Maybe a dumb question!!: Hi to all, does anyone... - COPD Friends

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Maybe a dumb question!!

Cynmp profile image
17 Replies

Hi to all, does anyone have idea's about the 50 ft of tubing that I drag all over my house,that gets caught on everything and jerks my head back a ton of times a day?

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Cynmp profile image
Cynmp
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17 Replies
rduffy profile image
rduffy

Always coil the tubing up when you're near your oxygen source. When you move away, pick up the coiled tubing & let it play out behind you as you walk. Keeps it from getting tangled & caught. And take your time. Move slowly & deliberately. You'll get used to it over time.

joeoconnell profile image
joeoconnell in reply to rduffy

sounds O K for when you start out, but not so much as you move back and forth

rduffy profile image
rduffy in reply to joeoconnell

True, it's still a constant issue as you move around. You have to get in the habit of constantly being aware of it--a lesson I forgot myself just this morning, costing me an extra walk up the stairs to untangle a knot in the hose. Oh well, I'm supposed to get exercise, right? I'm starting to think of my hose and portable concentrator as sort of a constant dance partner. I always need to know where my partner is and where I'm moving in relation to her. And I have to remember not to step on her toes. Who knew this lung condition would end up teaching me how to dance after all these years? Another unexpected benefit of bronchiectasis. Along with being able to park wherever the hell I want to now. And my cat enjoys watching my tubing snake and wiggle across the carpet. I'm glad I could be of service there too. Plus, my wife and kids can always find me wherever I am in the house, just follow the green plastic trail. All sorts of upsides to this tubing. Just gotta look for them.

MrsGLBJ profile image
MrsGLBJ in reply to rduffy

I like this idea alot! But guess what,...one of the guys who used to deliver such items to my home said that that wasn't a good idea wrapping it around the concentrator. He gave some kind of explanation which I can't remember. I guess if it's not pulled too tight, it ought to be alright. No? What gets me is how the hose/tubing kinks, even w/those swivel connectors.

KevinDavitt profile image
KevinDavitt

Hi.

I know your frustration.

You can order 25, 35 ft. from Amazon and it's reasonable and more manageable.

I also order small oxygen tanks. I think mine are D size if you're approved for them. I walk around the house with one in a back pack. Much easier.

LORBIC profile image
LORBIC in reply to KevinDavitt

HI Kevin: how many hrs do you get out of the size tank you have? Doctor has changed me to contiuneous oxygen and I need to make a decision on how I want to receive it. Have to have this all taken care of before Jan 1,2017.

valeriejean profile image
valeriejean in reply to LORBIC

I use a C size on my backpack and can last from 1/2 hour on 4 LMP CF w/ exertion to 1.5 hours on 2 LPM at rest. I just got a D cannister w/ backpack and was told it could double that. I'm ok w/ the cannister but have to bring alot along w/ me if I go any distance. Better than dragging an E size along on a cart that I trip over and are heavier to carry. Been doing this for a decade now. Make sure you get a pulsoxymeter and if you drop below 92 saturation turn it up until you get there...or do some purse lip breathing. Good luck you can do it and we just have to learn to take it easier than we used too.

KevinDavitt profile image
KevinDavitt in reply to valeriejean

Agree on the D although I got a true hiking backpack with a waist strap for those because every time I bent over, I was smacking myself in the head with the tank! (lol)

KevinDavitt profile image
KevinDavitt in reply to LORBIC

It really depends I think on what you're doing and how strenuous it is. I have a pulse setting on the gauge as well as opposed to continuous flow of oxygen. So if I'm sitting and reading and just getting up now and then maybe 90 minutes? If I'm gardening, less. In the house I go back and forth between concentrator and tank.

corkie65 profile image
corkie65 in reply to LORBIC

Hi Lorbic I see you are on contiuneous flow I have been on that for a long time now on a D tank I get 2hrs on the larger E tank I get about 3 to 3 1/2 hrs hope this helps I am set on 2 on the regulater

bcat9251 profile image
bcat9251

It's not a dumb question . I have the same problem and am interested in what other people have to say . I have to untangle mine several times a day .

valeriejean profile image
valeriejean

I am forever "clotheshanging " myself. So frustrating! I reel it in when i get where i'm going. try to remain aware of it so I will walk it out past where I want to go to make sure it gives me plenty of room. I also hold it in my left hand close to my body so it doesn't pull my head back if it catches....you try and set your furniture up to emilinate that as much as possible. Pain in the ass for sure but beats not being able to breathe. peace out.

frissykat profile image
frissykat

I know what you mean..you could keep your machine centrally located then you could use a shorter cord. I keep mine in the kitchen away from the bedrooms because of the noise so when I use the 25 ft tube I have to add to it when I go to bed. I don't buy my tubing I get it free fom my co.

Ldycatcoach profile image
Ldycatcoach

I go barefoot and manage it with my toes. I never realized how gifted I was in "foot control". Winter months are a little more difficult, but I wear the socks with the grip on the bottom instead of slippers. This still allows me some foot control.

MareZbelle profile image
MareZbelle

I have used an electrical cord tool to wrap and unwrap the 50 foot tubing. I use the 50 foot tubing more during the warmer months when I am going out on the deck and front porch, finding the 25 footer much easier to mange in the house.

MrsGLBJ profile image
MrsGLBJ

It makes sense to me!!

Cynmp profile image
Cynmp

I thought maybe a garden hose retractable thing that I could duct tape around me or even something like a tape measure idea, lol!!

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