Introduce yourself to the community - Crohn's and Colit...

Crohn's and Colitis Support

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Introduce yourself to the community

LuciaHU profile image
2 Replies

We’re excited about what you can go on to do for those affected by Crohn's and Colitis. We hope you are too. Write something today about your experience and you’ll be starting your own online movement. And get inspiration from Nick York, another advocate in HealthUnlocked here bit.ly/hublog1

Great to have you here ;)

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LuciaHU
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willow24 profile image
willow24Administrator

hi, Im a chronie with 22 yrs experience lol. Current meds are humira injection and 6mp. I came off infliximab due to having a drug induced lupus. Humira seems to be doing my bowels good but joints remain an issue (idiopathic arthritis). I am also suffering from painful rash and skin splits in those intimate areas and natal cleft. mri shows no fistulas or any internal probs. strong steroid cream only works whilst using it but due to strength can only use for 1 week then stop for 2. obviously due to steroids thinning skin i dont really want to use it. oral steroids are a no-no as i get steroid psychosis. anyway i have appointment with dermatologist in feb, but was wondering if anyone had or heard of same thing.

cheers

willow24 profile image
willow24Administrator

hi, Im a chronie with 22 yrs experience lol. Current meds are humira injection and 6mp. I came off infliximab due to having a drug induced lupus. Humira seems to be doing my bowels good but joints remain an issue (idiopathic arthritis). I am also suffering from painful rash and skin splits in those intimate areas and natal cleft. mri shows no fistulas or any internal probs. strong steroid cream only works whilst using it but due to strength can only use for 1 week then stop for 2. obviously due to steroids thinning skin i dont really want to use it. oral steroids are a no-no as i get steroid psychosis. anyway i have appointment with dermatologist in feb, but was wondering if anyone had or heard of same thing.

cheers

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