Fionadcmail in British Lung Foundation2 years ago
What I find so confusing about cystic fibrosis is all centres seem to have their own beliefs about the regime of treatments !...
Lupen in British Lung Foundationa year ago
I'm an Italian guy who is sick of cystic fibrosis,
I would like to know if I move to London, the NHS passes me all the free medication care ...
Ian123 in British Lung Foundation2 years ago
This blog mentions cystic fibrosis specifically but has implications for other lung diseases claiming PIP samedifference1.com/2016/05...
Fionadcmail in British Lung Foundation3 years ago
gellygemma in British Lung Foundation4 years ago
I'm writing on behalf on my sister Rebecca. She's 30years old and lives in Spain. Becky has Cystic Fibrosis and her lung function is current...
Adult Cystic Fibrosis
Rio11 in Fungal Infection Trust3 years ago
Well, first came chronic Pancreatitis 36 yrs ago, followed by recent Bronciectasis and ABPA.
And now the the bomb shell: Adult CF. It sure co...
Cystic Fibrosis funding denied
katieoxo60 in British Lung Foundation6 years ago
Thought this might interest other BLF members who don't have COPD. Front page news in my local paper says we have researched and found a ne...
mixing with Child with Cystic FIbrosis
Katiehogan in PCD Family Support Group (UK)2 years ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
being checked for cystic fibrosis
Hidden in Asthma UK community forum11 years ago
I wonder if anyone could offer any advice or opinion.
Isaac has had asthma since 11 months (now 2 and a half) and today we had a check up at ...
Cystic Fibrosis blood test?
Pip89 in Fertility Network UK9 months ago
We’re at that final hurdle prior to our first appt at our chosen fertility clinic for IVF.
I have PCO and Endo and my partner has a ...
Anyone been checked for Cystic Fibrosis?
Hidden in Asthma UK community forum5 years ago
I'm just starting the process of being checked for Cystic Fibrosis.
I don't have bronch (my lungs are actually in pretty good nick ...
COPD - Cystic fibrosis news out..
maccamcd in British Lung Foundation4 years ago
New data supports RPL554 as a potential novel cystic fibrosis therapy
29 September 2014, Cardiff - Verona Pharma plc (AIM: VRP), the drug d...
Atypical cystic fibrosis mistaken for asthma or copd
Hidden in British Lung Foundation2 years ago
In atypical CF, respiratory symptoms are often more mild and might not begin until adulthood but still include recurrent pneumonia, progress...
How many CLL suffers are Cystic Fibrosis Carriers
Hidden in CLL Support Association2 years ago
Here is interesting read not routinely covered.
New proteins to clear airways in cystic fibrosis and COPD
Hidden in British Lung Foundation6 years ago
I'm sure we should all be anxious about the outcome of the study whereby new proteins were discovered by FASEB to clear the airways in cysti...
Understanding antibiotic resistance in patients with cystic fibrosis.
2greys in British Lung Foundation21 days ago
A defective gene causes thick, sticky mucus to build up in the lungs of patients with cystic fibrosis (CF). There, it traps bacteria, causin...
Cystic fibrosis impacts growth in the womb, research shows.
2greys in British Lung Foundation3 months ago
The research team compared babies born with and without CF using data on 2.2?million babies in Denmark and Wales. This research, published i...
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Cystic fibrosis alters the structure of mucus in airways.
2greys in British Lung Foundationa year ago
Study may help explain mucus clearance problems for patients with cystic fibrosis.
Mucus is important for maintaining healthy lungs. Inhaled ...
Stem cell research for cystic fibrosis leaps forward.
There are 70,000 people worldwide living with CF for which there is currently no cure, and disease in the lungs is the major cause of poor h...
Anyone Know WHY BLF DON'T Really Cover Cystic Fibrosis
Did have a look on website and information IS pants really
There was nothing about carriers or so called healthy carriers AND given this no r...
Cystic fibrosis study offers new understanding of silent changes in genes.
Researchers studying the root cause of cystic fibrosis have made a major advance in our understanding of silent gene changes with implicatio...
New Imaging Technique Shows Effectiveness of Cystic Fibrosis Drug.
2greys in British Lung Foundation2 years ago
Hyperpolarized helium MRI could aid in development of improved therapies for lung diseases.
Predatory Bacteria Found in Study of Cystic Fibrosis Patients’ Lung Microbiome.
Cystic fibrosis patients have a wide variety of bacteria in their lungs, including two ‘predators’ not detected before, according to a new s...
When Being Cystic fibrosis Carrier Can Make You As Sick As Suffer.
Hidden in British Lung Foundation2 years agoPOPULAR
Well my DNA result turned up interesting fact ONE that turns out I am a carrier of CF gene mutation.
SO just how much is known about DNA and ...
Protein Structure Could Unlock New Treatments for Cystic Fibrosis.
2greys in British Lung Foundation10 months ago
Cystic fibrosis is a severe hereditary disease of the lung, for which there is currently no cure. The underlying cause of the disease is a m...
My mum suffers from pulmonary cystic fibrosis and is currently on 14litres of oxygen permanently.
sully82 in British Lung Foundation6 years ago
Since moving up to a higher dose of oxygen she now has to use a mask instead of a cannula, which can be difficult when she wants to eat, tal...
CReM Scientists Turn Human IPS Cells into Lung Cells. “Bronchospheres” may pave way for personalized cystic fibrosis treatments
Human lungs, like all organs, begin their existence as clumps of undifferentiated stem cells. But in a matter of months, the cells get organ...
Bacteria from cystic fibrosis patient could help thwart antibiotic-resistant TB.
The number of drug-resistant tuberculosis (TB) cases is rising globally. But a newly discovered natural antibiotic — produced by bacteria fr...
Why do some people with cystic fibrosis live much longer than others?
The answer may be hidden in their genes.
Cystic fibrosis is an inherited disorder caused by genetic mutations that disrupt the normal movemen...
I would like to know why non cystic fibrosis bronchiectasis patients in the UK are denied TOBI
Hidden in British Lung Foundation5 years agoPOPULAR
My consultant said 'if they licensed it for you nobody would pay for it'. This is discrimination as those with cystic fibrosis bronchiectasi...
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