Fionadcmail in British Lung Foundation a year ago
What I find so confusing about cystic fibrosis is all centres seem to have their own beliefs about the regime of treatments !...
Lupen in British Lung Foundation 4 months ago
I'm an Italian guy who is sick of cystic fibrosis,
I would like to know if I move to London, the NHS passes me all the free medication care ...
Ian123 in British Lung Foundation 2 years ago
This blog mentions cystic fibrosis specifically but has implications for other lung diseases claiming PIP samedifference1.com/2016/05...
Fionadcmail in British Lung Foundation 2 years ago
gellygemma in British Lung Foundation 3 years ago
I'm writing on behalf on my sister Rebecca. She's 30years old and lives in Spain. Becky has Cystic Fibrosis and her lung function is current...
Adult Cystic Fibrosis
Rio11 in Fungal Infection Trust 2 years ago
Well, first came chronic Pancreatitis 36 yrs ago, followed by recent Bronciectasis and ABPA.
And now the the bomb shell: Adult CF. It sure co...
Cystic Fibrosis funding denied
katieoxo60 in British Lung Foundation 5 years ago
Thought this might interest other BLF members who don't have COPD. Front page news in my local paper says we have researched and found a ne...
mixing with Child with Cystic FIbrosis
Katiehogan in PCD Family Support Group (UK) 2 years ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
being checked for cystic fibrosis
Hidden in Asthma UK community forum 10 years ago
I wonder if anyone could offer any advice or opinion.
Isaac has had asthma since 11 months (now 2 and a half) and today we had a check up at ...
Anyone been checked for Cystic Fibrosis?
Hidden in Asthma UK community forum 4 years ago
I'm just starting the process of being checked for Cystic Fibrosis.
I don't have bronch (my lungs are actually in pretty good nick ...
COPD - Cystic fibrosis news out..
maccamcd in British Lung Foundation 3 years ago
New data supports RPL554 as a potential novel cystic fibrosis therapy
29 September 2014, Cardiff - Verona Pharma plc (AIM: VRP), the drug d...
Atypical cystic fibrosis mistaken for asthma or copd
Hidden in British Lung Foundation a year ago
In atypical CF, respiratory symptoms are often more mild and might not begin until adulthood but still include recurrent pneumonia, progress...
How many CLL suffers are Cystic Fibrosis Carriers
Hidden in CLL Support Association a year ago
Here is interesting read not routinely covered.
New proteins to clear airways in cystic fibrosis and COPD
Hidden in British Lung Foundation 6 years ago
I'm sure we should all be anxious about the outcome of the study whereby new proteins were discovered by FASEB to clear the airways in cysti...
Cystic fibrosis alters the structure of mucus in airways.
2greys in British Lung Foundation 7 months ago
Study may help explain mucus clearance problems for patients with cystic fibrosis.
Mucus is important for maintaining healthy lungs. Inhaled ...
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Anyone Know WHY BLF DON'T Really Cover Cystic Fibrosis
Did have a look on website and information IS pants really
There was nothing about carriers or so called healthy carriers AND given this no r...
When Being Cystic fibrosis Carrier Can Make You As Sick As Suffer.
Hidden in British Lung Foundation a year agoPOPULAR
Well my DNA result turned up interesting fact ONE that turns out I am a carrier of CF gene mutation.
SO just how much is known about DNA and ...
Protein Structure Could Unlock New Treatments for Cystic Fibrosis.
2greys in British Lung Foundation a month ago
Cystic fibrosis is a severe hereditary disease of the lung, for which there is currently no cure. The underlying cause of the disease is a m...
Cystic fibrosis study offers new understanding of silent changes in genes.
2greys in British Lung Foundation 8 months ago
Researchers studying the root cause of cystic fibrosis have made a major advance in our understanding of silent gene changes with implicatio...
New Imaging Technique Shows Effectiveness of Cystic Fibrosis Drug.
2greys in British Lung Foundation 9 months ago
Hyperpolarized helium MRI could aid in development of improved therapies for lung diseases.
Predatory Bacteria Found in Study of Cystic Fibrosis Patients’ Lung Microbiome.
2greys in British Lung Foundation 4 months ago
Cystic fibrosis patients have a wide variety of bacteria in their lungs, including two ‘predators’ not detected before, according to a new s...
My mum suffers from pulmonary cystic fibrosis and is currently on 14litres of oxygen permanently.
sully82 in British Lung Foundation 5 years ago
Since moving up to a higher dose of oxygen she now has to use a mask instead of a cannula, which can be difficult when she wants to eat, tal...
Bacteria from cystic fibrosis patient could help thwart antibiotic-resistant TB.
The number of drug-resistant tuberculosis (TB) cases is rising globally. But a newly discovered natural antibiotic — produced by bacteria fr...
Why do some people with cystic fibrosis live much longer than others?
2greys in British Lung Foundation 3 months ago
The answer may be hidden in their genes.
Cystic fibrosis is an inherited disorder caused by genetic mutations that disrupt the normal movemen...
CReM Scientists Turn Human IPS Cells into Lung Cells. “Bronchospheres” may pave way for personalized cystic fibrosis treatments
Human lungs, like all organs, begin their existence as clumps of undifferentiated stem cells. But in a matter of months, the cells get organ...
I would like to know why non cystic fibrosis bronchiectasis patients in the UK are denied TOBI
Hidden in British Lung Foundation 4 years agoPOPULAR
My consultant said 'if they licensed it for you nobody would pay for it'. This is discrimination as those with cystic fibrosis bronchiectasi...
Faversham’s courageous Roisin Kelleher launches petition to make stem cell treatment available in UK for cystic fibrosis sufferers
kimmy59 in British Lung Foundation 3 years ago
Thought everyone might be interested in this article.
Ok. Humm. Cystic fibrosis with peursedomon in Adulthood ? What the heck !
Anybody know where in the uk lung stem cell research is being carried out?
phillipehenry in British Lung Foundation 5 years ago
Scientists create stem cell therapy for lung fibrosis conditions.
2greys in British Lung Foundation 6 months ago
A team of scientists from the UNC School of Medicine and North Carolina State University (NCSU) has developed promising research towards a p...
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