Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib ( PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab ...
Chemo-Free Treatment Best Option for CLL Patients Under 70
There is good news in the advancement of chemo-free approaches to managing chronic lymphocytic leukemia, and I am thrilled to share it with y...
Starting chemotherapy (Cyclophosphamide)
Hi everyone, I hope you are all having a good week I will be starting my first round of chemo next week with cyclophosphamide as my sclero...
Hi All Just been told that I have to have a course of cyclophosphamide one day a month for 6 months. Has anyone else had this and what effect...
Interstitial lung disease and polymyositis
Hi I am new to the forum after reading through a few of your stories I thought I would introduce myself and share mine. I am a 40 year old m...
CAR-T update and more
Writing this with fludarabine and cyclophosphamide running through my PICC line to make room for the CAR-T cells on March 22. I have tried to...
Heart problems after ciclofosfamide
Any experience ?...
Looking for information and support system
I got diagnosed with diffuse cutaneous scleroderma in October 2017, I'm currently on cyclophosphamide and just finished a course of iloprost....
Aortitis, now might have to start cyclophosphamide
My consultant wants me to think about possibly starting cyclophosphamide, as my inflammatory markers have stuck for some time now at around 1...
My mother just diagnosed GPA, help needed
Dear patients and specialists, I am currently working and living in the UK and my mother has been diagnosed as GPA vacuities on November in C...
cyclophosphamide infusion - side effects / experiences ?
Hi, I'm getting my first cyclophosphamide infusion tomorrow. What are side effects that you had experienced, just / a day / a week / a month ...
Diagnosed with GPA over 2 yrs ago.
Hi, I am 63 and have been on the usual cyclophosphamide and prednisolone to treat Wegners granulomatosis. Changed to azathioprine after 8 mon...
Very anxious about having IV Cyclophosphamide. need to hear of your experience with this drug.
currently my lupus is not under controlled and my lung capacity is diminishing. The docs hope the infusion will kick my lupus into remission,...
Professional with Lupus?
Hi, I’m a 23 year old recently diagnosed with SLE ( lupus cerebritis + HLH on my first flare 1 yr ago ). I’m hoping to ask for advice from or...
Newly diagnosed with systemic scleroderma
I am 25 years old and was officially diagnosed with diffuse systemic scleroderma in June 2018. I just feel a bit lost and very overwhelmed as...
Hi everyone. Back with an update....
Looking for hope
Hi everyone, My mum was diagnosed with EGPA almost 2months ago. Thankfully the only thing affected were her nervesin her left foot cauaing fo...
Transition from Cyclophosphamide to Mycophenolate
Hello, I am due to complete my 10th and final cycle of cyclophosphamide in a few weeks. My rheumatologist proposes to then start me on mycoph...
My story ... journey to a diagnosis
Having been transferred to a specialist kidney unit, I was diagnosed with ANCA related Vasculitis....
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic le...
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