New invention! "Vibrating gloves" counteract PD symptoms!

[PDWarrior1900]

youtube.com/watch?v=4KkkktL...(Not working as expected?)

stay strong everyone!

a MIRACLE is around the corner!

[chartist]

Is this the correct link?

youtu.be/4KkkktLnRHo(Not working as expected?)

Art

[PDWarrior1900 in reply to chartist]

yes

[chartist in reply to PDWarrior1900]

Maybe you can copy it and replace it in your post.

Art

[PDWarrior1900 in reply to chartist]

youtu.be/4KkkktLnRHo(Not working as expected?)

[PDWarrior1900 in reply to PDWarrior1900]

here's more links

youtube.com/watch?v=4KkkktL...(Not working as expected?)

scopeblog.stanford.edu/2021...

[chartist in reply to PDWarrior1900]

When copying videos from YouTube,

you will notice that under the video, is a tab that says "Share". Left click on that tab and a small window will open. In that window, you will see a line with the word "Copy" at the end of the line. Left click the word "Copy". Now you have the correct link to paste into your post. Now go to your post and when you get to the place in your post where you want to drop the link, right click your mouse and a drop down menu will open. From that menu select the word "Paste" and left click it with your mouse. The correct link should now be in your post.

Art

[John_morris71 in reply to chartist]

Just go to the address bar, right click and copy the address; then choose where you want to paste and right click to paste.

[chartist in reply to John_morris71]

Sometimes when you do that, the video does not copy onto HU. I think that is what PDWarrior was doing, because it just gave a blank screen.

Art

[PDWarrior1900 in reply to chartist]

thanks!

[Highlander63 in reply to chartist]

Thank you for explaining what steps to take in order to link a video on this site.

[John_morris71 in reply to chartist]

One more

youtube.com/watch?v=dSjv6m4...(Not working as expected?)

[PDWarrior1900 in reply to John_morris71]

thanks

[John_morris71 in reply to PDWarrior1900]

Many Thanks to you for posting this exciting video/article.

[WinnieThePoo]

This sounds seriously exciting - if it delivers at the end of the trial

For those struggling with the link, copy and paste it into a browser window. It won't run in a post as an embedded link - just copy and paste the link address to another browser window. Copy the link from the summary (ie before you click on the post to open it - when it appears as an embedded window - which won't work)

[PDWarrior1900 in reply to WinnieThePoo]

youtu.be/4KkkktLnRHo(Not working as expected?)

[bibsie]

If only.......

Is Stanford the only test site?

[PDWarrior1900 in reply to bibsie]

i don't know

[park_bear in reply to bibsie]

Yes. It is a complicated technology being closely monitored by the investigators.

[John_morris71 in reply to bibsie]

clinicaltrials.gov/ct2/show...

Contacts

Contact: Kristina J Pfeifer 6507043568 [e-mail]

Locations

United States, California

Stanford University Recruiting

Stanford, California, United States, 94305

Contact: Peter Tass, MD PhD

Contact: Kristina J Pfeifer [e-mail]

Principal Investigator: Peter Tass, MD PhD

Sponsors and Collaborators

Stanford University

Synergic Medical Technologies, Inc.

Investigators

Principal Investigator: Peter Tass, MD PhD Stanford University

*************************************************************************************

A trial already completed ( for safety/tolerability). Has Results - click results tab

clinicaltrials.gov/ct2/show...

[park_bear in reply to John_morris71]

Looking for 30 participants this time. Some of the eligibility criteria are restrictive:

Diagnosis of idiopathic Parkinson's disease - This would seem to exclude genetic cause

Bilateral impairment, as defined as Hoehn & Yahr Stages II-IV in the on-medication state

MDS-UPDRS III motor improvement greater than or equal to 30% when on medication compared to when off medication.

[keri10 in reply to park_bear]

Looks like they are no longer recruiting. I would think they would need a larger scale study to get FDA approval. Lord knows insurance probably wouldn't cover this at such a small scale.

[park_bear in reply to keri10]

Oh you are right they are no longer recruiting. Also correct this is still a small trial and they are not to the point of seeking FDA approval.

[keri10 in reply to park_bear]

It is really cool though. The video of the man walking was very impressive.

[TL500 in reply to park_bear]

Do you mean when meds is on it works (can function) 30% or greater than when meds is off?

[park_bear in reply to TL500]

No. I was merely citing their eligibility criteria.

[TL500 in reply to park_bear]

Can you explain what does the criteria wants please, I don't quite understand about the 30% etc . Thanks

[park_bear in reply to TL500]

You were right about what it meant. Just those words did not come from me.

[TL500 in reply to park_bear]

That sounds like very low function, right?

[park_bear in reply to TL500]

I do not really know but there is so much variation in this condition I would not make that generalization.

[TL500 in reply to park_bear]

I mean the person doesn't need to have high function when meds is on? Like in advance case ? Only have 30% function, not nearly normal function, even when meds is on? I don't know how to explain to you what I mean so you can understand my question.

[TL500 in reply to park_bear]

Or is it 70% function?

[park_bear in reply to TL500]

None of the above. It only means that the numerical MDS-UPDRS III motor score improves by 30 percent with medication. Nothing more and nothing less. I have nothing more to say on this matter.

[TL500 in reply to park_bear]

Thanks

[Boscoejean in reply to John_morris71]

clinicaltrials.gov/ct2/show...

[PDWarrior1900]

youtu.be/4KkkktLnRHo(Not working as expected?)

[Michel0220]

Thank you very much PD Warrior for this interesting post. I have been using a vibrating hand massager for quite a while now with good results. This is a very poor comparison to the item that is being shown in the video but here are the details for anyone who would be interested.

Electric Hand Massager with... amazon.co.uk/dp/B08DRTTTVW?...

[slimweiss in reply to Michel0220]

They don't ship to the US.

[Michel0220 in reply to slimweiss]

They seem to have a very similar model on Amazon USA. Please see below: amazon.com/gp/aw/d/B07QNFWY...

[PDWarrior1900 in reply to Michel0220]

i have one of those hand massagers -- it feels great -- but it's not for my PD ....

[Michel0220 in reply to PDWarrior1900]

I have a lot of rigidity in my hands and it helps with “passive mobilisation” in addition to my daily hand exercises. It is no miracle cure but I find that it helps me in the long run.

[slimweiss in reply to Michel0220]

Oh cool. Thanks. I will check it out.

[Boscoejean]

why do all the clinical trials that are testing things for remediation want the person to be on levodopa or something similar? "Participants must be on stable dose of dopaminergic medication for 1 month prior to baseline visit."

[WinnieThePoo in reply to Boscoejean]

They don't necessarily want you to be on levadopa. They want whatever you are on to be a stable dose. They can't have you increasing or decreasing your other medication or they won't know whether their trial product is causing changes they observe or whether changes in other medication are responsible

[PDWarrior1900]

try one of those $10 hand squeezers... works for me

[Bianhua in reply to PDWarrior1900]

What are those? thank you

[PDWarrior1900 in reply to Bianhua]

there's dozens to choose from here:

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amazon.com/s?k=hand+exercis...

[johntPM]

This technology is interesting, but I think it will be difficult to get working.

It reminds me of the Emma wrist band. This was featured in a BBC programme, broadcast about 6 years ago. Small vibrating motors were fixed to different points on the strap. These motors were programmed to fire at different times.

See

bbc.co.uk/news/av/magazine-...

This was discussed on the Neurotalk forum. See,

neurotalk.org/parkinson-s-d...

Some people including myself tried to build one. A few prototypes were built. But, as far as I remember, no one could find a generally successful setting.

[kevowpd in reply to johntPM]

I think that device (Emma) had narrow application and required a lot of patient specific tweaking. At which point it is quite dollar intensive, at least when Microsoft aint providing the labour gratis. And how long is it good for before it needs re tweaking? What is the demand like at 10 grand a pop?

The casing on the gyrogear glove is much bigger. Which suggests its going to be more effective on more advanced PD tremor. Maybe.

gyrogear.co/

[PDWarrior1900 in reply to kevowpd]

that link is dead

[PDWarrior1900 in reply to johntPM]

thanks for the feedback

[PDWarrior1900 in reply to johntPM]

GREAT POST and THANK YOU!

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EVERYBODY! check out the HAPPY video from jOHNntPM

I've got HAPPY tears, too!

WHERE THE HELL IS THIS DEVICE FOR THE REST OF US???

Click on the link to see the video, the image is not clickable

bbc.com/news/av/magazine-38...

happy lady

[WinnieThePoo in reply to PDWarrior1900]

I don't want to rain on your parade, but for those of us who've been here a while, that documentary was the year of my diagnosis 2018. There has been no development of the Emma watch. Emma developed a neck problem, not directly related to PD, and runs a website about her experiences with young onset PD. She is a very positive and inspirational lady. This was a TED talk that she did a year or so after the Emma watch documentaryyoutu.be/Hs-vPqfsO0Q(Not working as expected?)

[PDWarrior1900 in reply to WinnieThePoo]

thanks for the post "Mr" Winnie

[PDWarrior1900 in reply to johntPM]

there's a forum on neurotalk.org about these types of devices...

and the posts go back almost... TEN (fricken!) YEARS and NOBODY on PLANET EARTH has commercialized this (besides CUE1, etc which i haven't seen substantive results)???

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neurotalk.org/parkinson-s-d...