Charcot-Marie-Tooth UK

Hi do any other CMTers suffer with thier hips? I find that even on shorts walks my hips feel like they are grinding together! very painful x

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10 replies

    snowmancarnage
    snowmancarnage

    Hi, yes I get that if I have walked too far and yes it is pretty painful I must say. It hasnt done it on short walks, but in the winter they will hurt on shorter walks.

    Penarthgran
    Penarthgran

    Its not unusual for those with CMT to have problems with both knees and hips. Its because we compensate for the lack of feeling/movement in our feet by adjusting our gait.

    Whiterose
    Whiterose

    Hi yes I have a problem with my hips too when walking and it is painful. I recently asked my G.P for an xray as not sure it is the CMT,the joints or both. Get it checked out is my advice.

    Paulina
    Paulina

    Hi all, yes I suffer more in the cold weather too! I have had my hips xrayed and the result was 'slight wear and tear'! with the pain that I experience, the diagnosis doesnt seem fitting!

    Thanks all

    john1966
    john1966

    Hi paulina yes i to have knee/hip pain have had xxrays to which i was told 'slight wear and tear'!

    williamalfred
    williamalfred

    hi yes is the answer i get pain in my hips, thighs and lower back, doctors just say take brufen ad paracetamol it the same answer every time, it`s your CMT. Also my knees when i try and pick things up, it`s trying to get back up again.

    cath123
    cath123

    I'm getting pain in the hip, knee and lower back, sooooooooooo fed up!!
    Doc puts everything down to CMT but doesn't know very much about it. I particularly suffer with fatigue too.

    Paulina
    Paulina

    Yes I agree as soon a doctor looks at my records, I get oh you have CMT so thats why you have pain in your hips etc! I will give you some more pankillers! so annoying and yes Cath, I am suffering with fatigue too! For years I used to be able to get out of bed on my first alarm but now I am snoozing at least 3 times! its such a battle of wills to actually get up for work now! horrible condtion

    Ulrich
    Ulrich

    Yes I live on pain pills, my right hip has been hurting for 10 years, I finally spoke to a doctor because everything I do now effects it, my doc said its probably osteoarthritis and may result in a replacement. The left hip just recently started to hurt too but it may last me out :)

    strawberryshortcake
    strawberryshortcake

    i have terrible pain every morning in my hip,thigh and down the front of my leg. I can hardly walk or get dressed. it usually lasts for a few hours..last year I had my knee replaced and an operation on my ankle the year before which has resulted in me having a metal strip down the front of my leg to stop my ankle twisting round. I don't know if this has anything to do with the pain. on my last visit to the hospital I told the doctor and he just said It might go away and that was all.

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