Just finished FIRST round FCR - what will happen next?
I just finished three days of FCR infusion. They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine...
Glacially slow tapering continuing
But my cerebral vasculitis isn't playing nicely, even though high dose Cyclophosphamide infusions in hospital in summer 2012 did give it a fi...
GPA sufferer seeking financial advice
Hi, I am 49 years old and have been battling with GPA for 2 and a half years now and despite all the steroids, 16 pulses cyclophosphamide, 8 ...
Lost in the world of Vasculitis
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admi...
Rituximab or Cyclophosphamide
Hi I have PF caused by mixed connective tissue disease. I have been on Mycophenelate Mofetil ( Cellcept ) for many years but my lung function...
Move from Methotrexate and Azathioprine onto Cyclophosphamide for Churg Strauss (E.G.P.A)
Well I came back from my rheumatologist appointment and after almost a year on Methotrexate and last 8 weeks with Azathioprine added in on to...
Starting chemotherapy (Cyclophosphamide)
Hi everyone, I hope you are all having a good week I will be starting my first round of chemo next week with cyclophosphamide as my sclero...
Advice re azathioprine and alcohol please
Hi Looking for experiences and research/advice on alcohol and azathioprine please. Partner just completed 6 cycles of cyclophosphamide having...
Lost sense of smell and taste
Not specifically for the smell problem but for the whole ENT areas of involvement affected by the vasculitis....
Constant UTI’s 9 in 3 months!
Hey everyone , I’m genuinely at my wits end!!! I’m soo fed up!...
It was to treat churg strauss syndrome which has left me with nerve damage to my left foot and right hand which seems to have got a little wo...
Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affecting my lungs, and treatment is an in infusion of cyclophosph...
Hi, I'm writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms ( swollen nodes in the neck ) his ...
Hi I'm about to start a 6 month course of intravenous cyclophosphamide has anyone had it ? Does it work ?...
Early last year I was diagnosed with Endo which led to adhensions/fibroid and cyts on my left tube. I am now on zoladex injection for three m...
Hi, sorry for the disturbing photo. Does anyone have stretchmarks on the belly and hips?...
Rheumatoid Vasculitis: serious disease, difficult treatment.
My first post here. I've been battling Rheum....
EMA Accepts Conditional Application for ANCA Treatment Avacopan
I suffer from MPA and am currently on my third year of 6 monthly infusions of Rituximab + Prednisolone after an unsuccessful year of Cyclopho...
Son with Vasculiti Anca Associata with renal involvement
Hi I write from north of Italy. In March of this year the doctor told us that my son, who is 11 years old and 1/2, has an aggressive form of ...
I finished 2nd line ( carbo, cyclophosphamide + avastin ) on January 12th. I'm starting a new chemo today called Topotecan as I'm now deemed ...
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