Just finished FIRST round FCR - what will happen next?
I just finished three days of FCR infusion. They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine...
Glacially slow tapering continuing
But my cerebral vasculitis isn't playing nicely, even though high dose Cyclophosphamide infusions in hospital in summer 2012 did give it a fi...
GPA sufferer seeking financial advice
Hi, I am 49 years old and have been battling with GPA for 2 and a half years now and despite all the steroids, 16 pulses cyclophosphamide, 8 ...
Lost in the world of Vasculitis
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admi...
Move from Methotrexate and Azathioprine onto Cyclophosphamide for Churg Strauss (E.G.P.A)
Well I came back from my rheumatologist appointment and after almost a year on Methotrexate and last 8 weeks with Azathioprine added in on to...
It was to treat churg strauss syndrome which has left me with nerve damage to my left foot and right hand which seems to have got a little wo...
Rituximab or Cyclophosphamide
Hi I have PF caused by mixed connective tissue disease. I have been on Mycophenelate Mofetil ( Cellcept ) for many years but my lung function...
Hi I'm about to start a 6 month course of intravenous cyclophosphamide has anyone had it ? Does it work ?...
Advice re azathioprine and alcohol please
Hi Looking for experiences and research/advice on alcohol and azathioprine please. Partner just completed 6 cycles of cyclophosphamide having...
Constant UTI’s 9 in 3 months!
Hey everyone , I’m genuinely at my wits end!!! I’m soo fed up!...
Lost sense of smell and taste
Not specifically for the smell problem but for the whole ENT areas of involvement affected by the vasculitis....
Hi, I've been recently diagnosed with Scleroderma sine scleroderma, mainly affecting my lungs, and treatment is an in infusion of cyclophosph...
Hi, I'm writing this for my dad he's had CLL 8 years and in the past year he's started developing symptoms ( swollen nodes in the neck ) his ...
First Post Cyclophosphamide to treat CNS Lupus/ Kidneys- Advice please?!
I have SLE and now Lupus Nephritis, I have had bad illness this year first sign of organ involvement in May when bloods showed my Kidneys wer...
On husband's behalf
Hi I'm new to the site and I'm posting on my husband's behalf. He began to be ill last Christmas, loss of appetite with stomach pain which we...
Early last year I was diagnosed with Endo which led to adhensions/fibroid and cyts on my left tube. I am now on zoladex injection for three m...
Son with Vasculiti Anca Associata with renal involvement
Hi I write from north of Italy. In March of this year the doctor told us that my son, who is 11 years old and 1/2, has an aggressive form of ...
Hello everyone I haven't posted in some time but I've been keeping up to date on the posts and the lovely encouragement and support shown to ...
Post op results advice.
I had this under general gyne and I had some endometriosis tissue and adhesions in my pouch of Douglas everywhere else looked fine. I have a ...
Rheumatoid Vasculitis: serious disease, difficult treatment.
My first post here. I've been battling Rheum....
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