How long to wait and see: Hi. I'm sick... - Canadian Organiza...

Canadian Organization for Rare Disorders

How long to wait and see

Shadow35 profile image
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Hi. I'm sick since one year. I just paid a doctor to run more test because my gp don't want to. Everything came back negative. The doctor told me to wait for the symptom to get worse and each time a symptom is unbearable to go check my gp for test but for the moment to live like that. How long can it take for like an immune desaease to show on blood test or some doctor can try some medication to see if it's helping to find the problem. I had symptom that look neurological, biģ fatigue, a lot of time pain in joint , if i'm doing too much exercice it can take me two week to get better. Skin rash, brain frog... name it. I know that a lot of deseased don't show on blood test. What you do in that circonstance ? Wait or seek advice elsewhere?

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Shadow35
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Boeingbabe profile image
Boeingbabe

Have u been checked for lyme disease? You have many of the symptoms. You need special blood tests.

Shadow35 profile image
Shadow35 in reply to Boeingbabe

I'm gonna check again but i think so. I'm functionnal most of the time but never like before. I'm now use to have the physical life of an 70 year old person vs 35. I was hoping with the blood test that she gonna propose me something to try but no. Each month i have a different symptom. I now have a cramp in my right side since 4 weeks. Day and night. It start at the same time than the orange on my skin. The color left but not the pain.