement2 months ago
Intranasal or by mouth?
Dose and frequency?
Appreciate any comments... thanks
Scientists create stem cell therapy for lung fibrosis conditions.
A team of scientists from the UNC School of Medicine and North Carolina State University (NCSU) has developed promising research towards a p...
Anyone else have a sweaty baby haha
suzie_27 in NCT5 years ago
Lo is nearly 6 months and sweats like athlete after a marathon!! Especially on his neck and back of head? Haha
Researchers study bacterial immunity to understand infectious disease .
2greys in British Lung Foundation3 months ago
Patients with cystic fibrosis are often infected by pseudomonas aeruginosa, a bacterium that infects the lungs and prevents breathing, often...
New clues discovered to lung transplant rejection.
A lung transplant often remains the only option for many patients with end-stage lung disease, a condition that can be brought on by emphyse...
New Lung Cell Type Discovered.
2greys in British Lung Foundation8 months ago
In separate studies published online in Nature on Aug. 1, two independent research teams report the discovery of a new, rare type of cell in...
Study shows potential of stem cell therapy to repair lung damage
A new study has found that stem cell therapy can reduce lung inflammation in an animal model of chronic obstructive pulmonary disease (COPD)...
A commensal streptococcus hijacks a Pseudomonas aeruginosa exopolysaccharide to promote biofilm formation.
Substances produced by a harmful bacterium in the lungs of cystic fibrosis patients may enhance the growth of other bacteria that, in turn, ...
Hidden in Asthma UK community forum8 years ago
Okay so Harriet has left me for the weekend its her dads birthday
She didn't want to go but I made her go.
We have moved so am near uni Harry ...
More than a dozen charities and organisations, including Vasculitis UK are challenging the Welsh Assembly.
Suzym2u in Vasculitis UK6 years ago
Thirteen charities and organisations including Vasculitis UK have signed an open letter pressing for vital medical funding in Wales for drug...
NAC N-Acetyl Cysteine anyone?
cassie17 in IBS Network2 years ago
as anyone tried NAC with good results? for IBS.
Double lung transplant
JeromeA in National Foundation for Transplants3 years ago
Hello, I am 34, 4 years post a double lung transplant due to Cystic Fibrosis. Over the past year I keep having a harder and harder time coo...
jue38 in Anxiety Support6 years ago
Well its been one hell of a week. My bf has been in hospital, he has cystic fibrosis. I hate been at home without him. He is the one person ...
NRAS asks people on the street what they know about rheumatoid arthritis
Hidden in NRAS2 years ago
For RA awareness week we asked the general public what they knew about rheumatoid arthritis. This is why NRAS does what it does, trying to r...
connections with autoimmune conditions
food123 in Scleroderma & Raynaud's UK (SRUK)6 months ago
Hello. First post! I am in my mid seventies and developed
crest when I was 25
My nieces have Hashimotos disease and my grandson
has cystic fibr...
Engineers create an inhalable form of messenger RNA
Messenger RNA, which can induce cells to produce therapeutic proteins, holds great promise for treating a variety of diseases. The biggest o...
LLMP in Fertility Network UK8 months ago
Hi, I am on my first round of IVF for genetic screening as me and my husband are both cystic fibrosis carriers. I had the egg collection on ...
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