I need advice from those who have been through this but I’m also having a very hard time with anxiety and depression making facing the reality of my situation very difficult. I’m a planner by nature and having a new PD diagnosis makes planning the future very emotionally difficult.
I am 45, married with two school age children. I am new to knowing I have PD. First I dove head first in to researching what I can do to protect my health as much as possible. I am so grateful to have learned so much from this forum; the supplements, medication info, the exercise, etc etc. I think I have pretty much maxed out on all that until new things are discovered and shared. implementing lifestyle changes and modifications felt proactive and has helped me cope with this new reality but now, with nothing left to implement, I’m forced to face reality. This is it. I have Parkinson’s. I don’t know how long I will be functional for, how long until traveling will be too difficult, how long before I need help with activities of daily living, etc etc.
I’m writing to ask if you can please share how you have prioritized your time post diagnosis and if in hindsight what you would do different? I’m attempting to get an approximation for how much longer I have to do things.
Thank you for reading this. I’m grateful for your help.