Important question: Reduction of B1 over ... - Cure Parkinson's

Cure Parkinson's

25,506 members26,822 posts

Important question: Reduction of B1 over time is inevitable, but how far does this go?

Godourtruehealer profile image

I'm trying to help my mother with PD. This is one of the questions I noted down. I couldn't find any answer on this particular question yet.

High dose of vitamin B1 (thiamine):

If a person takes a little too much, a temporary worsening of symptoms happens. According to Dr Constantini's protocol; this are symptoms of an overdose.

In this particular situation, one should take a break and then reduce or halve the dose.

When he/she has found the right dose and experiences improvement, then possibly after a month or so a worsening of symptoms may occur again. He/she should take another break and then reduce the dosage. So one takes less and less over a longer period of time.

But how far does this process go? Does this mean that there will be a time, after many reductions, when B1 can no longer?

Written by
Godourtruehealer profile image
Godourtruehealer
To view profiles and participate in discussions please or .
Read more about...
10 Replies
chartist profile image
chartist

No, the object is to reduce the dose until no overdose symptoms are seen and then you know the dose is very close or optimal if you are getting symptom improvement and a good response on the pull test.

You may find these helpful :

healthunlocked.com/cure-par...

healthunlocked.com/cure-par...

healthunlocked.com/cure-par...

Art

Godourtruehealer profile image
Godourtruehealer in reply to chartist

Thank you for your answer Art.

I mean after you find the optimal dose do you still need to reduce b1 over time?

For example, a member of this forum said that she found the optimal dose or close to it (with symptom improvement) and still had to reduce her dose after a period of time (a month or so). And this seems to be a continous process..

Can someone shed light on this?



chartist profile image
chartist in reply to Godourtruehealer

It varies by individual. The answer to your question is in the first and second links I posted.

Art

park_bear profile image
park_bear in reply to Godourtruehealer

Personally I have been taking the same dose for years

Dap1948 profile image
Dap1948

I have gone from 100mg sublingual B1 daily to a current dose of 25mg every fifth day. I think this is a twentieth of my original dose. I have not planned to reduce. I’ve been guided by recognising worsening symptoms as overdose and adjusting down. I have maintained all the improvements that B1 brought me by doing this. But hey, we’re all experimenting and trialling. I’m in my 6th year of B1 but that isn’t long for us to gain information about long term B1 therapy use. I believe Roy P is taking a different route. When his symptoms worsen he increases his B1 dose. However, I think I’m right in saying that his symptoms have worsened, he has reported his tremor is worse, and his medication dose has increased. Roy doesn’t believe in the possibility of overdose.

dadcor profile image
dadcor

Nobody can answer categorically. We are so different.. This therapy is just experimental and not supported by real clinical trials. So Dap is right, at this stage simply experimenting and trialing..

M-o-ggy profile image
M-o-ggy

Hi there. If a person reacts it might be that the body needs extra minerals for the B1 to work

Gioc profile image
Gioc in reply to M-o-ggy

I agree, also not everything is due to b1.

Gcf51 profile image
Gcf51 in reply to M-o-ggy

I wouldn't think anyone would argue with lower dose, try adding minerals and after stable try to increase B1.

ForViolet profile image
ForViolet

"But how far does this process go? Does this mean that there will be a time, after many reductions, when B1 can no longer?"

I don't think so. From my reading of Dr C, I don't think he was suggesting that a patient would decrease and get to zero.

In my experience, lowering my husband's dose didn't help. We went from 2500mg to 500mg, slowly, and he got worse all along. I slowly raised his dose to 3000mg and he's improved.

You may or may not need to decrease your Mom's dose.

Glad chartist posted links to answer your question.

You may also like...

Question for (B1)ers: Does B1 eliminate Tremor?

I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I...

DBS levadopa challenge. Glad its over, but it does raise a question.

missed that dose, the next one which I'd take at 7am and a third one which I'd take normally take...

B1 and Vibrating gloves combination

far with taking B1 HDT together with the vibrating gloves? Are they compatible or would one need to...

I need help with tips on how to improve weakness

its PD. My question now is regarding one specific symptom. She has muscle weakness, she can...

How much B1 as TTFD does this contain? Can Anybody Read Japanese?

I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I...