Lung transplant : My new Pulmonologist... - COPD Friends

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Lung transplant

bcat9251
bcat9251

My new Pulmonologist mentioned lung transplant as something for me to consider . I am open to advice from anyone with experience in this . I am exploring information on it but would like to hear from anyone who has had one or know of someone who has had one .

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frissykat
frissykat
in reply to Hidden

I went to jeffcopdwaters, I wouldn't expect changes like that but any change no matter how small is good for me, just wondering where you would get it & I'm not interested in getting high so if you could get it w/o that feature

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My husband was told that his best chance of living a longer life is a transplant. We will start the testing and such in March. Not sure what to expect.

bcat9251
bcat9251
in reply to Hidden

Sounds like you need lots of answers too !

Hidden
Hidden
in reply to bcat9251

Yes, just waiting to see Pulm. dr. again in March.

After going through extensive evaluations, I was approved and added to the active list on October 27th. I have already been called once, but was experiencing infection, so I had to be "skipped". Hopefully, another opportunity will present itself soon. I'll be glad to answer any questions about the process that I went through and am presently going through. If you prefer, my email address is ldycatcoach@yahoo.com.

Thank you , I will email you soon!

Hidden
Hidden
in reply to Ldycatcoach

Thanks when we get closer, March is our date to start the process, I will keep you in mind.

Yes I would like more information about the lung transplant and testing details.

I was diagnosed in 2010-2011 w/ mild COPD . Now I'm at Severe COPD my pulmonary doctor wants me to get the testing done for transplant. Any information would help greatly !

It is very important to have the testing done as soon as possible. You want to be in good physical shape so try to stay active. Testing includes heart evaluations including EKG, Echocardiogram, and catheterization. Nuclear scans for digestion, scans for oxygen distribution, swallowing tests, tests to check for gerd, cancer evaluations such as colonoscopy, skin, mammogram, a bundle of different blood tests, a psychological evaluation, and physical fitness evaluation. The transplant team will set the tests up for you and you complete the majority over a four day period as an outpatient. The committee will then meet with all of the results and make their recommendations. You may contact me at ldycatcoach@yahoo.com if you have specific questions. I will be glad to try and answer them. Waiting for the call is a very anxiety laden period, but somehow your mind and body seem to make the necessary adjustments to cope. May God bless you as you consider this option. It is my only hope for life extension. Everyday is a gift from God.

Ldycatcoach ,

Thank you so much for answering my question.

There isn't very much info out there on this subject . I have found some but it didn't go into deep details like you have.

My pulmonary doctor hasn't really explained anything to do with the preparation for the testing.

Thank you once again !

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