Hello everyone. This is my first post to your wonderful site. My mom age 68 was diagnosed 10 months ago with PD by datscan. She had symptoms at least 5 years ago such as sleep disorders (screaming every night),slow walking, and imbalance. Last year the symptoms got worsed plus she had frozen arm , mask face, choking when drinking water, confusion. No tremor though. So we went to a neurologist and started her with madopar 200/50 1 pill a day dividend at 3. She didn't see any difference so the Dr increase it to 2 pills then 3 and now 4 pills a day. From the above symptoms mask face and the confusion got better. The gait and balance got worsed plus had headaches and brain fog probably from madopar. The Dr says that by now she should be able to walk normal with this dose but this never happened.Is common on pwp or my mom is the exception?I was very frustrated so l start to look for other treatments.
Then two months ago I read at this site about B1 HTD treatment and I started my mom August 1 with 500mg B1 solgar.
Fist week improvements: brain fog gone and she felt much better. 2nd week raised at 1000 mg 3rd week 2000mg.Then she got jittery and resume at 1000mg after a week of. Improvements by now: The sleep improved 95% no more screaming, swallowing improved 90%,micrografia improved by 30%, she can get up much easier now. She doesn't have any improvement in balance yet which is the main problem.Still trying to find the right dose as per Dr.Constantini.
I wonder if someone has same experience with madopar and B1. Thank you