Fionadcmail in British Lung Foundation3 years ago
What I find so confusing about cystic fibrosis is all centres seem to have their own beliefs about the regime of treatments !...
Lupen in British Lung Foundation2 years ago
I'm an Italian guy who is sick of cystic fibrosis,
I would like to know if I move to London, the NHS passes me all the free medication care ...
Sjpcf in British Lung Foundation4 months ago
Hi all. Just wondering if there's anyone with c f on here. ?
Ian123 in British Lung Foundation3 years ago
This blog mentions cystic fibrosis specifically but has implications for other lung diseases claiming PIP samedifference1.com/2016/05...
Fionadcmail in British Lung Foundation4 years ago
Cystic fibrosis testing in adults
Diane11270 in British Lung Foundation10 months ago
Has anyone recently been tested for cystic fibrosis? I already have bronchiectisis, mild pulmonary hypertension but my consultant wants to k...
gellygemma in British Lung Foundation4 years ago
I'm writing on behalf on my sister Rebecca. She's 30years old and lives in Spain. Becky has Cystic Fibrosis and her lung function is current...
Adult Cystic Fibrosis
Rio11 in Fungal Infection Trust4 years ago
Well, first came chronic Pancreatitis 36 yrs ago, followed by recent Bronciectasis and ABPA.
And now the the bomb shell: Adult CF. It sure co...
Cystic Fibrosis funding denied
katieoxo60 in British Lung Foundation7 years ago
Thought this might interest other BLF members who don't have COPD. Front page news in my local paper says we have researched and found a ne...
mixing with Child with Cystic FIbrosis
Katiehogan in PCD Family Support Group (UK)3 years ago
Hi. My daughter is starting high school in September. She has PCD and there is a child also starting with Cystic Fibrosis. I have to go to t...
being checked for cystic fibrosis
Hidden in Asthma UK community forum12 years ago
I wonder if anyone could offer any advice or opinion.
Isaac has had asthma since 11 months (now 2 and a half) and today we had a check up at ...
Cystic Fibrosis and Oxygen
Soapdish1 in British Lung Foundation10 months ago
My husband has cystic fibrosis and has been told he need oxygen 24/7 now. We are due to go to Germany in 10 days, where do we even start to ...
Cystic Fibrosis blood test?
Pip89 in Fertility Network UK2 years ago
We’re at that final hurdle prior to our first appt at our chosen fertility clinic for IVF.
I have PCO and Endo and my partner has a ...
Anyone been checked for Cystic Fibrosis?
Hidden in Asthma UK community forum6 years ago
I'm just starting the process of being checked for Cystic Fibrosis.
I don't have bronch (my lungs are actually in pretty good nick ...
COPD - Cystic fibrosis news out..
maccamcd in British Lung Foundation5 years ago
New data supports RPL554 as a potential novel cystic fibrosis therapy
29 September 2014, Cardiff - Verona Pharma plc (AIM: VRP), the drug d...
Atypical cystic fibrosis mistaken for asthma or copd
Hidden in British Lung Foundation3 years ago
In atypical CF, respiratory symptoms are often more mild and might not begin until adulthood but still include recurrent pneumonia, progress...
How many CLL suffers are Cystic Fibrosis Carriers
Hidden in CLL Support Association3 years ago
Here is interesting read not routinely covered.
New proteins to clear airways in cystic fibrosis and COPD
Hidden in British Lung Foundation7 years ago
I'm sure we should all be anxious about the outcome of the study whereby new proteins were discovered by FASEB to clear the airways in cysti...
When Being Cystic fibrosis Carrier Can Make You As Sick As Suffer.
Hidden in British Lung Foundation3 years agoPOPULAR
Well my DNA result turned up interesting fact ONE that turns out I am a carrier of CF gene mutation.
SO just how much is known about DNA and ...
Anyone Know WHY BLF DON'T Really Cover Cystic Fibrosis
Did have a look on website and information IS pants really
There was nothing about carriers or so called healthy carriers AND given this no r...
My mum suffers from pulmonary cystic fibrosis and is currently on 14litres of oxygen permanently.
sully82 in British Lung Foundation7 years ago
Since moving up to a higher dose of oxygen she now has to use a mask instead of a cannula, which can be difficult when she wants to eat, tal...
I would like to know why non cystic fibrosis bronchiectasis patients in the UK are denied TOBI
Hidden in British Lung Foundation6 years agoPOPULAR
My consultant said 'if they licensed it for you nobody would pay for it'. This is discrimination as those with cystic fibrosis bronchiectasi...
Faversham’s courageous Roisin Kelleher launches petition to make stem cell treatment available in UK for cystic fibrosis sufferers
kimmy59 in British Lung Foundation5 years ago
Thought everyone might be interested in this article.
Be the first to reply
Anybody know where in the uk lung stem cell research is being carried out?
phillipehenry in British Lung Foundation6 years ago
Anyone using mannitol inhaler?
mis37 in Parkinson's Movement8 months ago
Intranasal or by mouth?
Dose and frequency?
Appreciate any comments... thanks
Anyone else have a sweaty baby haha
suzie_27 in NCT5 years ago
Lo is nearly 6 months and sweats like athlete after a marathon!! Especially on his neck and back of head? Haha
Hidden in Asthma UK community forum9 years ago
Okay so Harriet has left me for the weekend its her dads birthday
She didn't want to go but I made her go.
We have moved so am near uni Harry ...
More than a dozen charities and organisations, including Vasculitis UK are challenging the Welsh Assembly.
Suzym2u in Vasculitis UK6 years ago
Thirteen charities and organisations including Vasculitis UK have signed an open letter pressing for vital medical funding in Wales for drug...
NAC N-Acetyl Cysteine anyone?
cassie17 in IBS Network2 years ago
as anyone tried NAC with good results? for IBS.
christina1947 in COPD Friends4 months ago
Only now heard the story of the 4 year old boy who pronounced his condition cystic fibrosis as 65 roses in 1965 and that’s what it’s reffere...
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