Red Light Therapy - Feedback/discussion - Cure Parkinson's

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Red Light Therapy - Feedback/discussion

John_morris71 profile image
82 Replies

Have been doing Red Light Therapy for my mother since 45 days. Make her wear a hat fitted with red light (670nm wavelength) for 20 minutes, immediately followed by near infra-red light (850nm wavelength) for another 20 minutes, totally for 40 minutes in a session - once in the morning and then once at night ( for a total of 80 minutes in a day)

Have seen real improvement in her walking and gait, overall mood and even appreciable reduction in tremor. Her bad days are no longer bad, but moving towards the 'good-day' end of the spectrum (yes she has alternating 'whole' good days - where she is almost normal, but for minor tremors during her off period, and 'whole' bad days - where she has really bad mood, lot of tremors during the day).

Was wondering if anyone is getting Red Light therapy and has any input to share

Note: Also started giving her Silica water for daily consmption (home made) the day she started red light therapy.

82 Replies
parkie13 profile image
parkie13

Wonderful, can you include directions for making one of those and photos. Thank you

John_morris71 profile image
John_morris71 in reply to parkie13

Website

redlightsonthebrain.blog/ca...

Instructions for making the hat

redlightsonthebrain.files.w...

Video showing making the hat.

youtube.com/embed/HPTacS2CVzc

parkie13 profile image
parkie13 in reply to John_morris71

Thank you. Will take a look.

Saig profile image
Saig in reply to parkie13

wellred.com.au

rhyspeace12 profile image
rhyspeace12

My husband who has now passed, used the Vielight 810 and it worked really well for him. It brought a lot of zest back into his life. I have a long letter here on this site that I wrote about it at the time. I use his old one now, hoping it will keep my brain in good shape longer.

Getz profile image
Getz

Mate, I have been using a helmet with both those frequencies and have had substantial improvement. Mind you I try so much that I can't say improvement is solely due to the helmet. I bought mine from the men's shed in Launceston, Tasmania Australia for around $300au.

John_morris71 profile image
John_morris71 in reply to Getz

Glad to know that there is improvement. !! Yes, read about a site (Australia) where they sell these helmets ( now costs close to 600 bucks ?). I built 2 hats for less than 100 dollars, including the light strips.

Getz profile image
Getz in reply to John_morris71

Dorset Community Men's Shed

February 12 ·

The humble item Merv is holding in this picture is called a Red Light Helmet. It’s used to treat Parkinson’s Disease.

The Dorset Community Men's Shed started making them last year and they have now sold nearly 700 to 16 different countries.

People have reported reductions in tremors, regained fine motor movements, regained mobility, regained smell, cessation of tinnitus among many of the benefits from this wonderful invention.

The Shed sells them for $300 each and you can place your orders with Merv at mrc777@bigpond.com

Read more here google.com.au/a…/amp.abc.ne...

parkie13 profile image
parkie13 in reply to Getz

Can't open.

Getz profile image
Getz in reply to parkie13

I'm sorry, after posting, I couldn't open the google link either, but at least the contact details are there for the men's shed. Try this one.

amp.abc.net.au/article/1083...

parkie13 profile image
parkie13 in reply to Getz

Thank you

in reply to Getz

your link does not work .... not a good sign.... hmmmm

Lamas79 profile image
Lamas79 in reply to John_morris71

Where you buy the ligth strips?

John_morris71 profile image
John_morris71 in reply to Lamas79

Purchased online.

see one of my replies for details.

janemadison profile image
janemadison in reply to John_morris71

Could you make one for my husband? Please reply to jane@uniqueshoppes.com

parkie13 profile image
parkie13 in reply to janemadison

Perhaps we can find something similar on eBay. in couple different searches I found some interesting items.

Search number one.

Red light 225 LED panel

Search number 2

LED infrared hair growth helmet. They also have caps.

The panel has both 600 and 800 infrared LED lights. In the cap or the helmet they only have in the 600 LED lights. I think you could always hold the panel above your head and behind your head and use it that way. The panels are inexpensive and they can be used till you can get a proper head gear.

janemadison profile image
janemadison in reply to parkie13

Thank You

Dholplayer profile image
Dholplayer

Where did you get the hat from

John_morris71 profile image
John_morris71 in reply to Dholplayer

Made it myself - there is a video and also instructions.

Vik38 profile image
Vik38

Very interesting. A new project to try. Looks a little fiddly to make, do you think a light shade frame would be ok?

John_morris71 profile image
John_morris71 in reply to Vik38

Would be good; I know / read that some one built one out of a light shade. But the wire mesh is better as those slots (1/2 inch) allow light to pass nicely and also provide the support to hold the light strip.

Grumpy77 profile image
Grumpy77

"and 'whole' bad days - where she has really bad mood, lot of tremors during the day"

Does this mean the red light therapy is also responsible for creating whole bad days, as you described. If so I wonder if the whole good days and whole bad days cancel out each other and the overall effect of the redlight therapy is not necessarily a positive one but rather a neutral one

John_morris71 profile image
John_morris71 in reply to Grumpy77

No, she had the good day / bad day pattern since 3 years, long before using the light. It has got nothing to do with the red light - only that it has improved quite a bit since using the light.

agntorange profile image
agntorange

I use it every day and would not be without it. It literally helps with everything. lifegivingstore.com/store/O...

John_morris71 profile image
John_morris71 in reply to agntorange

Wonderful to get such positive feedback ! Depending solely on doctors is woefully inadequate.

Vik38 profile image
Vik38

Am now trying to find the led light strip ! L9ve the idea !!!

John_morris71 profile image
John_morris71 in reply to Vik38

Make sure you get the light strips that are 5 feet in length ( in the form of a reel). If you do not get 670nm (deep red) then even 660nm is OK; same goes for 810nm (get 850nm instead - both are still 'near infra red'). Note that the near infra red is hardly visible; only dimly visible in the dark, if you really want to see. So do not think that since it does not light up, the light strip does not work ( it heats up a little). Worth trying and hopefully it helps, even as there is no guarantee.

Getz profile image
Getz in reply to John_morris71

Try turning your mobile camera on and the lights will be seen. Don't ask me why.

bigl62 profile image
bigl62

vielight neuro gamma I tried. But it didn't work

in reply to bigl62

thank you very much for that feedback... can you please be more precise? did you use it daily? how many sessions each day? how long were the sessions? and... did they actually refund you 80%?

bigl62 profile image
bigl62 in reply to

I tried to get a refund but I was 10days beyond the deadline. I used it as prescribed for 30 to 40. Days with no symptomatic improvement...got good sleep only..

in reply to bigl62

thanks for the reply -- and 'good sleep' is a blessing in itself -- stay strong!

in reply to bigl62

would you like to sell it? please email me if you do ... gbender2928 at gmail.com - thanks

billybobAK profile image
billybobAK

Off hand do you know the wattage of your light hats? Does your mom take any carbo/leveo dopa?

John_morris71 profile image
John_morris71 in reply to billybobAK

She still takes the same dose of Carbo/Levo dopa ( 25/100 : 1, 1.5, 1.5, 1) - have not yet made any changes. Will wait for a few more weeks before deciding on reducing the current dose; May go ahead and do a 1,1,1,1 which is a 20% reduction.

As far as wattage is concerned, I do not recollect exactly the details, but use a DC Power Adapter that has 12V, 5 amps specification. Of course you could calculate the wattage knowing these 2 parameters. (similar to the one you would use on a laptop) - some laptops have 12V or 20V and 3 amps or 5 Amps ; I am going by the suggestion of STRICTLY sticking to 12 V and prefer 5 amps to 3 amps current, as the higher amps can handle the power needs of the 5 feet long LEDs Strip safely, without issues.

pdwd profile image
pdwd in reply to John_morris71

Can you say where you purchased your led strips?

John_morris71 profile image
John_morris71 in reply to pdwd

Purchased online.

Below are some useful links. Please make sure you double check and order the right product before ordering. (can get confusing at times as there are a lot of products.)

bestledstrip.com/12v-red-le...

icreatingdirect.com/product...

pdwd profile image
pdwd in reply to John_morris71

Thank you. I ordered the 670 and 810 from icreating in July and am still waiting long passed the promised delivery date. They have been non-responsive to all inquiries. I spoke with a very nice man at your other suggestion; they do not currently have the wavelength, but he offered to search his suppliers, which I appreciate.

John_morris71 profile image
John_morris71 in reply to pdwd

It takes time as it comes from China. May take almost 2 months as in my case. You may get the tracking number, but it will be dormant for some time, before there are updates.

pdwd profile image
pdwd in reply to John_morris71

Good to know, thanks.

in reply to John_morris71

thank you for the links!

John_morris71 profile image
John_morris71 in reply to billybobAK

Reduced my mother's dosage of Levadopa by 20% ( 4 tablets a day now - 1,1,1,1 instead of 5 - 1,1,5,1,5,1). Seems to be doing as good, after a week of reduced dosage.

MarionP profile image
MarionP

Another interesting topic...How do you make the silica water? Very curious about it. As in, detailed enough to be a recipe one could follow.

MarionP profile image
MarionP

Interesting, had not heard about this before. Is this light process supposed to be some sort of placebo, or what is the mechanism/route believed to be, and how did it come about to be thought of and tried in the first place?

John_morris71 profile image
John_morris71 in reply to MarionP

ncbi.nlm.nih.gov/pmc/articl...

MarionP profile image
MarionP

Another interesting part of the topic...How do you make the silica water? Very curious about it. As in, detailed enough to be a recipe one could follow.

parkie13 profile image
parkie13 in reply to MarionP

Fiji bottled water is full of silica.

John_morris71 profile image
John_morris71 in reply to parkie13

Yes I am aware. But it costs a lot (2 to 3 bucks ? per bottle) compared to a few cents if made at home. Once you have the materials, then it is not difficult at all.

parkie13 profile image
parkie13 in reply to John_morris71

Yes, I watched the video on how to make it. And yes Fiji water is very expensive. Years ago now, I had a hair analysis done and I am full of aluminum. I have no idea how I got it.

John_morris71 profile image
John_morris71 in reply to MarionP

Please check out link below ( has the details of making Silica Water, also has details of where you can buy all the ingredients, including the measuring spoon he prefers - under the 'Ordering Information'). The guy is a Ph.D from Harvard and has you tube videos too. Note that this is mainly to get rid of any Aluminum toxicity.

prevent-alzheimers-autism-s...

Video (link is also on the website above)

youtu.be/po8IuIXjCME

MarionP profile image
MarionP in reply to John_morris71

Excellent, thanks! Not about to "spring" for all that Fiji water!! Also since so many cookware (pans especially) degrade aluminum into your food (takes almost nothing to wear out those cheap teflon-type surfaces with as little as a single good burn) was already thinking about a less-than-pharmaceutical chelating solution for my mate who is working on a progressive dementia anyway and tends to burn through pans without realizing it (getting those horribly destructive flourine- and heat-fused dense carbons into your food is hard enough to counter as it is)...

John_morris71 profile image
John_morris71 in reply to MarionP

Hopefully it will help your mate. If you read the article in the link provided, Prof. Dennis Cruouse's (the author and the person in the video) mother was diagnosed with Dementia/Alz. when she was 86 years old and she has been having silica water since then and is now 93 and doing well, a lot lot better than she was at 86 and is living with her husband and taking care of herself. At such an advanced age taking care of oneself is the greatest a blessing!. Worth trying and if your mate has Aluminum toxicity, it will benefit him. Silica binds with Aluminum found in the body and is excreted via sweat and urine. You should see positive benefits in 15 to 20 weeks or earlier. (based on feedback on the you tube website). Please note that I am not a doctor and you should do more research before making your decision.

Saig profile image
Saig

For those people who aren't able to make the light hats themselves, Dr Catherine Hamilton, the original designer of the deep red (670nm) and near infra-red (810nm) bucket light hats now has a much more powerful version made called the Coronet.

This is the website and blog wellred.com.au

TL500 profile image
TL500

hi John, Thanks for sharing. It's wonderful that red Light is helping your mum.

Could you please tell me what is Silica water for? And how to make it? Thanks.

John_morris71 profile image
John_morris71 in reply to TL500

Silica water is used to remove any Aluminum toxicity ( a neurotoxin) from the body. Please see details in one of the replies above to this post .

TL500 profile image
TL500 in reply to John_morris71

Thanks John

JayPwP profile image
JayPwP

Did you make it or buy it? If bought, from where? Do they deliver to INDIA? Both wavelengths in the same hat?

John_morris71 profile image
John_morris71 in reply to JayPwP

Made it on my own by ordering the LED strips online. I guess there should be no problem to get the LED delivered to India. Most of the parts are from China.

I have provided the links in a reply to another poster.

mgregor6 profile image
mgregor6

I came soooo close to ordering one of these a few years ago. My partner bought one and now wears it at bedtime where she reads for forty or so minutes. (Grrrrrrrrrr) (!)

Perhaps with your endorsement, I will finally purchase one, and join her!

John_morris71 profile image
John_morris71 in reply to mgregor6

Sincerely hope that it helps you. (Has helped my mother with sleep, gait, posture and to some extent even her mood - that may be related to her improved sleep pattern). I use it on her twice a day ( 2 sessions) ; each session is : 20 minute for Red light, followed by another 20 minutes for near Infra red, for a total of 40 minutes per session. Once in the morning after she has her cup of coffee (that is her breakfast) and then before going to bed in the night.

MBAnderson profile image
MBAnderson

Hi John,

There several red light & NIr devices on Amazon that are flat panels of varying size for under $200. Have you done any research or do you know if it has to be a wearable helmet or do you think of flat panel close to one's head might work, too?

Also, I thought I read somebody's comment that the 1 of the companies is offering up 6 month trial basis and will return 80% of the cost if you're not happy. Have you heard of that?

marc

John_morris71 profile image
John_morris71 in reply to MBAnderson

Sorry for the delayed reply. I have no idea about the flat panels and how effective they are / if they can be placed close to one's head. I built the helmets out of a reel of LEDs ( 5 meters long).

MBAnderson profile image
MBAnderson

Thanks

JayPwP profile image
JayPwP

Cant afford wellred. Plan to make my own. Waiting for spares to arrive

amazon.in/dp/B08FKQTRVX/ref...

amazon.in/dp/B07HQXBKFY/ref...

amazon.in/dp/B08GQ7LPTK/ref...

John_morris71 profile image
John_morris71 in reply to JayPwP

I am sure it will be worth the effort and the savings. All the best with using the helmet. Still using it on my mother - twice a day, each session of 40 minutes (20 minutes of red light followed by 20 minutes of near infra red). Trying to do these little things that may be helpful.

JayPwP profile image
JayPwP in reply to John_morris71

Here is the first look at my home made Cossack. Still needs a few adjustments

Erniediaz1018 profile image
Erniediaz1018 in reply to JayPwP

Looking great 👍🏽. Keep us posted on outcomes

JayPwP profile image
JayPwP in reply to Erniediaz1018

Will do

John_morris71 profile image
John_morris71 in reply to JayPwP

Nice !

Erniediaz1018 profile image
Erniediaz1018 in reply to JayPwP

Hi JayHow are you doing with this?

JayPwP profile image
JayPwP in reply to Erniediaz1018

I did not have the NiR lights. No benefits observed on only red lights

JayPwP profile image
JayPwP in reply to John_morris71

Where did you get the NiR lights?

John_morris71 profile image
John_morris71 in reply to JayPwP

On the net. I have provided the link

JayPwP profile image
JayPwP in reply to John_morris71

Thanks

KERRINGTON profile image
KERRINGTON in reply to JayPwP

Hi ! Have you made and used the ted light hat yet ?

JayPwP profile image
JayPwP in reply to KERRINGTON

No. I am unable to find the 810nm NiR LED strips.

KERRINGTON profile image
KERRINGTON in reply to JayPwP

Same here...

JayPwP profile image
JayPwP in reply to KERRINGTON

You can try the bulb gregorio suggested

JayPwP profile image
JayPwP in reply to JayPwP

Here

healthunlocked.com/cure-par...

laglag profile image
laglag

Hi. You may have sent an update on how you are doing in regards to using the red light therapy, if you have, I missed it. Can you send an update?I just bought a book written by Ari Whitten called "The Ultimate Guide to Red Light Therapy". It explains a lot of things I had questions on.

i.e. Details on what devices to look for as far as size, wattage, dosing, how far to stand from the device to get the best use, etc. You can over or underdo it. In layman terms he explains how to do the calculations. Might be a good read if you want to get the most benefit.

please tell me the specific red light device you are using, thanks

kaypeeoh profile image
kaypeeoh

The Vielight is expensive but they offer 80% return if it doesn't work for you.

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