Fionadcmail in British Lung Foundation2 years ago
What I find so confusing about cystic fibrosis is all centres seem to have their own beliefs about the regime of treatments !...
Lupen in British Lung Foundationa year ago
I'm an Italian guy who is sick of cystic fibrosis,
I would like to know if I move to London, the NHS passes me all the free medication care ...
Ian123 in British Lung Foundation3 years ago
This blog mentions cystic fibrosis specifically but has implications for other lung diseases claiming PIP samedifference1.com/2016/05...
Fionadcmail in British Lung Foundation3 years ago
Cystic fibrosis testing in adults
Diane11270 in British Lung Foundation2 months ago
Has anyone recently been tested for cystic fibrosis? I already have bronchiectisis, mild pulmonary hypertension but my consultant wants to k...
gellygemma in British Lung Foundation4 years ago
I'm writing on behalf on my sister Rebecca. She's 30years old and lives in Spain. Becky has Cystic Fibrosis and her lung function is current...
Adult Cystic Fibrosis
Rio11 in Fungal Infection Trust3 years ago
Well, first came chronic Pancreatitis 36 yrs ago, followed by recent Bronciectasis and ABPA.
And now the the bomb shell: Adult CF. It sure co...
Cystic Fibrosis funding denied
katieoxo60 in British Lung Foundation6 years ago
Thought this might interest other BLF members who don't have COPD. Front page news in my local paper says we have researched and found a ne...
mixing with Child with Cystic FIbrosis
Katiehogan in PCD Family Support Group (UK)3 years ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
being checked for cystic fibrosis
Hidden in Asthma UK community forum11 years ago
I wonder if anyone could offer any advice or opinion.
Isaac has had asthma since 11 months (now 2 and a half) and today we had a check up at ...
Cystic Fibrosis blood test?
Pip89 in Fertility Network UKa year ago
We’re at that final hurdle prior to our first appt at our chosen fertility clinic for IVF.
I have PCO and Endo and my partner has a ...
Cystic Fibrosis and Oxygen
Soapdish1 in British Lung Foundation2 months ago
My husband has cystic fibrosis and has been told he need oxygen 24/7 now. We are due to go to Germany in 10 days, where do we even start to ...
Anyone been checked for Cystic Fibrosis?
Hidden in Asthma UK community forum5 years ago
I'm just starting the process of being checked for Cystic Fibrosis.
I don't have bronch (my lungs are actually in pretty good nick ...
COPD - Cystic fibrosis news out..
maccamcd in British Lung Foundation4 years ago
New data supports RPL554 as a potential novel cystic fibrosis therapy
29 September 2014, Cardiff - Verona Pharma plc (AIM: VRP), the drug d...
Atypical cystic fibrosis mistaken for asthma or copd
Hidden in British Lung Foundation2 years ago
In atypical CF, respiratory symptoms are often more mild and might not begin until adulthood but still include recurrent pneumonia, progress...
How many CLL suffers are Cystic Fibrosis Carriers
Hidden in CLL Support Association2 years ago
Here is interesting read not routinely covered.
Understanding antibiotic resistance in patients with cystic fibrosis.
2greys in British Lung Foundation4 months ago
A defective gene causes thick, sticky mucus to build up in the lungs of patients with cystic fibrosis (CF). There, it traps bacteria, causin...
New proteins to clear airways in cystic fibrosis and COPD
Hidden in British Lung Foundation6 years ago
I'm sure we should all be anxious about the outcome of the study whereby new proteins were discovered by FASEB to clear the airways in cysti...
Cystic fibrosis impacts growth in the womb, research shows.
2greys in British Lung Foundation5 months ago
The research team compared babies born with and without CF using data on 2.2?million babies in Denmark and Wales. This research, published i...
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Identifying cystic fibrosis earlier and more reliably.
2greys in British Lung Foundationa month ago
Scientists at McMaster University have discovered several new biomarkers from a single drop of blood that could allow earlier and more defin...
Cystic fibrosis alters the structure of mucus in airways.
2greys in British Lung Foundation2 years ago
Study may help explain mucus clearance problems for patients with cystic fibrosis.
Mucus is important for maintaining healthy lungs. Inhaled ...
Stem cell research for cystic fibrosis leaps forward.
2greys in British Lung Foundation6 months ago
There are 70,000 people worldwide living with CF for which there is currently no cure, and disease in the lungs is the major cause of poor h...
Anyone Know WHY BLF DON'T Really Cover Cystic Fibrosis
Did have a look on website and information IS pants really
There was nothing about carriers or so called healthy carriers AND given this no r...
Cystic fibrosis study offers new understanding of silent changes in genes.
Researchers studying the root cause of cystic fibrosis have made a major advance in our understanding of silent gene changes with implicatio...
Predatory Bacteria Found in Study of Cystic Fibrosis Patients’ Lung Microbiome.
2greys in British Lung Foundationa year ago
Cystic fibrosis patients have a wide variety of bacteria in their lungs, including two ‘predators’ not detected before, according to a new s...
When Being Cystic fibrosis Carrier Can Make You As Sick As Suffer.
Hidden in British Lung Foundation2 years agoPOPULAR
Well my DNA result turned up interesting fact ONE that turns out I am a carrier of CF gene mutation.
SO just how much is known about DNA and ...
Protein Structure Could Unlock New Treatments for Cystic Fibrosis.
Cystic fibrosis is a severe hereditary disease of the lung, for which there is currently no cure. The underlying cause of the disease is a m...
Hypertonic Saline May Help Babies with Cystic Fibrosis Breathe Better.
2greys in British Lung Foundation2 months ago
Babies with cystic fibrosis may breathe better by inhaling hypertonic saline, according to a randomized controlled trial conducted in German...
Blood Test Could Lead to Cystic Fibrosis Treatment Tailored to Each Patient.
“Our findings pave the way to precision medicine for cystic fibrosis patients, eventually helping us match treatment to each patient’s uniqu...
My mum suffers from pulmonary cystic fibrosis and is currently on 14litres of oxygen permanently.
sully82 in British Lung Foundation6 years ago
Since moving up to a higher dose of oxygen she now has to use a mask instead of a cannula, which can be difficult when she wants to eat, tal...
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