This past week during OV IV cancer debulking I was given an iliostomy
My surgery was a cancer removal success “visually” HOORAY !!! and the stoma is REVERSIBLE
Overall doing Ok just working on getting stoma output regulated
I have had three chemos and have three more to go so either at end of third chemo or between chemo session 2 and 3 Doctor said it will be reversed
Althoug I was prepared for the debulking I wasn’t for the iliostomy , this is all so new and scary to me -and yucky
I get released from hospital today
I have learned to empty the bag and have helped change to bag . Stoma nurse will visit also initially
Really what I need help with is the everyday living stuff like :
What are the best bags? Controlling odor?
How do you disguise it in clothing and is there a way to get it so it doesn’t feel like it’s lying on your leg?
As I am just weaning off the pain meds I haven’t joined any Ostomy support groups yet but plan to
Any information is really appreciated