Dystonic storms: if this site blocks the... - Cure Parkinson's

Cure Parkinson's

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Dystonic storms

beehive23 profile image

if this site blocks the real pd issues and only allos the earlyy stage stuff how do thosre of us wiith late stage get advice?

9 Replies

That is an accusation with no explanation. How do you know this site blocks later stage ‘stuff’. If you mean your video isnt working, no it is not but it is usually the posters problem. Do you have proof the organisation blocked it. I wonder for what reason.

beehive23 profile image
beehive23 in reply to Hikoi

i say that because they have done it before....

beehive23 profile image
beehive23 in reply to beehive23

people complained because it sscared them...so they warned me and scrubbed my posts and blocked this same video, i just forgot and have been having storms again and gettting desperate for advice from folks that have this late stage issue....

beehive23 profile image
beehive23 in reply to beehive23

if anyone has dystonic storms let me know and i can private meessage you the link which shows exactly what i go through and i need advice please. thank you.

HekateMoon profile image
HekateMoon in reply to beehive23

Hi Beehive. What are dystonic storms? I dont really know what stage im in but would like to be informed. Grateful you are there.

House2 profile image
House2 in reply to beehive23

I'd like the link

beehive23 profile image
beehive23 in reply to Hikoi

thank you !!!!! your awesome....

clinicalmovementdisorders.b...

a bit like hubby before we reduced levodopa. Are you sure you aren’t over medicated? Have you tried a little clonazapam . It seemed to help too.

I would like to see the video, I think my husband has something similar or sounding similar.Thx Mel

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