Light Therapy for Parkinson’s Disease

[Bolt_Upright]

I'm not using light therapy, but somebody mentioned it to me again and I found this in depth page that pulls a LOT of light therapy information together in one place: apdaparkinson.org/article/l...

[Shorebirdsotherhalf]

Bolt, thank you for this post as I am curious about others who may be using light therapy. I am about 2 weeks in to infrared and near infrared cranial (coronet) therapy - wellred.com.au/.

I found Dr Hamilton et al to be very responsive to my questions prior to and post purchasing their products and genuinely eager to help. They even offer instructions on how to build your own device - which one of my Rock Steady Boxing friends has done. If anyone knows of a blog strictly centered around this topic please post. Bolt, your contributions to this site and insight/approach/awareness to PD and related disorders are greatly appreciated. All the best to you. Z

[jimcaster in reply to Shorebirdsotherhalf]

You may already know this, but Catherine Hamilton writes a blog dedicated to red light therapy.

redlightsonthebrain.blog/ab...

[Bolt_Upright in reply to jimcaster]

Thanks Jim!

[Shorebirdsotherhalf in reply to jimcaster]

Thanks Jim - I did not know this so hopefully it will help improve my attention to detail. Excuse me while my red face cools and I assure you it has nothing to do with the Coronet. Much appreciated.

[beehive23]

used it for couple years didnt do anything. hat pad pen etc etc but if you have $ you want to spend have at it! cheers!........hang tough

[Ghmac in reply to beehive23]

if you don't still use device are you interested in selling it?

[beehive23 in reply to Ghmac]

my mom uses it for her horses....i never had to buy it but its not mine. hang tough

[Sydney75]

Thanks!

[PDTom]

bmcneurol.biomedcentral.com...

[FightTheGoodFight]

In the spirit of sharing, I recently was diagnosed with PD in October, and as you can imagine, it was quite a shock. Since then I've been consumed with becoming knowledgeable on this affliction.

I've been using the Coronet Duo for about a month, along with several other treatment modalities which have various anecdotal support. Short answer - I think the Duo might be helping, See below for self assessment, but overall, I'm better symptom wise than 3 months ago. On the other hand, my wife is using it for her tinnitus, and so far, no improvement.

I can say my very minor movement symptoms (a tremor in my left lower arm) has improved. My constipation is better (although, that's probably a function of going vegan - I eat leafy greens like a damn horse). My mood and energy are good. My sense of smell is still non-existent. My speech varies, someday I feel thick and slow, but more often than not, I feel near normal verbally.

Overall, I'm feeling good about the (slow) rate of progression, or dare I say, regression.

It's impossible to say it's due to the Coronet, but it's certainly not hurting. For reference, I'm also

- exercise (both weights and HIIT)

- daily table tennis (exercise reaction time, eye tracking, focus)

- higher dose B1

- magic mushrooms (psilicybin)

- WIM HOF daily breathing exercises

- Sauna

- PBM (Coronet Duo)

I really appreciate this community; sad we're here, but find the knowledge the members have here a great resource.

Best,

Francis

[Bolt_Upright in reply to FightTheGoodFight]

Maybe you would like to add Broccoli Sprouts to your diet? Easy to grow and tasty! rbd-pd-protocols.blogspot.c...

[FightTheGoodFight in reply to Bolt_Upright]

Very interesting about the sprouts and Sulforaphane! I am looking into incorporating them into my PD regime. Thank you for the pointer!

[Bolt_Upright in reply to FightTheGoodFight]

You should also check out this Broccoli Tea group led by a scientist with PD: facebook.com/groups/6458767...

[Hidden]

Great post. Keep the light in your peripheral vision. Especially if you have early macular changes. If it feels visually uncomfortable adjust the position & distance of the light. Follow your instincts. Don’t override your instincts in order to comply with the instructions on the product. Cheers & thanks again :-))

[mhberman]

see what neuronic.Online can offer. There are quite a few reports is progress from folks with PD.

Marvin Berman

[Defiance]

I have used the Coroner twice a day for over a year and I am very pleased with the results. After using it for two weeks my horrible problem of not being able to fall asleep, stay asleep and get good deep sleep went away completely. I did not change anything else and had tried everything before my Coronet. I also am not sleepy during the day anymore.

I don’t think it did anything for any of my other symptoms, but just getting to be able to sleep well is a minor miracle!

[michelbekhazi in reply to Defiance]

Sorry Defiance but what is Coroner? Is it a medicine? couldn't find the word on the web. Many tks,

[Bolt_Upright in reply to michelbekhazi]

Coronet red light hat.

[macmiddle]

This is not a bad summary...but I think we should be much more excited about light therapy and how it can potentially stimulate the gut and then through that change the brain to produce more dopamine. Its completely drug-and surgery-free....and that works for me, as so much of PD is about taking more and more and more meds - all with quite serious side effects that no one really properly explains.

I think the best light therapy trial is the one mentioned on APDA link by Dr Ann Liebert in Adelaide, Australia in July 2021. It's published in BMC neurology journal. You can read more about the PDCare infrared laser at symbyxbiome.com . Its an approved device for parkinson's as the specific dose is really really important to get right or you may as well not try. The testimonial section is also great. they seem to publish all the good and not so good reviews. Im a believer and user. Improved my sleep and digestion -for starters after about 6 weeks of use in my case. Changed my life.