Really fed up! I’ve not had a bad flare but it’s just been ongoing for like 5 months
It started off with just seeing mucus then a month later the discomfort started lower right (have pancolitis)
Calprotectin was 950 so suggestive of a flare. After treatment it’s now only 108 but I don’t feel any better despite it going down by 842. How is that possible? Mucus still there and discomfort - as I said it isn’t a sharp pain but it’s constant so it’s really getting me down and depressed. Pain was always lower right but has recently moved to upper right / more central and can be difficult to sleep on that side
Take 6 800mg octasa a day and that’s it now. Consultant said no more treatment is needed as the calprotectin is 108 which suggests there’s not much going on. She just suggests it’s ongoing mild inflammation that doesn’t need treatment
Surely I can have something?
Is it possible to almost be free of inflammation but still be experiencing this?
Just want to vent and talk to people who understand. I also feel bad as I know there’s people on here going through a really tough time so should be lucky in comparison so I’m sorry 😞
I’m back at work now and reopen tomorrow and just feel like crying all the time.