Lost the Battle
My wonderful husband of 38 years passed away on September 26 at the age of 71. Ten years ago he had brachytherapy....
Hello everyone, I've just been diagnosed with Lupus nephritis on to of my sle........
Low Grade & Cyclophosphamide
Had anyone with Low Grade Serous Ovarian Cancer had oral chemotherapy called “ Cyclophosphamide ”....
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
My wife of nearly 50 years died in late April after a 11 year battle with CLL. In 2013 the disease resurfaced as CLL and she received 6 cycle...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
Newly diagnosed - Vasculitis (Churg Strauss)
I have just been diagnosed with Churg Strauss also know as EGPA....
Can Prolia trigger vasculitis
I was first diagnosed with Wegeners in November 2010 - sinus and lungs....
Hi Ladies starting chemo again on the 30th May , has anyone had any experience on carboplatin and cyclophosphamide, if so how did you feel, s...
Hi All Just been told that I have to have a course of cyclophosphamide one day a month for 6 months. Has anyone else had this and what effect...
Starting chemotherapy (Cyclophosphamide)
Hi everyone, I hope you are all having a good week I will be starting my first round of chemo next week with cyclophosphamide as my sclero...
Is vasculitis life threatening?
He went onto give information out and leaflets, so hubby has got Systemic vasculitis primary they think, ANCA PR3 ( don't really understand e...
Hi Ladies just an update ..... So after my first infusion of carbo/ Cyclophosphamide brought me four days in hospital ☹️ Due to blood in my ...
Use of MRD Status Following Obinutuzumab/Ibrutinib to Guide Subsequent Intensification of Therapy in CLL
01% were treated with 6 months of ibrutinib; whereas those achieving a partial response ( PR ), or a CR and bone marrow MRD greater than or e...
Interstitial lung disease and polymyositis
Hi I am new to the forum after reading through a few of your stories I thought I would introduce myself and share mine. I am a 40 year old m...
Diagnosed with GPA over 2 yrs ago.
Hi, I am 63 and have been on the usual cyclophosphamide and prednisolone to treat Wegners granulomatosis. Changed to azathioprine after 8 mon...
cyclophosphamide infusion - side effects / experiences ?
Hi, I'm getting my first cyclophosphamide infusion tomorrow. What are side effects that you had experienced, just / a day / a week / a month ...
My mother just diagnosed GPA, help needed
Dear patients and specialists, I am currently working and living in the UK and my mother has been diagnosed as GPA vacuities on November in C...
Blood in urine
Hi Ladies I have had my first infusion of carbo & cyclophosphamide today there was blood in my urine just wondering if it's a trip to hospita...
Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place
They designed a phase II study testing the combination of ibrutinib, fludarabine, cyclophosphamide, and obinutuzumab ( iFCG ) for the frontli...
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