Mass General/McLean Hospital/Harvard Researchers and Doctors Interviewed

[jimcaster]

Several months ago, news broke about a successful stem cell trial in a patient in Massachusetts. As I recall, there were some ethical concerns about the trial because the patient essentially funded all or part of the experiment. On the other hand, it appears to have been safe and it contributed greatly to our understanding of how similar trials can be conducted in the future. I am encouraged by these researchers and doctors, but am very frustrated by the pace of progress.

youtu.be/hGRIfzwp8Qc(Not working as expected?)

[jimcaster]

Another video presentation by one of the doctors interviewed.

youtu.be/fkoNkIPgehM(Not working as expected?)

[Drummer67]

Thanks for this Jim!! I too share your frustration at the pace of these potential game changing procedures. The stem cell Dr at UW here in Madison seems Optimistic on the future of this procedure. Once again it is a matter of when!

[kevowpd]

Thanks Jim.

Michel0220 , George 'Doc' Lopez would make a fascinating guest for 'No silver bullet' if he was willing to do it. I'd certainly love to hear from him as his own description of his perception of the success or otherwise of the treatment is not available anywhere else (that i can find)

[Michel0220 in reply to kevowpd]

Thank you very much kevowpd. I will look into this.

[WinnieThePoo]

Yeah , um , but...

Interesting. This is the big hope for a lot of us, and it needed a kick in the pants to get it moving (ie dodgy ethical shortcut). But no dates. No program. Just a description of the obvious - they are going to need FDA approval and they are going to design an appropriate trial (no dates)

I remember shortly after diagnosis watching a Jeanne Loring interview and thinking - "OK , these trials will take time, it won't be approaching a clinical treatment for at least 5 years, but at least its going to start soon" 4 years later, and I dare say she is as frustrated as we are, but Lorings initial human trial hasn't so much as announced a start date.

Did that video actually tell us anything? Except that waiting for stem cells is a frustrating hobby

[jimcaster in reply to WinnieThePoo]

We're on the same page. It's soooo frustrating to feel like a game changer is so close, yet so far away.