I believe that 50% of what experts know i... - Cure Parkinson's

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I believe that 50% of what experts know is 100% wrong

Bolt_Upright profile image
28 Replies

I believe that 50% of what experts know is 100% wrong, so if one is trying to cure an incurable condition, don't be afraid to color outside the lines a little.

I have a high school degree (but I did graduate in the upper two thirds of my class).

Edited to invite everybody to add your examples of where "expert advice" has changed 108 degrees.

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Bolt_Upright profile image
Bolt_Upright
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28 Replies
reedboat2 profile image
reedboat2

Bolt- you are an intelligent person. You like to read and do research. You’re trying to sort out the big puzzles out there. Keep up the good work. The world needs people like you.

Bolt_Upright profile image
Bolt_Upright in reply to reedboat2

Thank you John! I just include that caveat for legal reasons. No insecurity here :)

I made this post because I keep seeing papers and posts where what seems like a good idea is suddenly a terrible idea. For instance, I have Hashimoto's and if you go over to the HU Thyroid UK page healthunlocked.com/thyroiduk you will see half the posts quoting experts that we need to avoid Broccoli and then others that Broccoli is fine (I think it is fine).

This may be a good time to mention that I am reconsidering Berberine (I nixed it from my stack when I read a paper that it might be neurotoxic).

Always good to hear from you John.

dvoranel profile image
dvoranel in reply to Bolt_Upright

Hi Bolt, I just want to share that I have Hashimoto's too and Low Dose Naltrexone (LDN) has reduced TPOAb substantially for me.

Bolt_Upright profile image
Bolt_Upright in reply to dvoranel

Thank you so much Dvoranel! Low Dose Naltrexone and Hashimoto’s Medically reviewed and written by Izabella Wentz, PharmD, FASCP October 25, 2019 thyroidpharmacist.com/artic...

Did reducing TPOAb improve how you felt?

She has a number of other interesting posts that overlap with things I have tried for RBD/PD:

How Myo-inositol Can Improve Hashimoto’s Symptoms

The Best Probiotics for Hashimoto’s

Using S. boulardii for Hashimoto’s

Hashimoto’s and Graves’ Remission after Helicobacter Pylori Eradication

A new rabbit hole. Thanks!

Baca profile image
Baca

Bolt, I like the idea of their opinions not being 100 percent right!

Every one has an opinion some hold up better than others.

What interests me is why you think as you do? Defend your bold statement with the facts that caused you to state them.

Bolt_Upright profile image
Bolt_Upright in reply to Baca

I should have been keeping a list of all the times I have seen "science" do a 180. I won't defend my statement. I did mention I have a HS degree. Caveat Emptor.

park_bear profile image
park_bear in reply to Bolt_Upright

Here is one example where the experts should have known better. The trial was halted for futility after making Parkinson's patients worse:

healthunlocked.com/cure-par...

Here is another example that currently can affect Parkinson's patients:

healthunlocked.com/cure-par...

Add to the foregoing all the wrong advice out there to avoid supplementing vitamin B6 (it must be taken at a separate time from levodopa medication). What can happen if B6 is not supplemented:

karger.com/Article/Abstract...

The foregoing merely what immediately came to mind.

Bolt_Upright profile image
Bolt_Upright in reply to park_bear

Thank you PB!

Bolt_Upright profile image
Bolt_Upright in reply to Baca

Wait! I have a few:

1: Eating foods high in cholesterol causes high cholesterol (I does not!). How many millions of men were nagged not to eat meat and eggs due to this "medical" guidance?

2: Salt is bad for you (it is not).

3: Margarine.

4: High carb, low fat.

bassofspades profile image
bassofspades in reply to Bolt_Upright

I mostly agree with what you are saying, but Im not too sure about salt. Im not doctor or scientist, but I have seen theories about how table salt scores the insides of your arteries, causing damage, scar tissue and inflammation that leads to chronic cardiovascular disease. Sorry I dont have proper documentation on hand.

Aside from that, did you know that 84% of statistics are just made up?

(thats a joke, son!)

Bolt_Upright profile image
Bolt_Upright in reply to bassofspades

The think about salt is that too little is worse for you than too much. And I am not convince too much is bad at all. I read about this 15 years ago. People that ingested less than the daily recommended limit of salt actually had a higher overall mortality rate. Based on a quick Google, it does not seem to have changed: Sodium intake, life expectancy, and all-cause mortality ncbi.nlm.nih.gov/pmc/articl...

Our observation of sodium intake correlating positively with life expectancy and inversely with all-cause mortality worldwide and in high-income countries argues against dietary sodium intake being a culprit of curtailing life span or a risk factor for premature death. These data are observational and should not be used as a base for nutritional interventions.

park_bear profile image
park_bear in reply to Bolt_Upright

Exercise-Associated Hyponatremia [Low blood serum sodium]: 2017 Update

frontiersin.org/articles/10...

"The tragic deaths of two female charity marathon runners in 2003 fully exposed this fatal complication of exercise to sports medicine personnel as well as the lay public...Over the past decade, EAH deaths have been confirmed in the lay press in high school football players following practice, a soldier on the first day of Ranger training, a policeman participating in a 19 km bike ride, a college student performing calisthenics for a fraternity, a bushwalker, an ironman triathlete, and a canoeist during an ultradistance race. Additionally, a highly fit solider died during a 50 km training march with both hyponatremic encephalopathy and exertional heat stroke. The literature also reports symptomatic cases of EAH after long distance swimming, mountain cycling, yoga, 2 h of weightlifting plus tennis,

Overconsumption of Hypotonic [Low-sodium] Fluids

It is likely that ... inappropriate hydration recommendations (that are often taken to the extreme such as recommendations to “drink as much as possible”) account for this excessive fluid intake ... For example, only 7.3% of 110 web sites discussed that fluid intake should be based upon thirst, and the potential risk of hyponatremia from overhydration was noted by less than half the websites. Dissemination of more appropriate hydration guidelines is critical…

Drink according to thirst. Because fluid losses through sweat and urine are highly dynamic and variable across individuals participating in a variety of outdoor activities, recommending fixed ranges of fluid intake is not appropriate. The most individualized hydration strategy before, during, and immediately following exercise is to drink fluids when thirsty."

Also, salt food according to taste. Our bodies do let us know what nutrients it needs.

Bolt_Upright profile image
Bolt_Upright in reply to park_bear

Great post. Remember this story?

Jennifer Strange, a 28-year-old Rancho Cordova, Calif. mother of three, died of acute water intoxication in January, 2007 after the challenge to see which contestant could drink the most water without using the restroom. A Nintendo Wii video game was the prize for winning the "Hold Your Wee for a Wii" contest.

insiderexclusive.com/radios...

Boscoejean profile image
Boscoejean in reply to bassofspades

so I looked up salt and there can be issues: "But too much sodium in the diet can lead to high blood pressure, heart disease, and stroke. It can also cause calcium losses, some of which may be pulled from bone. Most Americans consume at least 1.5 teaspoons of salt per day, or about 3400 mg of sodium, which contains far more than our bodies need."

That said my mom was hospitalized several times with low sodium. The doctor decided that she could use salt on her oatmeal and other food. She did not use it in excess but she did not have to go to the hospital for low sodium after she was allowed to use salt.

What medicines can cause low sodium levels?

Medications that increase your risk of hyponatremia include thiazide diuretics as well as some antidepressants and pain medications

Baca profile image
Baca in reply to Bolt_Upright

WE ARE ON THE SAME PAGE!

I don’t use margarine at all BUTTER IS BETTER!

134A profile image
134A in reply to Baca

margarine is NOT a food! It was originally developed to fatten cattle .

park_bear profile image
park_bear in reply to Bolt_Upright

Eggs and cholesterol have received a bad rap due to poorly done studies. In the US, bacon consumption is highly correlated with egg consumption. It turns out that high temperature cooking - frying - of bacon is the culprit that creates toxic compounds that cause cardiovascular disease. Details in my analysis posted here:

A Tale Of Two Studies Leads To A Deeper Understanding Of Cardiovascular Disease

tinyurl.com/y6agl45j

bassofspades profile image
bassofspades in reply to park_bear

Im suspicious that the cholesterol studies somehow link to lipitor sales in nefarious ways. Meanwhile, there's no data that cholesterol lowering drugs reduce the occurrence of heart attacks and strokes. And in my personal experience in the cardiac cath lab , I've never seen a patient with high cholesterol levels as their primary or only risk factor.

Bolt_Upright profile image
Bolt_Upright in reply to bassofspades

Bravo! My doctor tried to put me on statins 10 years ago. I took a pass.

Ashti profile image
Ashti in reply to Bolt_Upright

I follow NutritionFacts.org since they go through the peer-reviewed nutrition research, evaluate the quality of the research, and summarize, while listing all the clickable references cited. An invaluable resource;I’ve found nothing that comes close when it comes to evaluating the nutrition science. (Let me know if you have found a more thorough resource.) The research only supports 1 of the 4 points listed.

1) Eat beans, lentils, whole grains, a wide variety of vegetables (esp. greens and cruciferous) and fruit (esp. berries), nuts,seeds, and spices. The lower the meat and eggs (and dairy) consumption the better. A whole food plant based diet is the only diet ever shown to halt and in some cases reverse heart disease (which is a major killer in our society). Remember doctors have very little nutrition training - look at the science.

2.) Aim for very low added salt.

3.) Don’t choose between margarine and butter - avoid them both and reduce/avoid oils (choose nuts, seeds, and avocado instead) - the exception Omega3 oil from algae.

4.) Aim for High carbs from intact whole grains and legumes and other fruits and vegetables; low fat by avoiding oils.

Maybe not what people want to hear, but the bulk of the well designed studies clearly point in this direction and have for decades - it is not new. (Though the food industry’s spin has added to the confusion, as have fad diet promoters). Have more faith in science (which involves evaluating the quality of the research and looking at the bulk of the evidence) instead of opinion (especially if only supported by one or two questionable studies).

Yes there are lots of conflicting opinions on nutrition, but for the most part, they are not due to unclear evidence.

ddmagee1 profile image
ddmagee1

You have common sense! A person can have numerous college degrees, and yet, have limited common sense! I’ll take common sense any ole day! It’s great if a well educated person, also, has good common sense, and that’s when a lot of good can be accomplished! Anyway, when one has PD, one has a great deal of insight, into the insidious nature, of dealing with this most complicated ailment!

Bolt_Upright profile image
Bolt_Upright in reply to ddmagee1

Great point. Plus, we are very motivated investigators.

MarionP profile image
MarionP

Did you know that over 90% of people who die consumed food in the previous fortnight?

bassofspades profile image
bassofspades in reply to MarionP

100% of divorces occur between couples who are married! Wow! Wedding cake is bad!

JJAJJ profile image
JJAJJ

I agree x

.
Bolt_Upright profile image
Bolt_Upright in reply to JJAJJ

Great quotes.

CRMACK1948 profile image
CRMACK1948

Up to early in the last century good up to date medical practice used leeches to take blood out of you to relieve multitudes of illnesses.Now they pump it into you instead,…

Bolt_Upright profile image
Bolt_Upright in reply to CRMACK1948

And actually, leech therapy has come 360 degrees. Leech therapy, mocked for so long, is now back in fashion.

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