redroseart in Parkinson's Movement 5 years ago
does anyone have cbgd?
Corticobasal ganglionic degeneration anyone?
Patmimi in PSP Association 13 days ago
My husband has been diagnosed with CBD and I do t seem to be seeing posts regarding it specifically. Does anyone have or know much about ...
Corticobasal degeneration - A personal story
pamela2103 in PSP Association 6 years agoPOPULAR
I am new to this website, but thought I would share my story.
My mum has recently been diagnosed with Corticobasal Degeneration at the age ...
Corticobasal degeneration and sleepiness
Irenephm in PSP Association 2 years ago
It seems my husband, whose cbd has been diagnosed several years ago, is suddenly sleeping much more during the daytime than only a week ago....
CBD CorticoBasal Degeneration Support Group
Martina12 in PSP Association 3 years agoPOPULAR
I would like to start a CBD support group which is an off shoot to the PSP support group.
I have never started a support group like t...
FLASHPOLL 4B*: (*for patients who take levodopa BUT DO NOT take dopamine agonists): Do you use recreational cannabis...
JonStamford in Parkinson's Movement 4 years ago
Check out this news about psp AbbVie study
Jpc1335 in PSP Association 4 months ago
Recruiting Clinical trial
Christine47 in PSP Association a year ago
This was just posted by CurePSP. Sites are in the US and Canada.
The goal of this study is to build a clinical research c...
FTD Disorders Registry is now live
rriddle in PSP Association a year ago
The FTD Disorders Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: beh...
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Trying to get the lingo
Price69-pat_ in Parkinson's Movement 2 years ago
Hi, I am new . I have been following you all for the last month or so.
I need to know what some of the anagrams and abbreviations mean for i...
Save the date - Saturday, October 28th, PSP/CBD Research Update and Family Conference, Foster City (San Francisco Bay Area)
Save the Date! Saturday, October 28, PSP/CBD Research Update and Family Conference, Foster City (San Francisco Bay Area)
Brain Support Networ...
Does anyone with PSP also have Essential thrombocytosis?
CateT in PSP Association 6 years ago
We have just been told that my mum has this and requires a chemotherapy drug. Essentially she has too many platelets in her blood and is at ...
Hidden in Parkinson's Movement 6 years ago
Would someone please answer a question for me? All these abbreviations; what do they mean? PSP,PWP,MSA,LBD etc....when posting I would thin...
CBD help, very early stages
AnnieD1749 in Parkinson's Movement 2 years agoPOPULAR
My husband was diagnosed last year with Parkinson's Plus / CBD. It's in the very early stages and symptoms seem to come and go. Right now h...
Diagnosing PSP, Wed, Aug 30, 2-3pm PT (Calif time), Webinar - Register Now
Brain Support Network is kicking off a webinar series with Stanford Movement Disorders Center.
Join us for a free, one-hour webinar on diagn...
Atypical Parkinsonian Disorders (Is your PD 'typical'? Depends on proteins involved)
PDConscience in Parkinson's Movement 10 months ago
For those uncertain about their precise form of PD, this update may provide some clarity:
\"Diagnosis of Parkinson disease (PD) — by far the...
Lacey23 in PSP Association a year ago
I've been to my husband' medical appointments and watched our neurologist do his series of tests, but watching Paul in PT/OT I can see a def...
Palmarloop in Parkinson's Movement 2 years ago
I read recently that this substance is a whizz at producing new brain cells as well as protecting those already in place. Has anyone tried i...
R8360V in Parkinson's Movement 2 years ago
Hi All, hope everyone is keeping okay. Its a long time since i havent written, truthfully im doing so now because after 8 years ive finally...
Gallstones and nafld
Andy6666 in PSP Association 4 years ago
Merry Xmas to all and hoping you all have the bestest Christmass ever.
I am new here nervous scared and confused lol.
Just found out I ...
Register now - Sat, Oct 28, PSP/CBD Research Update + Family Conference, San Francisco Bay Area
Registration is now open!
Brain Support Network will host the:
PSP/CBD Research Update and Family Conference
Saturday, October 28, 2017
Hidden in Parkinson's Movement 4 years agoPOPULAR
pagf, psp, pwp : Please explain what the acronyms used on this site mean. thanks
Stages of psp
nannygoon in PSP Association 5 years ago
Sister in nursing home with parkinsons plus quering psp. My sister over the past 2/3 weeks she has become very very unresponsive and not com...
GAILINGRAM in PSP Association 5 years ago
Not many people from the south seem to have PSP I have many questions and would like to hear PSP pt and caregivers response. My mom had weak...
Getting the right diagnosis
ray-wiffen-1958 in PSP Association 7 years ago
hi i was 49 when i was diagnosed with corticobasal ganglionic
degeneration i throught thats it ill be dead before my kids have
grown up but i ...
CBC vs PSP
Karynleitner in PSP Association a year ago
My husband is declining rapidly . He still does not have a final diagnosis and his movement specialist made a referral to Mayo Clinic in M...
Angels Do Have Wings to Fly!
vsm0001 in Parkinson's Movement a year ago
It is with a sad and heavy heart that I write to you tonight.
On Saturday, Feb 11th, Guy lost his battle with Corticobasal Degeneration.
PSOAS muscle : Parkinson'so is not a disease?
aspergerian in Parkinson's Movement 5 months ago
Recently, Mulberry4355 presented what may prove to be an important aspect of how PD is conceived, visualized, understood (at least for one o...
Sister with CDB declining
Docches in PSP Association a year ago
My sister with CDB can not sit still or be quiet. She can't speak but she makes noises and screams all of the time. And when she lays down...
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